Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Members In Need.....ongoing Support Thread

AndreaB

By AndreaB
in Introduce Yourself / Share Stuff

Recommended Posts

AndreaB Contributor
AndreaB
Posted

This thread is designed to be a place where those that need prayers, good thoughts, vibes, energy for situations they need support for to come.

A centralized thread will help keep those members needs in one place for others to see.

For those who subscribe to this thread......if it's not active at times, please make sure to re-add it to your subscriptions after 30 days. That way no one will be left without the support they need.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Thanks Andrea :)

nutralady2001 Newbie
nutralady2001
Posted

Thank you this is an excellent idea xx

Judyin Philly Enthusiast
Judyin Philly
Posted

thanks Andrea

Great idea. Is this a new forum topic so we can go there to ck or just a thread?

judy

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Thank you, Andrea!!

blueeyedmanda Community Regular
blueeyedmanda
Posted

Thanks Andrea :):)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

So here is my first "in need" post on this thread:

My son's friend Noah, age 8 1/2, is STILL in terrible trouble.

He has been in a medically induced coma since Labor Day because of encephalitis-caused seizures. The latest cat scans show extensive brain damage. They are still unable to bring him out of the coma without further seizures.

I am not sure what to ask for here--maybe visualizing his brain tissue recovering against all odds? Seizures ending? His opening his eyes, smiling, and hugging his parents?

Prayers?

Our family--and our whole community--is heartbroken. And that's gotta be nothing compared to what his family is going through.

Thanks, everybody.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted
  • Author

Judy,

It's a thread devoted to those in need of support.

Alison,

I'm sorry to hear about Noah still not doing well. I'll let my family know about him too.

Judyin Philly Enthusiast
Judyin Philly
Posted

Alison.....Noah has been in my nightly prayers since I learned about him and his family.

They will continue as for those for you....who cared enough to bring them to our attention.

judy

Cheri A Contributor
Cheri A
Posted

I was wondering how Noah was doing... I'm :( to read your post. He and his family, the medical staff, and your family continue to be in my prayers also.

Canadian Karen Community Regular
Canadian Karen
Posted

Allison, I too was wondering about Noah. Sad to hear things have not taken a turn for the better....

Continuing to pray....

Hugs

Karen

Ursa Major Collaborator
Ursa Major
Posted

Alison, I will pray for Noah right now.

I could sure use prayer. Things are deteriorating here at home, it is getting unbearable for Susie and me.

Her vice principal in charge of her at school is a complete jerk, and her and my husband are getting to be great buddies, which is very upsetting to Susie and me. They seem to be doing everything they can to make life miserable for Susie, who doesn't deserve that, she is a sweet kid.

I am glad that she is going to move to live with her older sister and her family in February (our second-oldest, ten years older than Susie), for her sake. But her being gone will make things harder for me.

Anyway, I won't go into more detail than that. But I am at the end of my rope.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

Fiddle faddle- Noah and his family are in my prayers, I hope things turn around for him soon.

Ursa- Im so sorry you are having family problems, I will be praying for you also and your daughter Susie.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Alison, I will pray for Noah right now.

I could sure use prayer. Things are deteriorating here at home, it is getting unbearable for Susie and me.

Her vice principal in charge of her at school is a complete jerk, and her and my husband are getting to be great buddies, which is very upsetting to Susie and me. They seem to be doing everything they can to make life miserable for Susie, who doesn't deserve that, she is a sweet kid.

I am glad that she is going to move to live with her older sister and her family in February (our second-oldest, ten years older than Susie), for her sake. But her being gone will make things harder for me.

Anyway, I won't go into more detail than that. But I am at the end of my rope.

Sorry things are so frustrating, Ursa.

I don't suppose it would help if Susie were to smile and pretend to agree with your husband and the vice principal? Just until February? Sort of as a survival thing...

Anyway, prayers sent!

jerseyangel Proficient
jerseyangel
Posted

Alison,

I will keep Noah and his family in my prayers. :( We need to keep that positive energy flowing his way.

Ursa,

Gosh, I'm so sorry about you and Susie. You are in my thoughts, too :)

confused Community Regular
confused
Posted

I will of course pray for noah, i feel so sad for everyone involved. Please keep us posted on him and the whole family.

Ursa, im so sorry things are that bad. Is there a way you can just leave your hubby and you and susie go live with your oldest dtr.

paula

confused Community Regular
confused
Posted

I am also in need for thoughts for 2 reasons.

1. that this family can come into agreement on mnay issues and that i have the strngbth to keep supporting my husband, this week has been very difficult on us both.

2. my uncle(the one that had cancer a few months back) got bit by an brown recluse, he had it drained but it gbot p%$#@# again and posion puss was coming out of his ears. They are doing an mri on him today, they dotn feel they can operate cause the poison has spread to far. I am so worried for him.

paula

Judyin Philly Enthusiast
Judyin Philly
Posted

Allison, Paula, Ursa.........such saddness.

Your all in my prayers.

judy

nutralady2001 Newbie
nutralady2001
Posted
Allison, Paula, Ursa.........such saddness.

Your all in my prayers.

judy

You are all in my prayers as well xx :wub:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.