Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think Im Cured !


jimbo006

Recommended Posts

jimbo006 Newbie

having spent 6 years as a confirmed coeliac , i always hoped and believed there was a cure for me

having tried homeapathy [waste of time and money] i was given a number of a kaneiseilogist [weird to explain what they do - have faith]

after my first visit i was told that i had candida - a yeast infection of the intestine

The symtoms are very similar to coeliacs

had to cut sugar out of my diet completetly [best i could]. Suddenly my taste buds changed - I actually tasted food

together with a sugar fast i was prescribed some pills [PERMATROL]

now ,after 4 months i can get away with flour -although i can do smelly farts

when the farting starts i ease off the flour

my stalls (sh*t] are nice and healthy now as opposed to runny

HOPE THIS HELPS AT LEAST ONE MORE UNNESSARY SUFFERER !


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I am not sure you are cured. If you google coeliac it says the only treatment is a life long gluten-free diet. If you are saying that after some foul smelling farts you need to ease up on the flour....that is your bodies way of saying it cannot process the flour. You are probably doing damage to your body and just are not getting the worst symptoms yet...

Anyone else have any idea?

nikki-uk Enthusiast

You say you are a 'confirmed' coeliac.

Do you mean by biopsy????

There really is NO other cure for a coeliac other than a gluten-free diet.

To say anything different is dangerous.

nutralady2001 Newbie
You say you are a 'confirmed' coeliac.

Do you mean by biopsy????

There really is NO other cure for a coeliac other than a gluten-free diet.

To say anything different is dangerous.

Yes I was thinking the same, did you have confirmed Celiac from biopsy/blood tests?

blueeyedmanda Community Regular

It is dangerous as Nikki stated, not only for your body but for other members on this board who are newly and think that it is ok after a few months gluten free to go off the diet....

Silly Yak Pete Rookie

This is no known cure yet for Celiacs Disease except to the adhearance of a strict gluten free diet. Even though she may be feeling "normal" damage is taken place in her intestines.

jerseyangel Proficient

There is no treatment currently for Celiac Disease except the gluten-free diet.

A Kinesiologist can possibly alert you to food intolerances and allergies, but can not treat or cure Celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DingoGirl Enthusiast

Um........yeah.......no cure for Celiac and your smelly farts would indicate the response to the poison in your intestine (although surely smelly farts CAN occur for other reasons.....but I will say that I rarely pass gas any more........).

Every single kineseologist or naturopath of which I've heard diagnoses every single patient with candida, followed by the taking of their very expensive prescribed antedotes (sold at their own offices)...and if you in fact DO have candida.....the only "cure" is an anti-candida diet, which takes months to see results, from what I"ve read here.

While your intestines and response to gluten will change - after nearly two years gluten-free myself I can eat somethign and not have a horrible reaction - you will never be cured of celiac. You will damage your gut and eventually it will catch up with you.......

Oh, bother, wonder if you'll even come back to read these responses, since you think you are cured?

:huh:

mamaw Community Regular

I agree, no cure only diet.... I do understand that you could have both a heavy yeast load & celiacs..... but it is a long process to rid yeast in the body & keep it at bay. I believe that also requires are fairly strict diet as well.

I personally think you are in a sinking ship by this way of thinking. sorry....

I truly wish for all of us to find a cure but at present we know the answer to that hope ......

mamaw

nikki-uk Enthusiast
Oh, bother, wonder if you'll even come back to read these responses, since you think you are cured?

Oh yeah :lol:

lkatrych Newbie

If you feel better, more power to you!

mbzoltan Newbie

I am glad you feel better, but you should be concerned with potential future problems, and I agree that people who are newly diagnosed may be careless because of the hope of a cure.

blueeyedmanda Community Regular
Oh, bother, wonder if you'll even come back to read these responses, since you think you are cured?

:huh:

I am guessing you were right on this Susie.

Threads like this never end up good. It is a topic that will get people worked up since it is very incorrect.

elye Community Regular

..Looks like you scared Jimbo006 off, guys...

tom Contributor
having spent 6 years as a confirmed coeliac , i always hoped and believed there was a cure for me

having tried homeapathy [waste of time and money] i was given a number of a kaneiseilogist [weird to explain what they do - have faith]

after my first visit i was told that i had candida - a yeast infection of the intestine

The symtoms are very similar to coeliacs

had to cut sugar out of my diet completetly [best i could]. Suddenly my taste buds changed - I actually tasted food

together with a sugar fast i was prescribed some pills [insert snake-oil product name here]

now , . ..

HOPE THIS HELPS AT LEAST ONE MORE UNNESSARY SUFFERER !

Hoo-boy . . .. .. .where to start?

Are we sure this isn't just some shill for an alleged candida pill?

Discounting that, doesn't Jimbo's saying

The symtoms are very similar to coeliacs

lead to the scenario where the actual cause of the gluten-related symptoms always were due to candida alone. Somehow celiac was stumbled upon, and was wrongly attributed to be the cause, but it was finally finding & treating the candida that made a difference.

