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Confused About Diet


bklyn

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bklyn Enthusiast

I haven't received an answer from anyone on this - New at this - I'm not sure I'm posting this correctly.

I was diagnosed in Sept.04 by biopsy and blood work. I have no gastro symptons (low iron was the tip off). I have done a lot of research, belong to a support goup and I have many food lists. I felt I was following the diet as best as possible, but after reading many of the topics on this forum, Im afraid that I may be getting gluten inadvertently, i.e, Frito Lay chips, Tums, etc. Should I only be eating "gluten free products" or can I trust mainstream items just by reading the label. Help.


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darlindeb25 Collaborator
;) i know it is very hard to know what is ok and what isnt---yes, mainstream products are safe as long as we read the labels--as far as i know, tums are safe--they are on the celiac.com list of gluten-free items---some frito lay chips are ok, some arent---read, read, read and if in doubt :unsure: --dont eat the product--sometimes it does seem that gluten is hiding :ph34r: --if you are really worried, then stick with the thngs you know are safe--fresh veggies, fresh fruits, fresh meats--i have been at this for over 3 years now and i still make mistakes :( sometimes i feel that maybe i need to take an adult with me to read labels cause i am only 49 :P ----when you do doubt something you can always ask in here--there will always be an answer for you :D deb

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    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
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      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
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