Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

In The Army And Over Seas With Celiac/dh. Help


haleysue

Recommended Posts

haleysue Newbie

I recieved this red rash on my elbow during my first deployment to iraq 05-06 now after using creams im covered HEAD TO TOE with these spots that hurts and burns. ITCHES BADLY. So, the doc at the hospital back inthe states looked at me and said that i had psoriasis. That was the day before i left to came back ti iraq. So when i got hree it got worse. So we all believe it is. WEll, fighting for my right ot get the meds i need they finaly order embrel for me. It came down to them sending me home just for them to get it over here. So im waiting for the shots to get here. I think this will be the first for embrel to be over here in the country (iraq). My mom has been sick for a while. Come to find out she was diagnosed with celiac spury. So, she told me to get tested. So a few days ago I went to the docs to let them know. He said they will have to send me home to get tesed. That means back to th estates. I haven heard anything about it so I went back to thedocs today. They told me to come back in the morning. So, my mom and dad (civilian doc) have been looking up on it and said it causes Dermatoligst heperfomitist, something like that, aka DH. IT describes all the signds and looks of what I have. Anyways, come to think of it the docs are treating for psoriasis and I havent even been medicaly diagnosed with it. No blood work or biops. HHHHMMMMM. So my civilian doc and parents tell me NOT to take the shot embrel. My mom doesnt want me to be a ginny pig. Also all we eat here isnt gluten free stuff. So, im headed to the doc in a few and I just dont know how to pushthis matter with them. I think they should have already tested me. I went to see doc for that reason and i got no response exsept for the fact they would have to send me home for the test. Well, I need actions not just words. SO. is my family and I making a big deal over nothing or should I get tested for DH and Celiac before I start any meds for my so called psoriasis? My parents read in the Gluten free bible that it is commonly mistaken for psoriasis , exema and other various skin dieases.

so what should I do? Just let them do what they want to do or stand up and push for some actions emediately? Please help. Its hard to handle thison my own overseas and my parents are trying and just dont know what to do. SO EVERYONES opinion will help me stand up and fight for whats right. It will helpmy family too. Thanks. SPC CARROLL, HALEY S. With HHC, 1 STB, 1BCT 101st ABN DIV stationed out of FT. Campbell K.Y. GOD BLESS


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



truthsearcher Rookie

Don't be a guinea pig

Don't take the shots.

Sounds like a clear case of DH.

Stand up for your rights.

And Thank You for your service

ravenwoodglass Mentor

You are in a real tough spot. Do not let them give you something like embrel, it is not the proper med and it will mess with your immune system. That is if you have a choice. I realize if your command orders you to take it you have to. If they have to medicate you the drug you need is most likely dapsone, (but then of course they would have to recognize it as celiac, something they may be reluctant to do) although this will not stop the other immune mediated problems that go with celiac it will heal the sores.

The military is not real good at looking for celiac, they missed it in me 30 years ago and they missed it in my son in 2001. He was not diagnosed until he had gotten an early discharge for health problems that turned out to be celiac. My son is a neuropredominent celiac and his not being diagnosed almost cost not only his life but the lives of others when they started him on hoards of drugs. Fortunately he was hospitalized when they gave him the one the made him psychotic.

You say your Dad is a doctor, I would recommend that he get as much info on celiac as he can and get it to your command fast. Your base chaplin should be able to help with this if needed Make sure he also includes the neurotoxic effects, if he googles gluten and neurological effects lots will come up. If your condition excaberates while over there, very likely with the stress you are under now, it could hit you in unexpected ways. Your command might actually listen if they have the knowledge that this could impair you in ways that would be dangerous not only to you but to your unit.

Good luck and thank you for your service. Once you are diagnosed you will be discharged, being discharged hit my DS very hard, he felt that he failed somehow. Please realize you have no control over this.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    3. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    5. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,358
    • Most Online (within 30 mins)
      7,748

    Grandmax6
    Newest Member
    Grandmax6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.