Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When

FootballFanatic

Recommended Posts

FootballFanatic Contributor
FootballFanatic
Posted

I first started having symptoms October 06, and I got diagnosed in July. It's December. Another month gone and I still have not gone a whole day without feeling terrible. It's just getting worse and worse. I'm living off xanax and pepto. My grades and my social life have gone to hell because I don't want to leave my house, but I don't want to be in my house either.

I just want to break out of my skin. I don't want to die but I don't want to live this life.

What's wrong, There is NO way I'm getting gluten. I have replaced every single thing I cook with, I only eat 3 different meals that are all gluten free. I wash my hands like gluten is a poison on everything I touch. I moved out of the kitchen and do everything in my room - except when i use the stove and I cover my pot that I'm cooking with.

When am I going to get better?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Maybe you are not eating a balanced diet with your 3 meals. List what you are eating and we can suggest some healthy/balanced meal choices.

AndreaB Contributor
AndreaB
Posted

Have you looked into other food intolerances? Soy and dairy are often culprits....especially at the beginning if you've had damage to the instestines.

If you continue to have fewer things you can eat then you'd really need to look into the reason behind it.....which could be one of many things. For my family it's metals, for many others it's lyme, parasites, viruses. There is almost always something behind numerous intolerances, the tricky part is finding what.

If it's just a few foods then you could always reintroduce them at a later time.

If you've not had a good day since you started the diet......absolutely no improvement, then I would suspect something else along with the gluten intolerance/celiac that is keeping you down.

happygirl Collaborator
happygirl
Posted

Are you under a doctor's care? I would guess that you are having "beyond gluten" problems based on what you are describing.

sickchick Community Regular
sickchick
Posted

I am going Soy & Dairy free as of today....

I feel for ya FF...

Breathe and keep positive. You can get control it just might take a few hits or misses

I can't take Pepto, it has no effect on me at all...nor Immodium

:P

loraleena Contributor
loraleena
Posted

I would seriously look into candida overgrowth. Try taking probiotics. Find a good digestive enzyme to take before meals. Maybe get checked for small bowel bacteria as well. And ditto the above suggestions about other intolerances. Xanax and pepto will only worsen your condition in the long run. They are bandaids. Pepto also constipates you as well.

Offthegrid Explorer
Offthegrid
Posted

Didn't somebody just post somewhere that Xanas is not gluten-free?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Yenni Enthusiast
Yenni
Posted

Hang in there. Like others have mentioned, maybe you have other food intolerances as well.

It took me a long time to start feeling better. Months before I noticed some changes actually. It came on gradually and one day it hit me I wasn't as tired any more. Then later I realized other symptoms were better or less too.

Now, over a year after I got my diagnosis I feel pretty good. Kinda little like my old self.

It can take time to heal and some feel better sooner than others. Just do as best as you can and you will get better. Make sure to read and learn about the diet. Learn from mistakes and such.

It will get better. I know how hard it can be.

Carafate has helped me lots when I feel sick. I do get cross-contaminated now and then (thank Gd not as often as it used to be) and the Carafate always helps me.

ENF Enthusiast
ENF
Posted
Didn't somebody just post somewhere that Xanas is not gluten-free?

Just a reminder:

Xanax contains gluten, as does the generic version of it by Greenstone, a subsidiary of Pfizer.

GlutenWrangler Contributor
GlutenWrangler
Posted

Well there you go!

scotty Explorer
scotty
Posted

i don't take meds---eexcept prilosec--wondering if i should stop that---all others gave me trouble, even probiotics eventually bothered me---oh but i don't want the flaming gut roaring up my esophagus again......

JNBunnie1 Community Regular
JNBunnie1
Posted
Just a reminder:

Xanax contains gluten, as does the generic version of it by Greenstone, a subsidiary of Pfizer.

Just wanted to make sure you got this info, Football Fanatic. How uncool is that? Hope you can just stop taking it.....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,018
    • Most Online (within 30 mins)
      7,748
    Laney71
    Newest Member
    Laney71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.