Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

In The Army And Over Seas With Celiac/dh. Help


haleysue

Recommended Posts

haleysue Newbie

I recieved this red rash on my elbow during my first deployment to iraq 05-06 now after using creams im covered HEAD TO TOE with these spots that hurts and burns. ITCHES BADLY. So, the doc at the hospital back inthe states looked at me and said that i had psoriasis. That was the day before i left to came back ti iraq. So when i got hree it got worse. So we all believe it is. WEll, fighting for my right ot get the meds i need they finaly order embrel for me. It came down to them sending me home just for them to get it over here. So im waiting for the shots to get here. I think this will be the first for embrel to be over here in the country (iraq). My mom has been sick for a while. Come to find out she was diagnosed with celiac spury. So, she told me to get tested. So a few days ago I went to the docs to let them know. He said they will have to send me home to get tesed. That means back to th estates. I haven heard anything about it so I went back to thedocs today. They told me to come back in the morning. So, my mom and dad (civilian doc) have been looking up on it and said it causes Dermatoligst heperfomitist, something like that, aka DH. IT describes all the signds and looks of what I have. Anyways, come to think of it the docs are treating for psoriasis and I havent even been medicaly diagnosed with it. No blood work or biops. HHHHMMMMM. So my civilian doc and parents tell me NOT to take the shot embrel. My mom doesnt want me to be a ginny pig. Also all we eat here isnt gluten free stuff. So, im headed to the doc in a few and I just dont know how to pushthis matter with them. I think they should have already tested me. I went to see doc for that reason and i got no response exsept for the fact they would have to send me home for the test. Well, I need actions not just words. SO. is my family and I making a big deal over nothing or should I get tested for DH and Celiac before I start any meds for my so called psoriasis? My parents read in the Gluten free bible that it is commonly mistaken for psoriasis , exema and other various skin dieases.

so what should I do? Just let them do what they want to do or stand up and push for some actions emediately? Please help. Its hard to handle thison my own overseas and my parents are trying and just dont know what to do. SO EVERYONES opinion will help me stand up and fight for whats right. It will helpmy family too. Thanks. SPC CARROLL, HALEY S. With HHC, 1 STB, 1BCT 101st ABN DIV stationed out of FT. Campbell K.Y. GOD BLESS


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



truthsearcher Rookie

Don't be a guinea pig

Don't take the shots.

Sounds like a clear case of DH.

Stand up for your rights.

And Thank You for your service

ravenwoodglass Mentor

You are in a real tough spot. Do not let them give you something like embrel, it is not the proper med and it will mess with your immune system. That is if you have a choice. I realize if your command orders you to take it you have to. If they have to medicate you the drug you need is most likely dapsone, (but then of course they would have to recognize it as celiac, something they may be reluctant to do) although this will not stop the other immune mediated problems that go with celiac it will heal the sores.

The military is not real good at looking for celiac, they missed it in me 30 years ago and they missed it in my son in 2001. He was not diagnosed until he had gotten an early discharge for health problems that turned out to be celiac. My son is a neuropredominent celiac and his not being diagnosed almost cost not only his life but the lives of others when they started him on hoards of drugs. Fortunately he was hospitalized when they gave him the one the made him psychotic.

You say your Dad is a doctor, I would recommend that he get as much info on celiac as he can and get it to your command fast. Your base chaplin should be able to help with this if needed Make sure he also includes the neurotoxic effects, if he googles gluten and neurological effects lots will come up. If your condition excaberates while over there, very likely with the stress you are under now, it could hit you in unexpected ways. Your command might actually listen if they have the knowledge that this could impair you in ways that would be dangerous not only to you but to your unit.

Good luck and thank you for your service. Once you are diagnosed you will be discharged, being discharged hit my DS very hard, he felt that he failed somehow. Please realize you have no control over this.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Scott Adams's article in Origins of Celiac Disease
      8

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    2. - knitty kitty replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Reverse Osmosis (RO) Water

    3. - Yaya replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Great Value Veggies cannot be trusted.

