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Reintroduce Gluten


christtheking

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christtheking Contributor

This from York Labs:


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pixiegirl Enthusiast

I'm a total newbie here and new to gluten-free as well so I probably shouldn't be answering this, but if you have celiac its not an allergy so that information wouldn't apply, however if you only have a wheat allergy then perhaps it might apply to your situation.

susan

darlindeb25 Collaborator
<_< and on the other hand----some times an allergic reaction to something is mild the 1st time and keeps getting worse after each reaction--my son was allergic to pediamyacin--the 1st reaction was mild hives--the 2nd reaction months later was more pronounced hives and the 3rd time and last--he borke out in huge hives that covered his body and i refused to give him that medication ever again--as for us--we all know that we may go months without any gluten and when we do get some---we are sick and not just for a day--sometimes over a week or longer----i dont put any stock in that report--they would have to prove that to me on someone else--not me ;) deb
kabowman Explorer

I have seen this statement and have wondered the same thing. All my tests for celiac disease came back normal/negative. My allergy tests have shown these are not "true" allergies so I look at them as intolerances. My docs have all said that I will never be able to eat these foods again. Wow that I have figured this all out and feel better.

Right now, I am not hoping for the adding back in to the diet but do plan to try some of the foods after a full year. I still have occasional problems - all due to cross contamination while out or with other people that come into our house and are not as careful as we are.

Also, my reactions have gotten more severe, not less so that leads me to believe the docs just might be right.

-Kate

tarnalberry Community Regular

gluten intolerance is not an allergy - the same rules do not apply.

kvogt Rookie

I believe this is generally true for IgG mediated allergies, which is what York tests you for. Gluten sensitivity is predominately IgA mediated. There is also the genetics issue. If you try this, your anatomy may well tell you loud and clear how successful you are. If you are asymptomatic, you won't get the message and may cause yourself a lot of trouble.

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      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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