Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh Lordy Soy Too!?


i-miss-cookie-dough

Recommended Posts

i-miss-cookie-dough Contributor

i have been

off the gluten for over 8 weeks.

but my symptoms haven't gotten better

so i took the forum advice and went off dairy

3 weeks ago -

(aside from one pc of dark choc a day - could that hurt?)

i have replaced my

daily yogurt and milk with

soy versions or almond milk.

but my nausea and fatigue

persist and my tummy feels

gurgly and gassy

when i eat the yogurt or drink

even a 1/2 cup of soy milk!

but it also feels weird when i drink even

a 1/2 cup of almond milk.

hmmm...

so i guess i have to give up soy too??

AND the almond milk?

and does that mean ALL SOY?

or are there certain things

that are especially bad?

or, could i keep eating it, since its not

DAMAGING, like gluten...

just makes me gurgle.

and with dairy...

does that mean ALL DAIRY?

like even butter and chocolate?

is there a test i could take?

trying to get to FEELING BETTER!

: )

grr... <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

you can test threw entrolab for casein, soy eggs and yeast. I had to give up soy and casein to feel better, but my tounge tingles when i eat soy, so i think that is an allergy.

paula

Michi8 Contributor

Yes, if you are eliminating dairy, it means ALL dairy. You can get dark chocolate that has no dairy. You can also get "milk" chocolate made with rice milk. I just bought a bar the other day made by Terra Nostra that was 100% gluten-free and CF. I was really impressed with the taste...the kids loved it too!

Regarding soy, you may want to try eliminating it as well. And, again, ALL soy. Almond Breeze has some soy in it BTW.

Good luck! Hope you're able to sort it all out soon. :)

Michelle

darlindeb25 Collaborator

I never had to give up dairy, but have had to give up nearly everything else. After gluten, soy was the next to go. I hads been gluten-free for 2 yrs when I had to give up dairy, up until then, I seemed to be doing ok. I had wanted to lose some weight and decided to try the Eat Right For Your Blood Type Diet. I am a Type A blood tpye and he tells Type A's to stay away from dairy, so I grudgingly gave up dairy and switched to soy. I honestly liked 8th Continent Vanilla SoyMilk, and I was using soy flour, tofu--lots of products. Then, it hit me, constipation, terrible rashes--the knowledge that soy was a big problem was slow for me to realize, but when it finally hit me, I gladly went back to my dairy and things went back to normal. Everytime I got some soy, more symptoms--so, no soy in my life now. After that, I learned to watch for symptoms. Corn later became a problem, then nightshades--tomatoes, almost instantly make me ill, within 1/2 hour I get diarrhea from them and I have tried them every way I can because I love them. Mushrooms I have not been able to eat for years. Potatoes are a thing of my past, except for potato chips, strange, but I can still eat them. No cruciferous veggies. All grains are gone now and all but glutens make me break out in a bright red, raw rash on my tummy, most constipate me. When my tummy has a little rash, I know I have gotten something, somewhere, sometimes I never know what it was from. Usually I figure it probably is from the citric acid in a product. I do the best I can, that's all I can do and I hope nothing else is taken away from me.

hathor Contributor

Sometimes folks who have problems with soy can handle soy oil. Many can handle soy lecithin. But there are those who can't handle soy in any form. Other than by trial I don't know how you would tell.

Rikki Tikki Explorer

I miss cookie dough:

I saw your name and had just made chocolate chip cookies yesterday, anyway the recipe was out of Analise Roberts gluten-free Baking Classics, and in the book she talked about making cookie dough for ice cream, so when I saw your name it made me smile and I thought I should tell you that you can still have cookie dough!

I use the same recipes that I used to make just substitute the flour with Authentic Foods Multi-Blend flour and so far it has worked the best...

i-miss-cookie-dough Contributor

awww...you are so sweet!

i will have to check out that book!

would love to make it

for ice cream as

that was my FAVORITE!! : )

guess i will conquer that

once i am back on the dairy! : )

thanks again.

so sweet!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,683
    • Most Online (within 30 mins)
      7,748

    Jean Tonkin
    Newest Member
    Jean Tonkin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.