Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When

FootballFanatic

Recommended Posts

FootballFanatic Contributor
FootballFanatic
Posted

I first started having symptoms October 06, and I got diagnosed in July. It's December. Another month gone and I still have not gone a whole day without feeling terrible. It's just getting worse and worse. I'm living off xanax and pepto. My grades and my social life have gone to hell because I don't want to leave my house, but I don't want to be in my house either.

I just want to break out of my skin. I don't want to die but I don't want to live this life.

What's wrong, There is NO way I'm getting gluten. I have replaced every single thing I cook with, I only eat 3 different meals that are all gluten free. I wash my hands like gluten is a poison on everything I touch. I moved out of the kitchen and do everything in my room - except when i use the stove and I cover my pot that I'm cooking with.

When am I going to get better?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Maybe you are not eating a balanced diet with your 3 meals. List what you are eating and we can suggest some healthy/balanced meal choices.

AndreaB Contributor
AndreaB
Posted

Have you looked into other food intolerances? Soy and dairy are often culprits....especially at the beginning if you've had damage to the instestines.

If you continue to have fewer things you can eat then you'd really need to look into the reason behind it.....which could be one of many things. For my family it's metals, for many others it's lyme, parasites, viruses. There is almost always something behind numerous intolerances, the tricky part is finding what.

If it's just a few foods then you could always reintroduce them at a later time.

If you've not had a good day since you started the diet......absolutely no improvement, then I would suspect something else along with the gluten intolerance/celiac that is keeping you down.

happygirl Collaborator
happygirl
Posted

Are you under a doctor's care? I would guess that you are having "beyond gluten" problems based on what you are describing.

sickchick Community Regular
sickchick
Posted

I am going Soy & Dairy free as of today....

I feel for ya FF...

Breathe and keep positive. You can get control it just might take a few hits or misses

I can't take Pepto, it has no effect on me at all...nor Immodium

:P

loraleena Contributor
loraleena
Posted

I would seriously look into candida overgrowth. Try taking probiotics. Find a good digestive enzyme to take before meals. Maybe get checked for small bowel bacteria as well. And ditto the above suggestions about other intolerances. Xanax and pepto will only worsen your condition in the long run. They are bandaids. Pepto also constipates you as well.

Offthegrid Explorer
Offthegrid
Posted

Didn't somebody just post somewhere that Xanas is not gluten-free?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Yenni Enthusiast
Yenni
Posted

Hang in there. Like others have mentioned, maybe you have other food intolerances as well.

It took me a long time to start feeling better. Months before I noticed some changes actually. It came on gradually and one day it hit me I wasn't as tired any more. Then later I realized other symptoms were better or less too.

Now, over a year after I got my diagnosis I feel pretty good. Kinda little like my old self.

It can take time to heal and some feel better sooner than others. Just do as best as you can and you will get better. Make sure to read and learn about the diet. Learn from mistakes and such.

It will get better. I know how hard it can be.

Carafate has helped me lots when I feel sick. I do get cross-contaminated now and then (thank Gd not as often as it used to be) and the Carafate always helps me.

ENF Enthusiast
ENF
Posted
Didn't somebody just post somewhere that Xanas is not gluten-free?

Just a reminder:

Xanax contains gluten, as does the generic version of it by Greenstone, a subsidiary of Pfizer.

GlutenWrangler Contributor
GlutenWrangler
Posted

Well there you go!

scotty Explorer
scotty
Posted

i don't take meds---eexcept prilosec--wondering if i should stop that---all others gave me trouble, even probiotics eventually bothered me---oh but i don't want the flaming gut roaring up my esophagus again......

JNBunnie1 Community Regular
JNBunnie1
Posted
Just a reminder:

Xanax contains gluten, as does the generic version of it by Greenstone, a subsidiary of Pfizer.

Just wanted to make sure you got this info, Football Fanatic. How uncool is that? Hope you can just stop taking it.....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,822
    • Most Online (within 30 mins)
      7,748
    CQkage
    Newest Member
    CQkage
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.