Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Make A Bloodtest Easier On The Kids...


goldyjlox

Recommended Posts

goldyjlox Contributor

Iwas referred to a specialist for both my kids and now they have to both have bloodtests and I know that this is going to be super trumatic, especially on my 3.5 year old. We live in a small town and the Lab up here I swear is run by monkeys so I am going to go into the city to a better hospital to have the bloodwork done, probably Childrens Hospital (I live in BC). ANd I was wondering if someone could give me some tips on how I can makes this easier on them. My daughter will be the worse, but my Son is 12 months...and I thought that he was to young to be tested.. is that correct?? What is the proper age?? I will explain why the Specialist wants the bloodtest...besides myself being Celiac

My son has had severe rashes in his diaper area...mostly in the front where the diaper sits and his back, not really in his bum area. they are so bad and he has had them for months, my regualr GP said that it could be caused by either food allergies or Asthma...he was a premmie and he has been sick alot, had Broncolitis and has a inhaler. The rashes look like Ecxema, not your typical diaper rash. Mind you he had one right now, but these rashes cahnge all the time...its so frustrating.

My daughter has classic symptoms, the biggest problem is that she is Constipated. And always has been, She has been a "Holder" since a toddler.....always holds in her poo and she has a a hard time passing it, he has put her on a laxitive. She has become so irritable, she eats like a horse, has rings under her eyes is skinny and never gains weight. I believe that my daughter has Celiac and I am glad that she is getting tested.

I have heard that Emla cream works great, I used it while getting a tatto years ago and never felt a thing...I am a whimp but have gotten enough needles now that i can handle it.

Any suggestions would be great. Thanks.

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Darn210 Enthusiast

I just went through this about 1 1/2 months ago. I posted the same question. Here are the answers that I got . . .

Open Original Shared Link

but hey . . . everybody else, don't let the above thread stop you from posting your opinions!!

goldyjlox Contributor

Thanks. Iwill ask for the Emla cream and the butterfly.

Ridgewalker Contributor
My son has had severe rashes in his diaper area...mostly in the front where the diaper sits and his back, not really in his bum area. they are so bad and he has had them for months, my regualr GP said that it could be caused by either food allergies or Asthma...he was a premmie and he has been sick alot, had Broncolitis and has a inhaler. The rashes look like Ecxema, not your typical diaper rash. Mind you he had one right now, but these rashes cahnge all the time...its so frustrating.

Unfortunately I don't have suggestions about how to make the blood tests easier, BUT...

Have you tried Niastin to clear up the diaper rash? It's a prescription ointment for yeast infection that I made sure I always had on hand for my younger son, who had very bad problems with diaper rash. My doc gave me a prescription for that the first time I brought him in with an open-sore diaper rash.

The other two things I used were Aveeno Bath Powder, with is colloidal oatmeal you put right in the bath water, and Aveeno Diaper Cream. They worked when nothing else would, and he would toddle up and ask me for a "special powder bath" when he was hurting.

People are going to start thinking I work for Aveeno, as much as I recommend those two products, but they were a life-saver for us!

-Sarah

vanillazeis Rookie

The best advice i can give you is for you to relax and act like it's not a big deal. My 3 year old had to get a shot on her third birthday, and her dr. told me to sit down and relax and she would too. he was right. when she had to have her blood taken for the celiac panel i just tried to stay calm and talk to her about how we were almost done, and we would go get ice cream right after this. she was very cooperative. They really feed off of our reactions at this age. good luck!

TrillumHunter Enthusiast

I responded to the other one so you can read that but I have something to offer about the rash. My dd was exactly like that as a baby. No diaper or cream made any difference. She potty trained on her on at 17 months but still wore a pullup at night. It go a little better but finally I bit the bullet and bought an bedwetting alarm and she got dry at night. It only took two nights. This vastly improved her rash but it still came up some. So we finally went scent free on all things that touch her-soaps, laundry stuff, lotions. That made it finally at seven years old go completely away. I wish I had gone to cloth with her but I thought it would be too much work.

As far as her celiac status-she was one point below on bloodwork despite being symptomatic. We gene tested and she carried DQ2 the most common gene. We took her gluten free last week and I can already see a difference.

Good luck!

Nikki'smom Apprentice

I know when my ds was allergy tested they gave him the cream and it worked great. You do have to put it on and wait an hour though so maybe ask for it a few days in advance and put it on before you leave the house this way you aren't at the lab for hours.

Aveeno oatmeal bath is great! Also my ds had major exzema (found out it was our beloved cat that he was allergic to probably causing it)and we tried Bag Balm it worked wonders. I have no clue if it is gluten-free so please read the labels. we used this before we even knew what gluten-free was.

When my DD had to have her blood test sadly we used bribery. She is 7 so it worked a bit. My mom sent her new earing and I let ehr pick where we went for lunch one time and bought her a book the next time. It might work for your 3 yr old...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



goldyjlox Contributor

Thanks for your responses. I have tried Nystatin and 3 other prescriptions and none of them worked, the rash is not typical diaper rash, it is definately ecxema but nothing clears it up. He had a diaper rash right now and I am using hyrodcortizone and another cream and that rash is getting better but not the other one.

I am definately going to have to try some bribery on my 3 year old, she is the only one that I am worried about, I am also going to stash a treat in my purse. I called the doctor about the Emla cream and it is not a prescription so I will go and get some but I am thinking about calling the lab first and asking about using it, so I know for sure that I can.

Thanks. again. We will most likely be going within the week. the drive is a bit long...but it will be better going down there.

Jess

cruelshoes Enthusiast

I have had the bloodwork done on all 3 of my kids. They were 8, 6 and 1 when they had the bloodwork done. It only took a few minutes, and it was harder on me than it was on them. Maybe you could get your doctor to order you some bloodwork at the same time. You could have your cholesterol checked or something. Let your DD watch you getting the blood draw. As long as you don't scream or anything, that may make her feel more at ease. ;) When we all got our flu shots last year, I went first and let the kids watch so they would know what to expect.

I bribed my kids with ice cream! They were not complaining after that.

Nathan's mom Apprentice

My son had bloodwork done 3 times in the last several months. I thought the first time would be awful, but then realized it wasn't so bad because he didn't really know what was happening until the needle went in. Two out of the three times the technician got it on the first try very quickly. Only once did they have to "dig". I was praying very hard at that point!

It was certainly MUCH harder on me than my son. He would comment later that it was scary, but he is fine now. I think it was easiest when he was sitting on Daddy's lap with me at the side, rather than laying down with 4 adults pinning down limbs like the first time.

The bloodwork is so important but it is awful to go through. Just give lots of treats and TLC after.

Take care!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,555
    • Most Online (within 30 mins)
      7,748

    JMF
    Newest Member
    JMF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.