Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"caliectasis" Of Right Kidney

Joni63

By Joni63
in Coping with Celiac Disease

Recommended Posts

Joni63 Collaborator
Joni63
Posted

I'm having a rough summer.

First in May I had an ovarian cyst burst, then an ER visit, several blood tests, a colonoscopy/endoscopy that diagnosed me with Celiac, 4 ultrasounds, and now my kidney had Caliectasis. I feel like I am just falling apart. I thought I was doing well - just started the gluten free diet 2 1/2 weeks ago and feel a lot better. Had to have a follow up ultrasound done of my right kidney this past Monday because it had Caliectasis. Now they are sending me back to a OBGYN? Why would they do that for a kidney problem?

I have no idea what this is or what it means. Did anyone every have "Caliectasis" of their kidney? What does it mean?

I can't seem to get a break. It's just one thing after another. I've been handling this ok until now but I just can't handle anything else at this point.

I can't even call until Monday because the Doctor isn't in. I could scream!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest j_mommy
Guest j_mommy
Posted

So I did some digging...looked im my med dictionary ect.

Definition is inflamation/dialation on the calix of the kidney......this can be due to blockage or infection. Such as kidney stones ect.

That's about all I can offer...hopefully others will be able to fill in more!

Good Luck!

melmak5 Contributor
melmak5
Posted

I don't know about the kidneys, but it seems pretty standard that 3 months after you have a ovarian cyst issue they want to re-check to make sure new ones aren't forming and old ones aren't getting bigger.

It is pretty unacceptable that they did not give you a reason. Its your body, demand information.

Thank goodness your body is responding well to being gluten free! Hopefully that will help give you some relief and you can get the rest of your organs to follow suit.

(I have a pretty similar summer of one system after another having problems. Hopefully the fall will be our season!)

2kids4me Contributor
2kids4me
Posted

Caliectasis is a dialation in the kidney plevis. It can be due tio iunfection or a kidney stone. The reason they might refer you back to a OB GYN is because a kideny infection can be due to an ascending urinary infection secondary to an infection related to the genital/urinary tract....or an issue with the genital tract.

In females - these parts are all related.

Sandy

The Lovebug Rookie
The Lovebug
Posted

Dear Bellyfat,

I can't offer any new information, but I just want to give you a big, virtual hug 'cause it sounds like you just need some plain, old fashioned tea and sympathy. We're here for you.

Sue

Joni63 Collaborator
Joni63
Posted
  • Author

Oh my. Thanks so much Sue. Your post brought tears to my eyes. I guess I'm going through one of the crappy stages that happens after I did the "I can handle this" stage. I always tackle problems head on and handle them fine and fall apart later.

I appreciate all the other help and ideas. I hope it's nothing serious. I have felt really lousy the past few days, but think it was related to my menstrual cycle. They are always bad for me. I'm really tired and am kind of disappointed because I felt so good at first on the gluten free diet. But I know I also pushed myself too hard trying to catch up on things I've let go the past couple of months because I was sleeping so much due to fatigue. I'm also trying to get better sleep during the night and not nap at all during the day so I can hopefully train my body to stay asleep all night. I've only slept maybe 10 or so times all night through in the past 9 years. That's wearing on me also. I guess once I was diagnosed Celiac and got on the diet I thought I was superwoman. Guess not!

Melmak, I did have a 2nd ultrasound of the cysts and it did change. Originally there were 3 on left ovary and 1 on the right, after a month I had 2 on the right and 1 on the left. She said we will wait 6 months and recheck, but they all looked like simple follicle cysts so hopefully no worry there. I've been following your posts and see you've been having problems also. Best of luck in getting yourself straightened out as quickly as possible. Bring on the 'Fall' season...

I'm not sure but I think there was a mixup about what office the kidney ultrasound results went to. My OBGYN is named Reilly and my Primary Care is Reilly-Lowe. I was surprised when I got a letter in from the OBGYN office that said I need to make an appointment when my family doctor ordered the ultrasound and told me she would send me to a kidney specialist if it didn't improve since the last kidney ultrasound 6 weeks ago. I will call both offices tomorrow and see what is going on. I was going to make an appointment to see her and it really surprised me when the letter came in the mail from the other office. Worrying has become my new favorite past time with all these health issues going on. Seems it's never ending right now.

Thanks for the support. I want to give you all 'big hugs' back. Glad we have each other cause I know most of the people in my life aren't understanding this at all right now.

The Lovebug Rookie
The Lovebug
Posted
I'm also trying to get better sleep during the night and not nap at all during the day so I can hopefully train my body to stay asleep all night. I've only slept maybe 10 or so times all night through in the past 9 years.

Bellyfat,

For what it's worth, I've found a sure-found formula for good sleep. First of all, I take an Excedrin P.M. at bedtime, then I put ear plugs in my ears and a sleep mask over my eyes. Other than a trip or two to the potty, I sleep like a baby. ;)

I agree that if you sleep well you're so much better able to deal with what life throws your way the next day. Hang in there, kiddo!

