Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strange Allergist Doc Visit


b91hd7fjk

Recommended Posts

b91hd7fjk Apprentice

I went to see the allergist doctor today to hopefully help find out why after going gluten-free I am still experiencing regular symptoms (constipation, D, and constant gas!). My scratch test came back completely clear so he explained to me that I am getting sick due to intolerences....then he proceeded to tell me there is no "test" for intolerences and suggested I see a nutritionist. I explained to him that places such as "enterolab" take samples to test for intolerences but he said its a total waste of money and there is no way to test for them other than maybe journaling food intake on an elimination diet. I REALLY dont have the money to spend on both a nutritionist and getting the lab tests done so I have to choose and was hoping anyone could shed some light with their experiences.

Also after leaving the tests I have had a terrible cough and my chest feels like its closing a little...could be just a coinsident but could this also be a reaction to something I was scratched with?

Please let me know if you can help.

-Staci


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Worriedtodeath Enthusiast

Do keep a watch on yourself. there are delayed ige allergies (skin scratch test for those) and not all drs believe in those. I have made a few believers out of drs when my skin tests went hyper 12 hrs after the test and I had to be hauled back in for violent reactions to mushrooms, dust,mold, and pollen. I also have a delayed onset of insect stings and will have an ige response nearly 12 hours after the insect sting.

Now the kids allergist also believes in IGG allergies which cause delayed stomach/intestional issues and his thinking seems to be rather new as well. But as far as I know, there is no realiable test for that and he has always reccomended the elimination diet to see what triggers those.

If you are 100% gluten-free and have checked all the weird hiding places, have you taken out diary? We are discovering that causes similiar signs to gluten. We all had a nice bag of peanut mms yesterday and I have many of the same symptoms as I do with gluten. The kids are having issues with all direct diary as well.

If you keep a food dairy for awhile, the nutrionist will be helpful in finding things in your diet that you may not realize on your own.

I have no experience with Entrolab so can't comment about them.

Stacie

Ginsou Explorer

I don't understand why your Dr. said there is no test for intolerance. Of course there is. In 1979 when I developed gas,constipation,severe abdominal pain, diarrhea, I was tested for lactose intolerance. It involved drinking lactose, then monitoring my blood and urine for about 6 hours. It was positive. Now, the test is simplified by simply drinking lactose and blowing into an instrument that "reads" your breath and will tell if you are lactose intolerant.

This past year I developed other severe health problems, and blood tests for celiac were negative. I then had Enterolab tests done, and I have both celiac and gluten genes, ( a double whammy), also casein sensitivity (another double whammy with the lactose intolerance) and a soy sensitivity.The egg test was negative.

I was stunned, never in a million years would I have suspected. When I start to have symptoms again, it takes some detective work to find the offending food. After being sick for 6 weeks recently, I found out that the product Rice Dream has barley in it. The barley was never listed before, apparently it is now being included in the labeling.

I've had no medical insurance, and had to do so much detective work. I'd strongly recommend Enterolab as a starting point for your symptoms.

I think the previous poster, worried to death, has the words diary and dairy mixed up. I think she is recommending removing all dairy products from your diet.

Mango04 Enthusiast

I actually think your allergist gave you good advice. Food diaries and elimination diets can actually be more useful and more accurate than "intolerance" testing. (They are less expensive too :) )

b91hd7fjk Apprentice

He actually said the words..."thats all BS" in regards to the stool tests done by enterolab. He is an older man so maybe things have progressed since his days in med school....well Thanks for the advice. I also wanted to know what test did u check off to have the intolerences tested...I have already been diagnosed celiac diseasse and have been on a gluten-free diet for almost 3 years. Ok, thanks!

jerseyangel Proficient

Yep--I agree that your allergist gave you great advice. It was exactly the same thing my allergist told me.

I did an elimination diet (it took a while) and when I finally was able to cut out the foods that caused my symptoms, I began to heal.

b91hd7fjk Apprentice

im willing to do the diet but... what elimination diet did u follow?? they all seem to be different to me...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
im willing to do the diet but... what elimination diet did u follow?? they all seem to be different to me...

Did your allergist offer to help you formulate one? That would be the easiest way to go. Mine started mine the day I had the skin tests done. You could also simply eliminate gluten and dairy and eat a whole foods for sure gluten free diet for a while and then, if you need to, do a short gluten challenge to see if you react.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,828
    • Most Online (within 30 mins)
      7,748

    ABC reno
    Newest Member
    ABC reno
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.