Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Gluten Test


scotty

Recommended Posts

scotty Explorer

there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?

Actually, my friend said it would be better if my skin DID react to wheat, that way any time I got zapped from holding food I'd know it wasn't safe!

cyberprof Enthusiast

My 14 yo son is wicked smart and wants to be an inventor. I suggested that he invent a test to use on food before you eat it. Since I have celiac disease and he may, it would certainly be great to have something.

There's no money in celiac disease for drug companies, but there would be $ in an invention like this.

there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?
wwebby Apprentice

Check this out: Open Original Shared Link

GFDahlia Rookie
there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?

Scotty,

That is so funny - I just said that exact same thing to my husband the other night. He is a mechanic and was trying desperately to think of how it could be done. It would make life soooo much easier haha. Let me know if you ever hear of such a thing in the future!

Dahlia

scotty Explorer

i'm sure everyone would be quite pleased if anyone came up with some kind of tester!!!

i have no idea what zapped me; but i thought my appendix had burst the other night. i have heard Kroger seasonings are ok? (had garlic powder and onion powder) which was new to me; the only other possibility could be an onion i ate. i thought vegetables were safe across the board. it was one loose you know in the huge bin or whatever??? a yellow one...i keep getting zapped but i keep eating the same things over and over to know what is new. all this new stuff is really putting a hinder on my healing process. seemed like it happened 2 days in a row. i don't know...is this the usual circumstances? does it always seem like 2 days. cuz i ate most the same stuff like an idiot--you know for the test

The Lovebug Rookie

I had a look at the gluten test kit offered on the glutenfreetravel site. Obviously a bit cumbersome for taking to a restaurant or such. But it does mean that someone is thinking about this problem and maybe something usable isn't too far off.

Scotty, I think most of us find that we have symptoms after being glutened which can last for 2 or 3 days. So don't be alarmed that yours went on for so long. The first day is pure pain and agony, the second is usually ghost pains and lots of "brain fog" and the third is lots of weakness, but starting to feel human again.

Oh how I long for the good 'ol days when things were so much simpler.

Sue


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scotty Explorer
I had a look at the gluten test kit offered on the glutenfreetravel site. Obviously a bit cumbersome for taking to a restaurant or such. But it does mean that someone is thinking about this problem and maybe something usable isn't too far off.

Scotty, I think most of us find that we have symptoms after being glutened which can last for 2 or 3 days. So don't be alarmed that yours went on for so long. The first day is pure pain and agony, the second is usually ghost pains and lots of "brain fog" and the third is lots of weakness, but starting to feel human again.

Oh how I long for the good 'ol days when things were so much simpler.

Sue

i have no problem recognizing that i have been glutened when i have been. i have trouble narrowing it down to what got me. i want to try things again just to be sure. cuz i will get a little good feeling circulating and try more than one thing at a time cuz of cravings. i just want variety. and i want a nice reaction immediately; one lick and the tongue swells or something. this literally wipes out days; always makes me think yup i got glutened; then next day, what the hell happened again.

JNBunnie1 Community Regular
i have no problem recognizing that i have been glutened when i have been. i have trouble narrowing it down to what got me. i want to try things again just to be sure. cuz i will get a little good feeling circulating and try more than one thing at a time cuz of cravings. i just want variety. and i want a nice reaction immediately; one lick and the tongue swells or something. this literally wipes out days; always makes me think yup i got glutened; then next day, what the hell happened again.

There's a silver lining to every cloud scotty, last time I got glutened, the symptoms lasted over a month.......

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,222
    • Most Online (within 30 mins)
      7,748

    Mike Dotts
    Newest Member
    Mike Dotts
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.