    4. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Reverse Osmosis (RO) Water

    5. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,446
    • Most Online (within 30 mins)
      7,748

    DH Larry
    Newest Member
    DH Larry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I've heard RO water is bad, too.   Distilled water has all the minerals distilled out of it, so it will pull minerals out of your bones, too.  I only use distilled water to fill up my clothes iron so it won't get mineral deposits inside and quit working. I drink mineral or spring water.  
    • Yaya
      Scott.  Thank you for your reply. I'm still having symptoms, but significantly better.  I will go back to batch cooking and freezing vegetables.  I have had success with Pict Sweet frozen, single item (not mixed) vegetables.  My Kroger carries very little Pict Sweet variety. Regards, Yaya
    • Known1
      I am hesitant to post this as I have seen many people here recommending RO water.  With that said, I want to share my experience and how RO water now impacts me.  Three or four years ago a local store installed a RO water refill station.  I had been buying gallons of distilled and spring water prior to that.  I switched over to using the RO water refill station saving money by brining in my own clean empty gallon jugs.  Every 6-months I would replace the jugs by buying new gallons of distilled water.  This RO water is the only water I would drink while at home.  Two huge glasses every morning before work and two more after work.  I would also use the RO water to make coffee and hot coco. This past December, prior to my celiac diagnosis, my gut was making more noise than anything I had ever experienced.  Seriously, it was crazy, almost like fire works going off in my stomach.  I happened to pick up some distilled water for my 6-month jug rotation.  Literally, as soon as I started drinking the distilled water my stomach settled a great deal.  I could honestly feel the difference after the first glass of water.  I thought that maybe the RO water from the store's refill station was contaminated with some sort of cleaning agent.  I swore to myself I would never drink from that RO refill station again.  Instead I went back to buying distilled along with gallon jugs of spring water.  No issues with either of those as far as an upset stomach is concerned.  Cost, well that's a different story all together. After being diagnosed marsh 3c, I went shopping at Aldi's for the first time in my life.  I noticed they also sell water by the gallon.  Over the course of the last few weeks, I have purchased a total of 6-gallons of their water.  (Thankfully they were out on two of my visits.)  After having my stomach starting to make noises similar to mid-December again, it dawned on me, maybe its the Aldi water?  Initially I had contributed my bubble gut to some sort of gluten exposure or cross contamination.  Even though everything I have put into my stomach is naturally gluten-free or has been labeled gluten-free / certified gluten-free.  I had assumed that the Aldi water was spring water.  Come to find out, that was a bad assumption.  Looking close at the label it says purified by RO or distillation (or something like that). Again, I switched to different water.  Just like last December, the non-RO water instantly calmed my stomach and even felt better going down the hatch.  This was earlier today by the way.  Prior to creating this post, I did a few searches via Uncle Google.  I bumped into a thread on Reddit (where I am not a member) that has multiple people complaining of GI issues related to RO water.  So my initial thoughts on a cleaning agent in the refill station RO water were likely not correct.  Unfortunately, it seems the RO water itself causing me problems.  I am not sure if we are allowed to post links to other sites and hopefully I will not get into trouble for doing so.  I did try printing the Reddit thread to a PDF file.  Unfortunately, the file is 2MB in size, which is well over the 500KB file attachment limit here on this amazing forum.  Again, hopefully this is ok.  🤞  Here is the Reddit thread. This may not be a popular opinion here, but personally, I will not willingly drink another glass of RO water for the remainder of my life.  Who knows, maybe drinking RO water for the past several years is part of what activated my celiac?  No proof, but just a thought.  Come to find out RO water is well known to leech minerals from your body.  With people like us often lacking minerals to begin with, RO water does not seem like a wise choice.  As the Reddit thread mentions, there are RO water filtration systems that will inject minerals back into the water.  However, those systems are likely not being used at the grocery store refill stations nor by the bottling companies producing RO water for sale at your local store. Please do not shoot the messenger as I am just sharing my personal experience and letting others know that most RO water will leech minerals from your body. God bless and stay well, Known1
    • Known1
      My neighbor's mom was diagnosed with celiac disease 16 years ago.  She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals.  This evening she brought over 2 slices of Papa Murphy's gluten-free pizza.  It looks to be topped with chicken and spinach.  I asked, "aren't you concerned with cross contamination"?  She said no and apparently eats it on a somewhat regular basis. I found an old article here along with another thread pertaining to Papa Murphy's gluten-free pizza.  The article is quite old, so I do not think it holds much weight nowadays.  The thread I found was also a bit dated, but certainly more recent and relevant.  The information in the thread I found was a bit inconclusive.  Some said they trust Papa Murphy's gluten-free pizza and others were a big no way.  One person even took time to train their local franchise on how to ensure the pizza remains gluten-free without cross contamination. Anyway, being recently diagnosed as marsh 3c, I am currently working on week 3 or 4 in my new gluten-free journey.  I do not want to be rude and toss the pizza out, but I also do not want to have a reaction.  Since she has celiac and obviously ate much or at least some of the pizza, I am leaning towards eating the two slices for lunch tomorrow.  As this thread's title states, what would you do?  Would you eat it or toss it out?  I suppose I could also just give it back to my neighbor to polish off. I look forward to reading your thoughts. Thanks, Known1
    • Scott Adams
      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.