Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated


~alex~

Recommended Posts

~alex~ Explorer

I was diagnosed with Celiac about 11 months ago and in the process I lost almost 20 pounds (which I didn't need to lose) and I think a lot of what I lost was muscle mass. I was quite active before the Celiac symptoms started. I certainly wasn't a marathon runner or anything but a couple of 5 k runs a week and played in soccer and volleyball rec leagues.

I'm just about back to normal healthwise and have been trying to get back into shape but it is not going well. I've gained back about half of what I lost but not much of that has been muscle. I just don't know where to start to get back into shape. I went indoor rock climbing with friends on the weekend and I used to be able to climb it fairly easily but I couldn't even make it half way up the wall because I was so winded and my muscles were shaking and cramping.

Has anyone had any success with a personal trainer? I have been thinking of that route because I don't know where I should start or what I should do. Sports were always a constant in my life and I don't remember ever having to get back into shape like this. If anyone has any ideas or things that worked for them, that would be terrific. I am getting so frustrated with myself!

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Alex, I think a personal trainer is a wonderful idea. I'd look for someone with experience ... ask around for referrals. Physical therapy might be another idea if you've really gotten weak .... perhaps it would be covered by insurance?

You'll get it back. Just keep active! It will take some time.

woolwhippet Explorer

It's so frustrating to backslide in fitness! I am on week four of regaining strength and it's going pretty well. I had a personal trainer/physiotherapist/ex national gymnast get me started with back to basics strength routine that I can do in my home every day for ten-15 minutes coupled with cardio (walking) 3x per week. I think having a trainer start you off is a great idea but make sure they understand that you are recovering from an illness and know how to guide you slowly through the process.

I am self directed now--just needed guidance to get started. You sound the same and you also sound very determined so I am sure you will have great success.

Remember to be kind to yourslef too! You have been sick. It took a long time to lose your fitness but I think you will be surprised at how quickly it will come back.

hathor Contributor

I've had great success with the P90X program from Beachbody. Once I finished those 90 days, my strength, aerobic endurance and flexibility were all markedly better. I also added muscle. (For instance, one and a half inches to my biceps -- not bad for a menopausal woman!)

If that is a bit much to start out with (there are tests to see if one is ready for this program), there is Power 90.

Of course, there are other videos, exercise classes, and personal trainers which could work. I'm just reporting what really worked for me.

celiac-mommy Collaborator

All I can say is- David Swenson Ashtanga Yoga, series 1. I was in pretty good shape before--didn't think it would change that much--OMG!!!! It has completely transformed my body and uses muscles I didn't know I had. You need no equipment, you can follow thru the practice for as much time as you have available, I usually can fit in an hour 3xweek. It's great because you can only move as far as your body can move, but you notice each time you do it, you can move a little more than the time before. I had NO upper body strength before and now I can lift my whole body up off the floor!! (I've only been doing it for ~ 2 months!) It's not like regular Hatha yoga, it's more of a power yoga and it kicks my butt!!

~alex~ Explorer

Thanks for all of the ideas and encouragement. I will definitely look into all of your suggestions of what has worked for you.

Physical therapy does sound like something I might need to do. My doc mentioned it at one time due to the muscle atrophy I developed from months spent in bed/on the couch. At the time I was resistant to the notion that I might need physical therapy but I may need to revisit that idea. I always like to think that I should be able to do things on my own. Illness is certainly a good lesson in humility!

  • 3 weeks later...
zkat Apprentice

Alex,

I was where you are last January. I am also an avid runner and play soccer. I spent the majority of my 20's in bed when I wasn't working. Seriously out of shape and ill. After going gluten free, I felt much better and realized I truly missed those days of sports. I started with light running a couple of days a week and used the elipitical trainer other days (Coolrunning.com has a good couch to 5K plan and Runner's World also has a good beginner's plan). The most important thing I did for my health and muscle atrophy was lifting weights, as heavy as I could manage, which was very much at the time, but I built up. If you can find a personal trainer that is knowledgable, then go pay for a couple of sessions to get you back in the swing of things.

The freedom of being able to push yourself so hard is exhilerating! I missed it so much, now I don't take it for granted.

1 year gluten free and I am training for a 1/2 marathon and play on 2 soccer leagues-at the age of 32!

It sounds like you have a back ground, just need a starting point. Do you prefer full body work-outs or individual muscle group exercises. (Like Back and Biceps one day, Chest and Tricepts different day)

Kat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Offthegrid Explorer

I used this program when I was really overweight and out of shape. I started walking (at 19 minutes/mile :o ), ended up placing 2nd female and 3rd overall in a competitive walk 5K in just a few months. I then progressed to jogging. But I've been taking some time off over the holidays and since we moved. :P

Open Original Shared Link

It sounds like to build strength you really need to do some weight-lifting. Why not use a personal trainer to set up your routine, then do it on your own and check up with the traininer every 4-6 weeks? That could save you some money! Physical therapy is a good idea if insurance will cover, too.

tarnalberry Community Regular
Thanks for all of the ideas and encouragement. I will definitely look into all of your suggestions of what has worked for you.

Physical therapy does sound like something I might need to do. My doc mentioned it at one time due to the muscle atrophy I developed from months spent in bed/on the couch. At the time I was resistant to the notion that I might need physical therapy but I may need to revisit that idea. I always like to think that I should be able to do things on my own. Illness is certainly a good lesson in humility!

Think of physical therapy not as the inability to do something on your own, but rather the opportunity to learn how to reach *your* specific goals in the healthiest way for *you*. It's such a good personalized learning opportunity, that it's worth giving it a chance. Of course, there's no one who can give us the patience we need for the process... that's hard! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.