Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introduce Myself

dawnw007

Recommended Posts

dawnw007 Newbie
dawnw007
Posted

has any idea who I am...and all seem so caring here, I'd like to let you all know, I've been diagnosed Celiac through the blood test, the gastro, who was in anyway to do a bile duct snip, didn't bother to do the exam I asked for...so I just tried the diet, only to find that when I was exposed, those old joint pains and swellings, and constipation returned ten fold!

A year later, I had my daughter tested, from 6 up she took Ballet classes, and had such an extended tummy, thin hair, nails...I asked the HMO Doc. for a blood test. Negative...she decided to try the Gluten Free Diet and found her intestinal system to work much better, and the bloating of her stomach to go down significantly.

So we both have been on a Gluten Free diet for years now. I was just reading about co-enzyme B vitimans..I've taken my B100's for years, gluten-free just by chance (for so long I'd see that on the bottle and wonder) I think I may switch myself and get my daughter, who I've recently been working with her to take B complex..she has anxiety problems and such that I thought it may help..from what I've read here, all of you have confirmed my concerns...Thank You...Wish I'd known how to use a live stream before, I'd been here years ago...been going it alone for so long. Thanks To All for All your Wonderful Information!!! Dawnw007

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

Hi Dawn

Welcome to the board :)

happygirl Collaborator
happygirl
Posted

Welcome to the board, Dawn!

Judyin Philly Enthusiast
Judyin Philly
Posted

Let me add my welcome

Judy

confused Community Regular
confused
Posted

welcome dawn

paula

Jodi Mills Apprentice
Jodi Mills
Posted

Hi Dawn,

I am new to the board as well...

Jodi

missy'smom Collaborator
missy'smom
Posted

Welcome! :) This is a good place to come to.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tazzie Newbie
Tazzie
Posted

HI Dawn I am new to

dawnw007 Newbie
dawnw007
Posted
  • Author

I Thank each and everyone, So Much, for all the kind replys! This is the definition of what community truly can be!!! If all the world were so accepting and kind, it would be a better place, yet this sort of kindness starts in the the most surprising places, like here. I feel it is hard to find true community of any kind on line, here I see it every day! It is important to acknowledge the kindnesses we receive and give in life. They are a lot of what keeps us going day to day, knowing we have our sometimes few, yet every one makes a difference, True Communities in this fast changing society!

dlp252 Apprentice
dlp252
Posted

Hello and welcome!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.