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What Happens To You When You Are Glutened?


tbradley93

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tbradley93 Apprentice

Just curious what other peoples' symptoms are.

Thanks


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tbradley93 Apprentice
Just curious what other peoples' symptoms are.

Thanks

Ive only been gluten free for about 4 weeks. On halloween, I had an accident with a kit-kat bar...one bite and the next day I had terriable cramping. It felt like my intestines were tied in a knot. My eye got puffy, eczma flared and my house allergies were bad too. I'm just now starting to feel better again.
Emily Elizabeth Enthusiast
Just curious what other peoples' symptoms are.

Thanks

Good post! Here are my symptoms:

1. Distended Stomach/Bloating/Gurgling (first sign)

2. D (and multiple times to the bathroom)

3. Agitated

4. Blurry stinging eyes and sensitivity to light

5. Mouth Sores

6. Foot Cramping

7. Gas

8. Fatigue/Foggy Head

9. Nasal Drip (forgot to add until someone mentioned it later)

Here are some other's posts on this topic if you're interested:

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Daughter-of-TheLight Apprentice

I'm definately not a poster Celiac.

Mood swings

Tiredness

Trouble focusing

Stomach burning if I don't eat

That's basically it. o.O I'm not the usual Celiac.

woolwhippet Explorer

Extreme fatigue, followed by stomach cramps, followed by the big "d", followed later by an itchy butt rash. It's lovely. Really.

pnltbox27 Contributor

terrible gas which my coworkers love....lol and lately ive been getting bad headaches that i never noticed before and of course D

goldyjlox Contributor

Bloating, gas, sometimes D (not usually a symptom for me), stomache aches. I was never one to get real sick so these are my symptoms. So I am assuming I am doing good on the diet as I dont get these anymore, well everyone has a bit if gas...but us, a little is an understatement!!!

Good post.


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cyberprof Enthusiast
Good post! Here are my symptoms:

1. Distended Stomach/Bloating/Gurgling (first sign)

2. D (and multiple times to the bathroom)

3. Agitated

4. Blurry stinging eyes and sensitivity to light

5. Mouth Sores

6. Foot Cramping

7. Gas

8. Fatigue/Foggy Head

9. Nasal Drip (forgot to add until someone mentioned it later)

Here are some other's posts on this topic if you're interested:

Open Original Shared Link

My symptoms are almost identical to yours, except the agitation. My mood is depressed and lethargic.

DM11545 Newbie

*I get a sore throat almost immediately ... but I don't think many have this problem ... and it will last for days.

*Phlegm/Runny nose

*Incredibly distended belly, it used to look like I was going to explode

*Depressed/agitated/bad mood/no memory

*"D"

*Gas

*Achy/swollen joints

*Foggy headed

oceangirl Collaborator

My symptoms are almost exactly as Emily Elizabeth without the foot cramps. I also have alternating D and C and horrible joint pain (particularly my left hip bone). Also, big abdominal pain to go along with the horrible bloat and distention of my abdomen. Wish I could cut out my intestines! My stomach itself doesn't hurt; it's once things hit my intestines that the trouble begins.

lisa

Centa Newbie

I almost wonder if it would help to print out this and the July 2007 thread and take them to a doctor, if anyone needs to get her/his doctor convinced to consider their celiac-type symptoms. The two threads DO prove what the medical literature says, that symptoms from celiac disease vary from person to person, within a range.

The list from before I quit eating gluten.

--Extreme fatigue, way, way beyond excessively tired

--Felt like I had the flu 24/7

--Slept but I didn't get rest

--BAD case of brain fog

--Muscle spasms, especially foot spasms at night

--A lot of muscle, not joint pain; the fibromyalgia-like localized muscle pains that move around

--RAVENOUS

--Bloating, but minor compared to what I read for others

--Stools matched the usual celiac description, but not much diarrhea

--Mouth sores

--Blisters on my elbows

Nowadays my "geiger counters" that I've been glutened are

--Those blisters on my elbows. They come out *immediately*, itch like crazy and take a long time to go away.

--Immediate stool changes

--I feel bad: aches are back, I'm just plain sick

Minor milk intolerance, so get rumbly tum and bloating from that.

JNBunnie1 Community Regular

Oh, boy. First week I have no brain, and can't remember words right or if green means go on the stoplight. Also Am very dizzy, and nauseous, and have super-celiac-poopy. Then I'm lactose intolerant for a week, and I mean OW. Then I get the DH rash really bad, depending on how much gluten I ingested, which lasts for over two weeks. I'm sure I missed something, I'm still a little woozy from giving blood yesterday, but that's the gist of it.

babygirl1234 Rookie

i end up being sick to my stomach and feel like bringing up whatever i just ate and this is the new syp that i had to the past year or so, really bad stomach cramps like when you get the time of the month but wrose

Betty in Texas Newbie

Well I had thanksgiving lunch with my grandkids at there school well there was just green beans and turkey and sweet potatoes and I small piece of fried chicken nuggets in my potatoes . I did'nt want to make a seen so I took it out and ate the sweet potatoes. I have had a stomach since that night throwing up and big D my poor insides hurt so bad and I got sore all over. I had it now for 48 hr can't eat anything barely hold down water and sprite. I have check with everybody else I was with and around to see If they have gotten sick made food poisen but nobody got sick. So I guess I was glutened big time and a stupid mistake.

AnneM Apprentice

I hardly ever get glutened, but my first and last time I had bought some egg salad from the grocery store deli, reading all the ingrediants it appeared safe. 20 minutes after I ate it I had severe bloating, sharp pains in my stomach and horrible gas, it lasted about 3 hours.

sunflowersun Newbie

Mine are different each time.

-sometimes nothing(not usual)

-acid reflux, burping and heartburn

-D, constipation or floating stools

-pain attacks below and betwen the ribs(almost as bad as labor) with fever and bloating. This was my most common symptom for years. I would be up all night crying and vomit from the pain. I thought it was an ulcer. Now only happens if I am glutened more than once in a short time so very rare. Dr.'s thought is was gallbladder.

-mouth ulcers

-depression

-palpitations

-swollen gums

-at first no appetite, later starving

Guest CD_Surviver

i am a little weird when it comes to my celiac

i get:

constipation(sometimes)

gas(almost everytime)

brain fog(almost everytime)

studdering(sometimes)

stomach and intgestine cramps(almost everytime)

and sometimes i have no reaction what so ever

there are proabaly others but i cant think of them right now

Lauren

Offthegrid Explorer

First sign is "brain fog" -- feeling like I'm floating, not with it, extremely tired

Second sign is typically tingling/numbness in my arms and legs at night

Finally some trips to the bathroom

Gas and bloating

Same things if I eat soy or casein, but I don't typically get the tingling/numbness with those.

Edited to add: severe insomnia. I had even had a sleep study for this. Just could never fall asleep and felt tired ALL THE TIME. Sometimes I'd literally cry I felt so tired. Also fueled severe depression. This has gone away 95% of the time.

Will-Deez Newbie

I Glutened myself at a football game today...crushed 4 hot dogs (no buns).

Within 1 hour I:

-Fell asleep at the game (NFL game, very loud, couldn't keep my eyes open)

-Crazy bloated...like my belly is gonna explode. extremely uncomfortable.

-Brain-fog, my head kinda throbs...not painful, just feels really weird.

-Total body discomfort...moaning and groaning.

It is the worst...the scary part was falling asleep at the game...came out of nowhere. Thanksgiving is gonna be tricky. But I'll get through it and be careful.

-Will

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    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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