Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Excema

confusedks

By confusedks
in Related Issues & Disorders

Recommended Posts

confusedks Enthusiast
confusedks
Posted

I was diagnosed with excema not too long ago by my allergist. He told me to put "Carmol" on it religiously for a month and see what happens. I have done that and it's not any better. I am dairy, soy, tree nut and gluten free. What else could be going on?? Does anyone have any ideas...creams, anything. I have tried all kinds of oils, etc. and nothing works.

Kassandra

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lonewolf Collaborator
lonewolf
Posted

Are you (and your allergist) SURE it's excema and not psoriasis? Psoriasis is tough to clear up. I'm actually on antibiotics right now because I couldn't eliminate anything else from my diet and my psoriasis was getting worse, so I broke down and went to the dermatologist. Found out I have a low level strep infection and after a few days on the antibiotics my skin has started to clear up.

AndreaB Contributor
AndreaB
Posted

Kassandra,

Eczema can also be caused by metals. I haven't looked into anything else non food related. I have some problems with eczema as well that haven't cleared up.......I'm thinking mine is tied to metals.

confusedks Enthusiast
confusedks
Posted
  • Author

Lonewolf,

I'm not SURE I guess. He looked at it and told me it's a mild form of excema. It's not red patches, instead my upper left and right arm are broken out in what almost looks like acne, but it's not.

AndreaB,

That is interesting. What do yo mean by "metals"?

Kassandra

JennyC Enthusiast
JennyC
Posted

I put Elidel on my son's eczema spots every other day and it keeps them cleared up. I have had my son allergy tested and on a strict gluten free diet, but it still flares up if I quit the Elidel.

AndreaB Contributor
AndreaB
Posted
Lonewolf,

I'm not SURE I guess. He looked at it and told me it's a mild form of excema. It's not red patches, instead my upper left and right arm are broken out in what almost looks like acne, but it's not.

AndreaB,

That is interesting. What do yo mean by "metals"?

Kassandra

My daughter has bumps all over her arms that look like acne. I was told by a regular doctor that it was eczema as well. My alternative health care provider said it's from lack of fatty acids. She's been put on evening primrose oil and fish oil to help. Haven't seen a difference yet. She also has candida and other metals/toxins.

By metals I mean mercury (from amalgams [your mothers if she has them or yours if you do], the area you live in etc.). My whole family has problems with mercury, the children probably got it from me. My husband was in the military and had upteen million shots as well as being a past seafood eater.

Muscle testing should be able to tell you more about what's going on if you go to a good practitioner with the ability to test a wide range of things.

lonewolf Collaborator
lonewolf
Posted
Lonewolf,

I'm not SURE I guess. He looked at it and told me it's a mild form of excema. It's not red patches, instead my upper left and right arm are broken out in what almost looks like acne, but it's not.

I've had similar sounding acne looking bumps. I was told that I had excema in addition to psoriasis, but the dermatologist last week told me that it was a different form of psoriasis - not excema. It's all so frustrating with skin conditions! I hope you figure something out. You might want to try a dermatologist.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


EBsMom Apprentice
EBsMom
Posted

Kassandra - Did the doc tell you what kind of excema? I've had keratosis pilaris (acne-like bumps on the backs of my upper arms) since I was a teen. It's decreased a lot as I've grown older (44 now.) I never knew what it was called until recently. It's a harmless condition, though it can be bothersome. It sounds like what you described. There was a kind of lotion that was purported to help....can't remember what it was called. If you google "keratosis pilaris, you'll find lots of info. My ds has it pretty badly, and has since he was much younger (he's 12.) He even has it at the edges of his face when his skin gets really dry (dry skin exacerbates it.) I dunno' if this is what you have, but thought I'd throw it out there in case it could help.

Rho

jerseyangel Proficient
jerseyangel
Posted

I had eczema on my eyelid for about 12 years. The doctor gave me steroid creams that worked for a while, but it would always come back. I tried everything.

After going gluten-free, it went away for a time and came back. When I did my elimination diet, I noticed that when I cut out legumes, the eczema went away and has never come back. It's been close to two years now.

Mine was pretty classic--raised, thickened, scaly and horribly itchy.

Guest andie
Guest andie
Posted

What about yeast? It sometimes resembles a pimple like rash but more fine.

