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Trouble With Healing - Could It Be Celiacs?


Energy Seeker

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Energy Seeker Newbie

I have been struggling with my energy levels since I was 17. I've been on iron pills on and off since (I don't care for the constipation and try to get iron from broccoli and other veggies). I have always been very active and am currently playing at a high level of ultimate frisbee and thought the low energy levels was a result of my active lifestyle.

In my fourth year of university I was told I have acid-reflux disease. I've taken nexium twice, (2 month stints) it stopped the esophagus scarring heartburn but still have some serious upset stomachs. I have stopped eating spicy/starchy/sugary foods to control my heartburn.

After a meal I would get so fatigued I could fall asleep sitting in my chair before dessert was even served. At first I thought it was the potatoes because they are so high in starch, so I stopped eating them.

Last summer A friend of mine was diagnosed with celiacs and explained her symptoms so I went and got tested but the blood test came back negative. Regardless of the negative results I decided to cut bread out of my diet completely because of the "explosions in my intenstines" after I ate it.

My parents are irish and dutch, my mom (irish) also has trouble eating wheat.

In august I sprained my ankle and the swelling never subsided. My phsio can't explain the inflammation and constant irritation I'm experiencing because normally in a sprain that would have subsided by now. I am worried that if I have celiacs eating gluten is affecting the healing process for my ankle, is this possible?

I have been on a gluten-free diet for 1 week now and have dropped one dress size, at a time where my physical activity is at an all-time low due to my ankle injury.

Since I've already have a negative blood test I don't want to adapt a gluten-free lifestyle unless I know for sure I have celiacs. I also suspect I have other GI problems which would be easier identified if I knew whether or not I had celiacs.

Any advice?


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gfgypsyqueen Enthusiast

Entero Labs might be a lower cost option for getting a celiac test without the scope.

I've tested blood negatve, biopsy positve to Celiacs. Always had shockingly low iron and gastro problems of all sorts. Some celiacs never get an official diagnosis-the blood work is questionable and the biopsy never showed enough damage to call it celiacs. You may be in that group. Stick to the gluten-free diet and see how you feel. After a few months, maybe earlier, you shoudl have a noticable reaction to gluten if you are a celiac.

Good luck

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    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
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    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
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