Sue

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Joni63 Collaborator
Joni63
Posted
  • Author
Bellyfat,

For what it's worth, I've found a sure-found formula for good sleep. First of all, I take an Excedrin P.M. at bedtime, then I put ear plugs in my ears and a sleep mask over my eyes. Other than a trip or two to the potty, I sleep like a baby. ;)

I agree that if you sleep well you're so much better able to deal with what life throws your way the next day. Hang in there, kiddo!

Sue

Funny you mentioned the sleep mask. I just bought one of those and used it about 5 nights but thought it was hard to get used to so I stopped using it. I also have ear plugs I could try. Did it take you a long time to get used having the ear plugs in and the eye mask on?

I also have something the Doctor gave me I haven't tried yet - it's called zolpidem tartrate (generic for ambien). I just hate to take meds if I can solve the problem the 'natural' way. But so far I've been unsuccessful with cutting caffeine, the mask, a light therapy light, etc.

The good news is I called my Doctor and my ultrasound of the kidneys all came back normal. Yeah! I also have a call into the OBGYN to see why they sent me the letter. It can't be anything too serious as my primary already went over the results of those with me and she said we should just do another ultrasound in 6 months to monitor them. So for now, I think I'm ok. :)

The Lovebug Rookie
The Lovebug
Posted

Bellyfat,

Good news on the kidney-thing. Glad to hear you are ok, after all.

Re the sleep mask: I does take a little getting used to, but I can't sleep without mine now. I invested in one made by Tempur-pedic so it's a lightweight foam than molds to the contours of your face (Brookstone and similar places carry them). It completely blocks out light, which allows your pineal gland to produce melatonin, which induces sleep. I swear by it. The earplugs are another thing I can't do without. They probably do take a little getting used to (I've used them for so long, I've forgotton). They were a godsend when I thought my husband and I might have to sleep in separate bedrooms because of his snoring. They don't completely eliminate noise, but they lower the decibels considerably.

Hope this helps.

Sue

Joni63 Collaborator
Joni63
Posted
  • Author
Bellyfat,

Good news on the kidney-thing. Glad to hear you are ok, after all.

Re the sleep mask: I does take a little getting used to, but I can't sleep without mine now. I invested in one made by Tempur-pedic so it's a lightweight foam than molds to the contours of your face (Brookstone and similar places carry them). It completely blocks out light, which allows your pineal gland to produce melatonin, which induces sleep. I swear by it. The earplugs are another thing I can't do without. They probably do take a little getting used to (I've used them for so long, I've forgotton). They were a godsend when I thought my husband and I might have to sleep in separate bedrooms because of his snoring. They don't completely eliminate noise, but they lower the decibels considerably.

Hope this helps.

Sue

Yes, it was great news - thank you!

I tried the mask and earplugs last night. I ended up taking out the earplugs very early in the morning. I will keep trying, maybe give it a month or so. I also bought an Inspiration Light Therapy LED Lamp that I'll also try. Maybe that will help.

Has anyone ever used one for sleep problems or depression? DId it work?

This pattern of waking up 2-3am has been going on a very long time, guess I can't expect it to resolve in a week. I just want to try natural remedies before I start using the sleep medicines. From what I've read taking supplements like melatonin only trick your body into thinking it's working correctly, but doesn't actually help correct the problem.

Joni63 Collaborator
Joni63
Posted
  • Author

FInally got hold of the OBGYN office today! I am sooooooooo mad at them. I left 2 messages last week, one on Monday morning and one Tuesday evening. No one called me back so this mornig I called and the receptionist said she left them the messages, but they could be busy. Uh, sorry that's not a good answer. I went off telling her that I NEED to talk to the Nurse Practitioner about the letter their office sent me and it Has to be today!

Long story short, the NP called me back within 1/2 hour and reviewed my bloodword that I had done and my CA 125 test is elevated. She's sending me the paperwork to go back and have the same tests done again and I am making an appointment with the OBGYN. I told her I just got diagnosed with Celiac and she said that could cause the CA 125 test to elevate due to the inflammation in the intestines. I also had the ultrasound of my kidney during the same time and that was showing the calectasis or inflammation.

I read up on the CA 125 and saw their is a lot of false positives, especially in women of premenapausal age. I'm trying to think positive about this, but I do have a couple cysts on my ovaries. Ovarian Cancer scares the crap out of me - I had a friend die at age 28 from it and she left behind two children ages 3 and 5 at the time. Ever since I saw what she went through and the rapid changes that Ovarian Cancer can cause it is just so frightening to me.

Please pray for me that this is just another obstacle I'm going through and I will come out of it fine!

I have been so healthy up until this past May when everything seems to have gone totally wacky on me.

Thanks for all your support and help, just knowing someone is here for me makes a huge difference!

The Lovebug Rookie
The Lovebug
Posted

I'm sending positive vibes your way, Bellyfat. Keep us posted.

Sue

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,563
    • Most Online (within 30 mins)
      7,748
    Bob Madden
    Newest Member
    Bob Madden
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.