Have you googled the candida quiz? I have read here that that is sometimes a problem on special diets.

Hope you're better soon.

Andie

confusedks Enthusiast
confusedks
Posted
  • Author

Thanks for all your replies. I feel like it is food related, but with these things, I don't know what else I could possibly take out of my diet and still be able to eat food!!! If I took out nightshades...I think I'd die of starvation...lol. I could lose a little weight, but I really don't want to limit my diet anymore than I already have.

As far as yeast, I had an herbalist test me for candida, and he said it wasn't a problem for me. I don't know if he was right, but maybe I'll try a candida diet.

I feel like if I go to another doctor with useless information, I'm going to scream!!!! :o So many doctors are so useless these days, if you don't fit RIGHT into their textbook cases, FORGET it!!!

I need to pop over to the nightshade thread.

Kassandra

kabowman Explorer
kabowman
Posted

I have many reactions to differnt lotions and soaps that cause reactions which my doc said are excema. I just finished getting rid of all my Eucerin lotion due to bumps all over my arms and legs. Lotion gone, bumps now gone. Some only cause a reaction on my hands. For some reason though, Eucerin doesn't bother my face or hands so I can still use my face moisturizer.

Ain't life fun?

holiday16 Enthusiast
holiday16
Posted

GLA is wonderful for Eczema. My daughter gets it on her face from certain foods and if we don't treat it right away it begins to weep and bleed and of course it itches. I'm always amazed at how fast the GLA clears it up. You have to make sure that it is from borage oil though since that is a more potent form. I've only used a particular brand so I don't have any experience with ones from the health food store so I don't know how well those will work. What we use has 90 mg GLA and 216 mg linoleic acid. Having her take some as well as rubbing it on seems to work better, but sometimes it's just easier to do it topically only :o)

Also, have you changed laundry soaps? Some people react to those. Personally, I'm very sensitive to just about everything to the point that I have to make it clear to my daughter that if someone is going to borrow her clothes she needs to make it clear that they do not wash them before returning. If they do I have to wash it about 3 times by itself to get rid of the soap because if I wash it with our laundry it gets into everything and makes me sick.

jenngolightly Contributor
jenngolightly
Posted

I use hydrocortisone (brand name Cortaid). I use 2.5% when it's bad, and 1% when it's mild. The 2.5% is prescription, but you can get the 1% over-the-counter. I have an extremely bad case of excema on my face... sometimes my eyelids swell closed, itch and flake, but since I started using hydrocortisone, I've been able to control the symptoms.

I tried prescription steroid excema creams with no success (such as elidel). My dermatologist finally put me on hydrocortisone and it's been fantastic.

Good luck.

GFinMN Apprentice
GFinMN
Posted

I have eczema caused by apples and grapes. It's the malic acid in the apples and the tartaric acid in the grapes. These acids are also found in many sweetened candies and some jellies if you read the ingredients list. I've had this since I was very young. The allergist explained that I'm missing an enzyme to digest these two acids so it comes out my skin in the form of eczema. I also have asthma since age 2 and was diagnosed with celiac in 2006.

Unfortunately, most of the prescription creams I've tried don't help much with the itch, only avoidance of these two acids.

confusedks Enthusiast
confusedks
Posted
  • Author

GFinMN,

WOW!!! That's crazy! My question to you, how long did it take when you took these foods out of your diet, for your excema to clear up? That's really interesting. I think it's food related (then again I think almost everything is food related :lol:) but it gets to the point that I wonder what else in the world I could cut out of my diet? I guess apples and grapes, etc. isn't THAT big of a deal...but those are the only things I'm able to snack on. I look forward to your response.

Kassandra

GFinMN Apprentice
GFinMN
Posted

hi,

when i cut those things out of my diet, it cleared up pretty fast. i think there was a residual where it would sometimes still itch for maybe 1-2 weeks, but then it was completely gone. of course, there are always places where malic/tartaric acid sneaks in though. i had a bad outbreak for a long time and couldn't figure it out - finally i learned that the french roast coffee i had been drinking was flavored with apples.

so now for fruit i stick with strawberries and cantelope and don't have any problem.

yeah, it's frustrating cutting out so many foods!!!

amy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.