Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Out There Not Support The Use Of Probiotics?


Sweetfudge

Recommended Posts

Sweetfudge Community Regular

Just doing more research on probiotics, and whether or not I should be taking them. Everyone here seems to think they're good. Is there any evidence to the contrary?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I don't take them, I just never started. I am not for or against them since I don't really have an opinion.

ravenwoodglass Mentor

For me it is a personal preference driven by years of toxic meds and a dislike and distrust of pills but I much prefer to balance my tummy with a certified gluten-free yogurt. We even use it as a preventative when one of us has to take antibiotics. We start the yogurt the day we start the antibiotics and continue through the treatment and that seems to prevent the imbalance. I would go with that first then if it is not enough you could go with the pills.

lovegrov Collaborator

I've heard nothing bad.

richard

darkangel Rookie

The only slightly negative thing I've ever come across in my research is IF your gut is in really bad shape and inflamed, probiotics could cause further irritation. I think this applies more to folks suffering from Crohn's and ulcerative colitis, though.

IMHO, probiotic supplementation is essential for most of us who have digestive issues, particularly if you've had courses of broad spectrum antibiotics, have taken antibiotics for long periods of time for acne, are on birth control pills, have eaten a starchy/sugary diet. All of these things disturb natural gut ecology.

I prefer to get mine in the form of a pure, powdered supplement I mix with water. I have issues with dairy and can't tolerate any kind of yogurt - even the homemade kind on the Specific Carbohydrate Diet, which is lactose-free. Many storebought varieties do not have enough viable live strains to do any good, AND you've got the issue of possible gluten or unwanted sugar.

casnco Enthusiast
Just doing more research on probiotics, and whether or not I should be taking them. Everyone here seems to think they're good. Is there any evidence to the contrary?

I purchased a probiotic via a mail order company. I took them for a month and didn't notice any difference. I quit them feeling it was a waste of time and money. Then I went to an herbalist. She told me the probiotic needs to be refridgerated to keep them alive or working, whatever the term is. She gave one that says gluten free and I have been taking it for three months. What I notice is that when I get cross contaminated my recovery time is only a couple of days as apposed to a couple of months. I have added a vitamin to my daily routine now. I never felt any different with vitamins either, but since the probiotic the vitamins are making it to my blood stream and not my urine! My herbalist has changed to a different probiotic this month because she said there are other colonies that need to be replaced in the intestine.

I hate pills!!! I would never take something if it didn't make a noticable change. But I really feel better and believe my gut is in better shape now than it has been in years because of the probiotic. My herbalist also said that there will not be a need to take the probiotic for the rest of my life. It is only for a short time. (three months seems like a long time, but in the big picture, my gut didn't get all messed up overnight so I will stick with her advice. It has been great so far.)

Good Luck! And make sure you buy your probiotics from someone who knows alot about them.

Debbie

jerseyangel Proficient

In my opinion, I think they're fine to use. I've seen quite a few people here who get great benefit from probiotics.

Myself--I've yet to try one that I could tolerate.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

I've started eating home meade yogurt and I've noticed a big difference in recovery time if I've eaten the wrong thing.

burdee Enthusiast
In my opinion, I think they're fine to use. I've seen quite a few people here who get great benefit from probiotics.

Myself--I've yet to try one that I could tolerate.

Patti:

If you NEED probiotics, because your 'good' intestinal bacteria are low or even depleted, you SHOULD react to them and not easily tolerate them when you first begin probiotic therapy. The new good bacteria change the way your intestines process food. If you experience no reaction or no difference, the organisms are probably dead or non-viable. I just finished a 2 week course of freeze dried powdered probiotics. Each night before dinner I mixed a probiotic packet with water and drank it. On the first night I felt like the good and bad bacteria were really slugging it out or at least beating my intestines with their little boxing gloves. LOL Every night thereafter for the next week I had a LOT of bloating and then gas. Eventually that reaction decreased until I only felt a little bloating and gas by the time I took the last of those packets which contained 170 billion live organisms each. Now when I take my freeze dried probiotic capsules which only contain 8 billion live organism per capsule, I hardly feel any reaction. So I KNOW I finally got my 'good' bacteria levels high enough. Also I'm no longer bruising easily (vitamin K deficiency) or irregular.

I don't think everybody needs probiotics. However anyone who ever took antibiotic treatment courses needs probiotics to replenish their good bacteria, especially if they have signs of vitamin K deficiency (frequent bruising) or irregularity (despite fiber and magnesium) caused by impaired gut motility. Yogurt does not supply enough live organisms or enough variety of necessary good bacteria to replenish depleted intestines after a course of antibiotics.

BURDEE

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.