What 6yr celiac doesn't already know that this genetic auto-immune disorder doesn't go away?

If we don't hear back before long, it may be safe to assume this single post by a new acct is nothing but a sales pitch created by a mercenary who won't be seen again.

elye Community Regular

Yes...upon sober second thought, you just may be right, Tom...

nutralady2001 Newbie
Hoo-boy . . .. .. .where to start?

Are we sure this isn't just some shill for an alleged candida pill?

They were my exact thoughts too, a spam-and-run poster

blueeyedmanda Community Regular

I actually thought the same thing yesterday but didn't want to mention it since I figured, benefit of the doubt....looks I am not alone in my thoughts though.

loco-ladi Contributor

Well, this was a welcome post for me believe it or not, I just returned from work and logged in and see this post...... haven't laughed so hard in a couple day and I needed a good laugh... cured.... sheeshhhhhh and it only took 4 months amazing......

Cured my butt they are cured...

I can envision them now in a few weeks sitting on the "john" and wondering if they are cured, lol

I vote for the diet, its a cure no pill can claim!

ravenwoodglass Mentor

Just in case this was an actual post from someone and not a attempt to sell a drug I thought I should mention......

In the young folks who have been diagnosed there is often what is referred to as a honeymoon period after being gluten free for a while, I am meaning years here not months. The person may believe what the doctors used to believe, that folks could grow out of celiac. This was very common thinking in this country until not to long ago. We now know that does not happen. However the presentation of symptoms can change and the person might very well think this for the first few months or even a couple years after they add gluten back in. This can lead folks to think that they were either misdiagnosed or that they are 'cured'. Of course newer reseach has shown that the auto immune destruction will continue and eventually they will be fully symptomatic again. My DD had 2 symptom free years after deciding her diagnosis was wrong in the first place. Only for the last couple of months have symptoms been popping up again.

If the original poster was a person who was looking to help, inform or looking for information the automatic assumption that they are posting just to sell could be quite distressing. They could very well have been doing just that and at this point with some of the responses the person has gotten I hope that is the case. If I was a sincere poster and recieved replies like some of the ones this one recieved I dont think I would be back either.

CMCM Rising Star

If you actually think you are cured, then even after 6 years you don't understand the basic facts of celiac disease.

If you have a celiac gene, you have a genetic predisposition to celiac disease, which can be triggered and develop IF YOU EAT GLUTEN. This predisposition never goes away. Eat gluten and you can develop celiac disease, which is officially diagnosed by observation of flattened, damaged villi via an endoscopy. If you stop eating/don't eat gluten, the villi damage will repair itself and go away, and will stay away as long as you don't eat more gluten.

A vague analogy to this goes thus: Imagine a person who always gets a bright red facial rash from eating strawberries. If they don't eat the strawberries, they don't get the rash. If they eat the strawberries, they get the rash. When the rash isn't present, they don't have the rash but the predisposition to it is always there. Of course, a rash is a lot less serious than celiac disease, but the analogy is similar.

The predisposition to celiac disease CANNOT be cured because it is genetically based. If you have the gene, you have the predisposition.

This is your life and your health, you should become more knowlegeable about it and take it seriously.

jimbo006 Newbie

IM BACK

and im not some sales guru - just a poor plumber trying to shed a little hope around the world

more developments - turns out my cousin has been diagnosed with candida as well (completely out of the blue with a different practitioner)

spent a day over chrimbo with a bottle of rum (made from sugar)

AND WAS ILL -VERY RUNNY!!!!

that has since passed and last night went to pizze hut - no farts -nothing

would leave my number if i could be sure no weirdo would ring

all the best - will check on feedback in a few days

Hoo-boy . . .. .. .where to start?

Are we sure this isn't just some shill for an alleged candida pill?

Discounting that, doesn't Jimbo's saying

lead to the scenario where the actual cause of the gluten-related symptoms always were due to candida alone. Somehow celiac was stumbled upon, and was wrongly attributed to be the cause, but it was finally finding & treating the candida that made a difference.

What 6yr celiac doesn't already know that this genetic auto-immune disorder doesn't go away?

If we don't hear back before long, it may be safe to assume this single post by a new acct is nothing but a sales pitch created by a mercenary who won't be seen again.

confused Community Regular

So how were u diagnosed with celiac, was it threw blood, endoscope or enterolab or some other form of testing. Were u 100 percent sure u had celaic or did u have gluten intolerance brought on by candida, but just never diagnosed with candida til recently?

paula

loraleena Contributor

Jimbo. If you are gluten intolerant than your candida cure could be possible. But, if you have confirmed celiac than you are not cured, but probably silently hurting yourself. You can do damage without symptoms.

jimbo006 Newbie
So how were u diagnosed with celiac, was it threw blood, endoscope or enterolab or some other form of testing. Were u 100 percent sure u had celaic or did u have gluten intolerance brought on by candida, but just never diagnosed with candida til recently?

paula

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,875
    • Most Online (within 30 mins)
      7,748

    Jen J.
    Newest Member
    Jen J.
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.