Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Ever Become "instinct"?


Molecular Dude

Recommended Posts

Molecular Dude Apprentice

After 4 years of being gluten free I find that I still "think" about being gluten free. I don't think about whether it's OK to drink water. I also don't think about self-preservation, or avoiding accidents, or a million other things that are just intinctual. But, even in my own house, I still think about avoiding gluten. Does this ever end, or does it go on forever because it was not learned/acquired in childhood? Does it differ for those who have "always" been gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast

I imagine it's always in one's mind at some level. It's not like we had a disease that we take a pill for and then can go about our business and not think about it for the rest of the day. We are constantly having to make decisions based on our need to avoid gluten.

I do believe that it becomes second nature after a while and it might not dominate our lives as it had in the beginning. But this might depend on how sensitive one is and how sick one gets with accidental glutening.

My sister had type I diabetes from the age of 9. She took daily insulin shots and had to weigh and measure her food and test her blood sugar levels constantly. From this perspective, the gluten thing isn't so bad.

Mango04 Enthusiast

I've been gluten-free for four years. It's not difficult any more, but I do still think about it.

I've been dairy-free for about 12 years and that is total instinct.

So...give it 8 more years??

jerseyangel Proficient

I've been gluten-free for 2 years and 8 months (today!) :D

It has become second nature to me--I don't think about it all the time, but of course it's on my mind when I'm shopping and reading labels, or cleaning my kitchen, for example.

I think it becomes like anything else we deal with on a day to day basis--kind of always "there", but not foremost on our mind. That's my take, anyway :):)

Cinnamon Apprentice

If a poisonous snake might jump out of your kitchen cabinet at any moment and bite you really hard, you would always have that possibility in the back of your mind. This is kind of the same thing, in a way.

kbtoyssni Contributor

I think it's become a subconscious thing to always be on the lookout for gluten. I just do it naturally. I don't do it at home, though. I live alone and my house is 100% gluten-free so I don't need to think about it then.

aikiducky Apprentice

I think it might also depend on whether or not you have a gluten free kitchen or not, and other details of your life style. If I'm at home all day I don't really have to think about it.

Pauliina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient
After 4 years of being gluten free I find that I still "think" about being gluten free. I don't think about whether it's OK to drink water. I also don't think about self-preservation, or avoiding accidents, or a million other things that are just intinctual. But, even in my own house, I still think about avoiding gluten. Does this ever end, or does it go on forever because it was not learned/acquired in childhood? Does it differ for those who have "always" been gluten free?

It has been seven and a half years. Yes, I have developed what might be called an instinct. I read labels. I reread labels. I know which companies have a clear gluten disclosure policy. I read labels. I call companies with uncertain ingredients, or I choose another brand. I read labels. I ask questions in restaurants, and prefer restaurants that I know are aware of celiac issues (I won't list them here). Did I mention that I read labels?

pixiegirl Enthusiast

I agree with Patti, at home it never even enters my mind. In the grocery I'm reading labels and such. However just yesterday I went to the health food store to buy some biotin and asked the guy and he gave me a bottle and I started walking away when it dawned on me. I said to him "oh btw, it has to be gluten-free" and he gave me a funny look and said "why didn't you say so". And I said, "I just didn't think about it".

Its just part of who I am now and for the first time in years, I'm healthy!

Susan

aikiducky Apprentice
...I read labels. I reread labels. .... I read labels. ... I read labels. .... Did I mention that I read labels?

:lol: :lol: :lol:

This is so true. I don't even think about it but I read labels all the time. I only notice it when I go grocery shopping with someone else, and they are already done and I'm standing there reading yet another label. I guess that shows that it has become instinct.

Pauliina

psipsina Rookie
I think it might also depend on whether or not you have a gluten free kitchen or not, and other details of your life style. If I'm at home all day I don't really have to think about it.

Pauliina

I agree. I have my safe places where I don't really think of it at all. I remember having a panic attack the first time I had to travel because I would have to think about it all the time for days on end. Of course I think about it when I grocery shop or when I go out to eat somewhere new but that is a tiny part of my life. I feel like having my house be gluten-free is very important to me psychologically . . . to know that somewhere is safe an stress free.

Molecular Dude Apprentice

Glad to hear that, eventually, this will likely become second nature to me. I think that I probably would have already attained that state, but I live in a gluten-filled household and that definitely complicates matters.

Actually, the most troublesome part is that family and friends are always bringing up the issue, so I always find myself discussing gluten, etc., rather than just allowing it to quietly settle in and "become a part of me." I guess that I shouldn't complain about this since they think that they're acting in my best interest, and I suppose that they really are.

Lux Explorer

By definition, it's something you will always need to be aware of - so, I think that it's simply a case of incorporating that awareness into your everyday life, of adjusting to that and that in itself becoming second nature :-)

Genie75 Rookie
By definition, it's something you will always need to be aware of - so, I think that it's simply a case of incorporating that awareness into your everyday life, of adjusting to that and that in itself becoming second nature :-)

Yes I think it is something I will always consciously think of whenever I eat. I still eat with people who do eat glutens, and I encourage them to eat as they usually would, and not to deprive themselves of anything cause of me. And I advise them that I can manage myself and what I eat. That they don't need to worry about that. So I do have to be careful not to get my food contaminated. But I've got the hang of it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,480
    • Most Online (within 30 mins)
      7,748

    Randi44
    Newest Member
    Randi44
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.