Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Not Quite As Bad (but Still Annoying!)


bigbelly

Recommended Posts

bigbelly Newbie

Hello everyone -

I have been reading posts here for about a week now and have learned a ton! Now I wanted to get everyone's opinion/comments on my situation. About 3 years ago I had a 2 week bout with horrible cramps and bad diarrhea. I lost about 10 pounds in 2 weeks and basically didn't move from the couch. I am convinced that I haven't been the same since. For the past year or so, I have been majorly bloated. I ignored it for a long time, thinking it was just bad eating habits/period time/etc. A few weeks ago, I had terrible stomachache for over 24hrs after dinner. Since then I have been paying more attention to my stomach and I am starting to track my symptoms. They aren't as bad as many people on this forum have, but they are enough to cause me distress. The only time I don't feel very bloated is right when I wake up. As soon as I eat or drink anything, my stomach grows (we're talking inches here). I get bloated even when I don't eat a lot of gluten (eggs, salad...). I eat a salad most days for lunch and look pregnant within 20 minutes. Usually after a decent sized meal I have stomach discomfort (tolerable, but annoying) but I don't have any problems with diarrhea or constipation (although my normal bm are only every 3-5 days).

I went to my doctor and he told me to drink Metamucil and eat fiber cereal for 2 weeks and call him if that didn't help. It made no difference, except make me go to the bathroom more. Do you think this could be Celiac or wheat intolerance even though it isn't as extreme and my worst symptom is the bloating?

THANK YOU for your input - I have to wait until 10/30 for my GI appt and want some advice before then!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

You are just used to your symptoms, not that they are not there...

You have constipation. Anyone that does not "go" for 3 to 5 days is constipated - I know that used to be me. My doc boyfriend said I had a lazy colon...

just get the tests for celiac & you will probably have to also be dairy free at first. & you could have a couple of other food intolerances.

Denial is a lovely thing, I have been seeing a lot of it lately in my friends...

Better to get this taken care of before your body comes up with a symptom you cannot ignore - like cancer, MS, RA, damage to the brain - a whole bunch of stuff could be going on & you do not know it - it is not just a swollen belly - there are things causing the swollen belly that is not good - not good at all...

glad to hear you were reading the posts. Stick around & let us know what you decide to do

bigbelly Newbie

Thanks so much for your advice - It is hard to know sometimes if you are overreacting and being a hypochondriac or if there really is a problem. I know I read many times on the boards not to try going glucose free before any testing....my 1st appt with the GI doctor is 10/30. Would it hurt to try going glucose free for a week to see if anything improves (mostly I am curious) or should I wait it out to see what he says?

Thanks again!!

gfpaperdoll Rookie

Well, if you are going to spend the money on the tests - I would be eating all the goodies that i could think of - for the last time !!!!!!!! & yes, you need to keep eating the gluten until after the blood draw. be sure to print out the names of that blood tests - that are listed on here somewhere. Do not assume that your doc will run the right ones - unless you specifically hand him the list & tell him what you want run.

Good luck - yea, isn't it amazing how the docs and society teach us to doubt ourselves!!!

Keep us posted...

wishing you the best -

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.