Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Gluten Test

scotty

By scotty
in Coping with Celiac Disease

Recommended Posts

scotty Explorer
scotty
Posted

there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted
there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?

Actually, my friend said it would be better if my skin DID react to wheat, that way any time I got zapped from holding food I'd know it wasn't safe!

cyberprof Enthusiast
cyberprof
Posted

My 14 yo son is wicked smart and wants to be an inventor. I suggested that he invent a test to use on food before you eat it. Since I have celiac disease and he may, it would certainly be great to have something.

There's no money in celiac disease for drug companies, but there would be $ in an invention like this.

there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?
wwebby Apprentice
wwebby
Posted

Check this out: Open Original Shared Link

GFDahlia Rookie
GFDahlia
Posted
there needs to be a gluten tester invented. or a scanner that can test foods before we eat them to tell if they contain any traces of the poison. that would be great. anyone own one?

Scotty,

That is so funny - I just said that exact same thing to my husband the other night. He is a mechanic and was trying desperately to think of how it could be done. It would make life soooo much easier haha. Let me know if you ever hear of such a thing in the future!

Dahlia

scotty Explorer
scotty
Posted
  • Author

i'm sure everyone would be quite pleased if anyone came up with some kind of tester!!!

i have no idea what zapped me; but i thought my appendix had burst the other night. i have heard Kroger seasonings are ok? (had garlic powder and onion powder) which was new to me; the only other possibility could be an onion i ate. i thought vegetables were safe across the board. it was one loose you know in the huge bin or whatever??? a yellow one...i keep getting zapped but i keep eating the same things over and over to know what is new. all this new stuff is really putting a hinder on my healing process. seemed like it happened 2 days in a row. i don't know...is this the usual circumstances? does it always seem like 2 days. cuz i ate most the same stuff like an idiot--you know for the test

The Lovebug Rookie
The Lovebug
Posted

I had a look at the gluten test kit offered on the glutenfreetravel site. Obviously a bit cumbersome for taking to a restaurant or such. But it does mean that someone is thinking about this problem and maybe something usable isn't too far off.

Scotty, I think most of us find that we have symptoms after being glutened which can last for 2 or 3 days. So don't be alarmed that yours went on for so long. The first day is pure pain and agony, the second is usually ghost pains and lots of "brain fog" and the third is lots of weakness, but starting to feel human again.

Oh how I long for the good 'ol days when things were so much simpler.

Sue

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


scotty Explorer
scotty
Posted
  • Author
I had a look at the gluten test kit offered on the glutenfreetravel site. Obviously a bit cumbersome for taking to a restaurant or such. But it does mean that someone is thinking about this problem and maybe something usable isn't too far off.

Scotty, I think most of us find that we have symptoms after being glutened which can last for 2 or 3 days. So don't be alarmed that yours went on for so long. The first day is pure pain and agony, the second is usually ghost pains and lots of "brain fog" and the third is lots of weakness, but starting to feel human again.

Oh how I long for the good 'ol days when things were so much simpler.

Sue

i have no problem recognizing that i have been glutened when i have been. i have trouble narrowing it down to what got me. i want to try things again just to be sure. cuz i will get a little good feeling circulating and try more than one thing at a time cuz of cravings. i just want variety. and i want a nice reaction immediately; one lick and the tongue swells or something. this literally wipes out days; always makes me think yup i got glutened; then next day, what the hell happened again.

JNBunnie1 Community Regular
JNBunnie1
Posted
i have no problem recognizing that i have been glutened when i have been. i have trouble narrowing it down to what got me. i want to try things again just to be sure. cuz i will get a little good feeling circulating and try more than one thing at a time cuz of cravings. i just want variety. and i want a nice reaction immediately; one lick and the tongue swells or something. this literally wipes out days; always makes me think yup i got glutened; then next day, what the hell happened again.

There's a silver lining to every cloud scotty, last time I got glutened, the symptoms lasted over a month.......

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.