Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Worry Too Much.


dandelionmom

Recommended Posts

dandelionmom Enthusiast

I couldn't sleep last night because I was worried about how Julia would keep healthy when she goes off to college. That is 15 years away! What is wrong with me?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



buffettbride Enthusiast

Oh my gosh! So do I! Especially about college since I know my daughter wants to live out of state to go to college.

She's only 10, :o so that's only 8 MORE YEARS!!! :rolleyes:

Thankfully, she'd like to go to college in NY so I feel better about that being a gluten-free-friendly place than just about anywhere from what I've heard.

shan Contributor

You know what my fears are? That her social life will be a nothing, and that no one will like her (she is not yet 3!) but then i think that everyone has to worry about something! I also worry about who will want to marry or date someone who cant even be in a house where there is flour!

hathor Contributor

Rest assured, whatever you are worried about when your kids are little turns out not to be what the problems are when they actually DO go off to college :lol:

There is growing awareness of celiac. Even now, college students can go to the food service and work with them to get acceptable food. The latter have been dealing with allergies, diabetes, etc., for years. This is just one more thing. I think when gluten intolerant college students run into trouble it is when they don't talk to food service and just guess what might be safe.

Any child avoiding gluten for years will learn how to do so, what to look for, how to talk to restaurants, etc.

If someone is shallow enough that s/he wouldn't want to be with someone who can't eat a particular food, I say good riddance!

buffettbride Enthusiast
If someone is shallow enough that s/he wouldn't want to be with someone who can't eat a particular food, I say good riddance!

We assure our daughter of this CONSTANTLY and are trying to set a good example of what someone who cares for her would be like.

-Her home gets to be gluten free and a complete "safe" zone

-Her daddy even only drinks gluten-free beer now so he can smooch our daughter with no worries

We tell her that any boy who is worth anything won't hesitate to make those concessions to keep her safe.

Even at age 10, a boy in class who digs her is always showing off his gluten-free snack bar (his family is very organic and health conscious) to try and impress her. :D It is absolutely adorable.

kbtoyssni Contributor

If it makes you feel any better, I'm 25 and my social life is much better now that I'm gluten-free than it was before. By the time your children reach college, they'll be pros at the diet. They'll take everything you're teaching them now about the diet and how to deal with it with them when they go to college. You've got years to prepare them so I'm sure they'll be just fine.

buffettbride Enthusiast
If it makes you feel any better, I'm 25 and my social life is much better now that I'm gluten-free than it was before. By the time your children reach college, they'll be pros at the diet. They'll take everything you're teaching them now about the diet and how to deal with it with them when they go to college. You've got years to prepare them so I'm sure they'll be just fine.

If I could bottle your outlook and attitude and sell it to the masses, I'd be a very wealthy woman.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debmom Newbie

I can relate. My daughter was 15 when diagnosed and is 16 now. So college is just two years away. But she is SOOO good about her diet and has found so many things to eat that she enjoys. Occasionally she has a mini-meltdown, but overall she feels so much better that the diet isn't an issue.

I will still send her to school/ college with homemade goodies for all occasions. I make cakes and brownies and freeze them for parties and places she will encounter non-gluten free food that she used to enjoy. So far the kids seem to like my gluten free brownies better than the regular, so the only problem is that I'm baking them all the time.

Her girlfriends had a surprise party for her birthday last week and they were so cute. they shopped for all sorts of gluten free food and even worried about latex in balloons (which I assured them were OK) They seem so relieved to know why she was so sick and seem to cherish her friendship even more now that she is able to be back at school with them. So stop worrying. You will all adjust. I spent almost a year with sleepless nights, but rarely so anymore.

Kids are resilient. And if their friends are really friends, they will hlep your daughter cope with being gluten free.

dandelionmom Enthusiast

Thanks everyone! It is nice to know that I'm not the only one with these worries and the encouraging stories are so good to hear! My husband is fabulous and so supportive but he tends to laugh at me a little when I get going with my crazy worries. :)

darlindeb25 Collaborator

I had to laugh at this thread, not because you worry, but because just last week I told someone that "worry" is my middle name. I worry that my kids have celiac and aren't in the frame of mind to do anything about it for now! I worry that my grandkids will have it and their parents won't realize it! I worry that I recognize the symptoms in friends and can't make them realize the seriousness of the disease. I also worry about the weather, my family, my friends--you name it, I worry.

I do not know how to change. Yet, the way I am is who I am and if I change, then who will I be. Now I will worry about that. :o

kbtoyssni Contributor
If I could bottle your outlook and attitude and sell it to the masses, I'd be a very wealthy woman.

Can I get a percentage of the profits? :P I do have a very positive attitude. Life's too short to spend it being negative and bitter about things I have no control over.

laurelfla Enthusiast

I can so relate to this thread! I am a big worrier, too, and I worry about that and try to change it all the time! ;) No luck yet...

I worry about when to introduce cereals to my baby and how to do that, and I am not planning to have children for at least three more years! I think developing Celiac or taking care of someone who has opens up an entire world of potential worry we couldn't even have imagined beforehand!

But to throw in my two cents, after diagnosis a little over two years ago, I met the man of my dreams who, once he found out what I had, investigated on his own to learn about the disease, still won't eat pizza in front of me, and readily accepted living in a completely gluten free house in December after we get married and eating gluten free at home for the rest of his life! He's more supportive than I ever would have dared ask for. So not to worry! These guys are out there! :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,827
    • Most Online (within 30 mins)
      7,748

    Rebecca Hurst
    Newest Member
    Rebecca Hurst
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.