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Are Chronic Headaches A Symptom Of Celiac?

Shwem

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Shwem Newbie
Shwem
Posted

I just got my test results back and they were positive for celiac so i guess i have a lot to get used to.. but i have been having these chronic headaches for a couple weeks now and i was wondering if maybe that might be a symtom of celiac. please let me know.. i am very new to this.

Thanks

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JustMe75 Enthusiast
JustMe75
Posted

I used to get a headache just about every day and thought it was sinuses, tension, or stress but when I stopped eating gluten they went away. I never even expected them to, I was trying to fix gastro symptoms, curing the headaches was a HUGE bonus.

jerseyangel Proficient
jerseyangel
Posted

Yes, daily headaches were a symptom for me. Prior to that, I rarely got hedaches.

Mine were mainly in the back of my head at the base of my skull--sometimes the pain would wake me up in the morning (when it was at it's worst).

I will still get this type of headache when glutened.

Barbara A Rookie
Barbara A
Posted

i THINK MY HEADACHES WERE FROM BEING ANEMIC AS MY IRON WAS VERY LOW. nOT SURE AS i STARTED IV IRON INFUSIONS AT THE SAME TIME AS I CHANGED MY DIET. I AM SURE THEY HAVE CHECKED YOUR HEMOBLOBIN BUT JUST AN IDEA

BARB

HAK1031 Enthusiast
HAK1031
Posted

when I was at my sickest (only a few months, I was lucky) I got migraines once a week and milder headaches a few times a week

jeanbean Newbie
jeanbean
Posted

Since I've been gluten free, I have no headaches at all. Previously I was the poster child for migraines -weekly and very nauseous. Mind you I have only been gluten free for one month, after having been misdiagnosed with IBS for several years. On advice from my doctor I was told to have more fibre - little did I know it was making me more sick. I guess everyone is affected differently - are you eating more sugar? Just keep your protein levels equal all day long - have eggs for breakfast for example, protein for lunch and dinner. This will keep your sugar level from fluctuating. That might be why you are getting so many headaches.

psawyer Proficient
psawyer
Posted

My headaches, which were frequent and sometimes debilitating, went away when I went on the gluten-free diet.

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TrillumHunter Enthusiast
TrillumHunter
Posted

I got ocular migraines before before going gluten-free. I was very low in b12 and iron as well. These are gone now.

My husband went gluten-free with me and is no longer having migraines. He'd had them since he was 12 or so. He was tested for celiac and it was negative but he says he'll never eat gluten again.

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    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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