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What Happens To You When You Are Glutened?


tbradley93

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tbradley93 Apprentice

Just curious what other peoples' symptoms are.

Thanks


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tbradley93 Apprentice
Just curious what other peoples' symptoms are.

Thanks

Ive only been gluten free for about 4 weeks. On halloween, I had an accident with a kit-kat bar...one bite and the next day I had terriable cramping. It felt like my intestines were tied in a knot. My eye got puffy, eczma flared and my house allergies were bad too. I'm just now starting to feel better again.
Emily Elizabeth Enthusiast
Just curious what other peoples' symptoms are.

Thanks

Good post! Here are my symptoms:

1. Distended Stomach/Bloating/Gurgling (first sign)

2. D (and multiple times to the bathroom)

3. Agitated

4. Blurry stinging eyes and sensitivity to light

5. Mouth Sores

6. Foot Cramping

7. Gas

8. Fatigue/Foggy Head

9. Nasal Drip (forgot to add until someone mentioned it later)

Here are some other's posts on this topic if you're interested:

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Daughter-of-TheLight Apprentice

I'm definately not a poster Celiac.

Mood swings

Tiredness

Trouble focusing

Stomach burning if I don't eat

That's basically it. o.O I'm not the usual Celiac.

woolwhippet Explorer

Extreme fatigue, followed by stomach cramps, followed by the big "d", followed later by an itchy butt rash. It's lovely. Really.

pnltbox27 Contributor

terrible gas which my coworkers love....lol and lately ive been getting bad headaches that i never noticed before and of course D

goldyjlox Contributor

Bloating, gas, sometimes D (not usually a symptom for me), stomache aches. I was never one to get real sick so these are my symptoms. So I am assuming I am doing good on the diet as I dont get these anymore, well everyone has a bit if gas...but us, a little is an understatement!!!

Good post.


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cyberprof Enthusiast
Good post! Here are my symptoms:

1. Distended Stomach/Bloating/Gurgling (first sign)

2. D (and multiple times to the bathroom)

3. Agitated

4. Blurry stinging eyes and sensitivity to light

5. Mouth Sores

6. Foot Cramping

7. Gas

8. Fatigue/Foggy Head

9. Nasal Drip (forgot to add until someone mentioned it later)

Here are some other's posts on this topic if you're interested:

Open Original Shared Link

My symptoms are almost identical to yours, except the agitation. My mood is depressed and lethargic.

DM11545 Newbie

*I get a sore throat almost immediately ... but I don't think many have this problem ... and it will last for days.

*Phlegm/Runny nose

*Incredibly distended belly, it used to look like I was going to explode

*Depressed/agitated/bad mood/no memory

*"D"

*Gas

*Achy/swollen joints

*Foggy headed

oceangirl Collaborator

My symptoms are almost exactly as Emily Elizabeth without the foot cramps. I also have alternating D and C and horrible joint pain (particularly my left hip bone). Also, big abdominal pain to go along with the horrible bloat and distention of my abdomen. Wish I could cut out my intestines! My stomach itself doesn't hurt; it's once things hit my intestines that the trouble begins.

lisa

Centa Newbie

I almost wonder if it would help to print out this and the July 2007 thread and take them to a doctor, if anyone needs to get her/his doctor convinced to consider their celiac-type symptoms. The two threads DO prove what the medical literature says, that symptoms from celiac disease vary from person to person, within a range.

The list from before I quit eating gluten.

--Extreme fatigue, way, way beyond excessively tired

--Felt like I had the flu 24/7

--Slept but I didn't get rest

--BAD case of brain fog

--Muscle spasms, especially foot spasms at night

--A lot of muscle, not joint pain; the fibromyalgia-like localized muscle pains that move around

--RAVENOUS

--Bloating, but minor compared to what I read for others

--Stools matched the usual celiac description, but not much diarrhea

--Mouth sores

--Blisters on my elbows

Nowadays my "geiger counters" that I've been glutened are

--Those blisters on my elbows. They come out *immediately*, itch like crazy and take a long time to go away.

--Immediate stool changes

--I feel bad: aches are back, I'm just plain sick

Minor milk intolerance, so get rumbly tum and bloating from that.

JNBunnie1 Community Regular

Oh, boy. First week I have no brain, and can't remember words right or if green means go on the stoplight. Also Am very dizzy, and nauseous, and have super-celiac-poopy. Then I'm lactose intolerant for a week, and I mean OW. Then I get the DH rash really bad, depending on how much gluten I ingested, which lasts for over two weeks. I'm sure I missed something, I'm still a little woozy from giving blood yesterday, but that's the gist of it.

babygirl1234 Rookie

i end up being sick to my stomach and feel like bringing up whatever i just ate and this is the new syp that i had to the past year or so, really bad stomach cramps like when you get the time of the month but wrose

Betty in Texas Newbie

Well I had thanksgiving lunch with my grandkids at there school well there was just green beans and turkey and sweet potatoes and I small piece of fried chicken nuggets in my potatoes . I did'nt want to make a seen so I took it out and ate the sweet potatoes. I have had a stomach since that night throwing up and big D my poor insides hurt so bad and I got sore all over. I had it now for 48 hr can't eat anything barely hold down water and sprite. I have check with everybody else I was with and around to see If they have gotten sick made food poisen but nobody got sick. So I guess I was glutened big time and a stupid mistake.

AnneM Apprentice

I hardly ever get glutened, but my first and last time I had bought some egg salad from the grocery store deli, reading all the ingrediants it appeared safe. 20 minutes after I ate it I had severe bloating, sharp pains in my stomach and horrible gas, it lasted about 3 hours.

sunflowersun Newbie

Mine are different each time.

-sometimes nothing(not usual)

-acid reflux, burping and heartburn

-D, constipation or floating stools

-pain attacks below and betwen the ribs(almost as bad as labor) with fever and bloating. This was my most common symptom for years. I would be up all night crying and vomit from the pain. I thought it was an ulcer. Now only happens if I am glutened more than once in a short time so very rare. Dr.'s thought is was gallbladder.

-mouth ulcers

-depression

-palpitations

-swollen gums

-at first no appetite, later starving

Guest CD_Surviver

i am a little weird when it comes to my celiac

i get:

constipation(sometimes)

gas(almost everytime)

brain fog(almost everytime)

studdering(sometimes)

stomach and intgestine cramps(almost everytime)

and sometimes i have no reaction what so ever

there are proabaly others but i cant think of them right now

Lauren

Offthegrid Explorer

First sign is "brain fog" -- feeling like I'm floating, not with it, extremely tired

Second sign is typically tingling/numbness in my arms and legs at night

Finally some trips to the bathroom

Gas and bloating

Same things if I eat soy or casein, but I don't typically get the tingling/numbness with those.

Edited to add: severe insomnia. I had even had a sleep study for this. Just could never fall asleep and felt tired ALL THE TIME. Sometimes I'd literally cry I felt so tired. Also fueled severe depression. This has gone away 95% of the time.

Will-Deez Newbie

I Glutened myself at a football game today...crushed 4 hot dogs (no buns).

Within 1 hour I:

-Fell asleep at the game (NFL game, very loud, couldn't keep my eyes open)

-Crazy bloated...like my belly is gonna explode. extremely uncomfortable.

-Brain-fog, my head kinda throbs...not painful, just feels really weird.

-Total body discomfort...moaning and groaning.

It is the worst...the scary part was falling asleep at the game...came out of nowhere. Thanksgiving is gonna be tricky. But I'll get through it and be careful.

-Will

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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