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dawnw007

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dawnw007 Newbie

has any idea who I am...and all seem so caring here, I'd like to let you all know, I've been diagnosed Celiac through the blood test, the gastro, who was in anyway to do a bile duct snip, didn't bother to do the exam I asked for...so I just tried the diet, only to find that when I was exposed, those old joint pains and swellings, and constipation returned ten fold!

A year later, I had my daughter tested, from 6 up she took Ballet classes, and had such an extended tummy, thin hair, nails...I asked the HMO Doc. for a blood test. Negative...she decided to try the Gluten Free Diet and found her intestinal system to work much better, and the bloating of her stomach to go down significantly.

So we both have been on a Gluten Free diet for years now. I was just reading about co-enzyme B vitimans..I've taken my B100's for years, gluten-free just by chance (for so long I'd see that on the bottle and wonder) I think I may switch myself and get my daughter, who I've recently been working with her to take B complex..she has anxiety problems and such that I thought it may help..from what I've read here, all of you have confirmed my concerns...Thank You...Wish I'd known how to use a live stream before, I'd been here years ago...been going it alone for so long. Thanks To All for All your Wonderful Information!!! Dawnw007


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blueeyedmanda Community Regular

Hi Dawn

Welcome to the board :)

happygirl Collaborator

Welcome to the board, Dawn!

Judyin Philly Enthusiast

Let me add my welcome

Judy

confused Community Regular

welcome dawn

paula

Jodi Mills Apprentice

Hi Dawn,

I am new to the board as well...

Jodi

missy'smom Collaborator

Welcome! :) This is a good place to come to.


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Tazzie Newbie

HI Dawn I am new to

dawnw007 Newbie

I Thank each and everyone, So Much, for all the kind replys! This is the definition of what community truly can be!!! If all the world were so accepting and kind, it would be a better place, yet this sort of kindness starts in the the most surprising places, like here. I feel it is hard to find true community of any kind on line, here I see it every day! It is important to acknowledge the kindnesses we receive and give in life. They are a lot of what keeps us going day to day, knowing we have our sometimes few, yet every one makes a difference, True Communities in this fast changing society!

dlp252 Apprentice

Hello and welcome!

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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