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Trouble With Healing - Could It Be Celiacs?


Energy Seeker

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I have been struggling with my energy levels since I was 17. I've been on iron pills on and off since (I don't care for the constipation and try to get iron from broccoli and other veggies). I have always been very active and am currently playing at a high level of ultimate frisbee and thought the low energy levels was a result of my active lifestyle.

In my fourth year of university I was told I have acid-reflux disease. I've taken nexium twice, (2 month stints) it stopped the esophagus scarring heartburn but still have some serious upset stomachs. I have stopped eating spicy/starchy/sugary foods to control my heartburn.

After a meal I would get so fatigued I could fall asleep sitting in my chair before dessert was even served. At first I thought it was the potatoes because they are so high in starch, so I stopped eating them.

Last summer A friend of mine was diagnosed with celiacs and explained her symptoms so I went and got tested but the blood test came back negative. Regardless of the negative results I decided to cut bread out of my diet completely because of the "explosions in my intenstines" after I ate it.

My parents are irish and dutch, my mom (irish) also has trouble eating wheat.

In august I sprained my ankle and the swelling never subsided. My phsio can't explain the inflammation and constant irritation I'm experiencing because normally in a sprain that would have subsided by now. I am worried that if I have celiacs eating gluten is affecting the healing process for my ankle, is this possible?

I have been on a gluten-free diet for 1 week now and have dropped one dress size, at a time where my physical activity is at an all-time low due to my ankle injury.

Since I've already have a negative blood test I don't want to adapt a gluten-free lifestyle unless I know for sure I have celiacs. I also suspect I have other GI problems which would be easier identified if I knew whether or not I had celiacs.

Any advice?


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gfgypsyqueen Enthusiast

Entero Labs might be a lower cost option for getting a celiac test without the scope.

I've tested blood negatve, biopsy positve to Celiacs. Always had shockingly low iron and gastro problems of all sorts. Some celiacs never get an official diagnosis-the blood work is questionable and the biopsy never showed enough damage to call it celiacs. You may be in that group. Stick to the gluten-free diet and see how you feel. After a few months, maybe earlier, you shoudl have a noticable reaction to gluten if you are a celiac.

Good luck

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    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
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      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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