Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Say Prayers Or Send Good Thoughts For My Dad

Glutenfreefamily

Recommended Posts

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

He went in Wednesday for a knee replacement. A surgery that was suppose to be easy and he would have been out in a few days. When they went in there the work was much more extensive as his ligaments had grown together due to him limping from knee pain for over 30 years. They had to be split. He ended up needing a blood transfusion due to loss of blood (2 pints) which he wanted to donate prior to the surgery but his dr said it wasnt needed as it was rare he would need a transfusion. Then Friday night he had a heart attack due to they believe lack of blood flow to his heart as he was seeing spots and dizzy before they noticed anything and he had been off his heart meds due to surgery for a week. He has had a stent put it in five years ago due to partial blockage. Tomorrow he has to have a heart catheter tomorrow morning and possibly stent replacement, another stent, angio or the possibility of a bypass surgery if there is too much of a blockage to treat the other ways.

As you can imagine I have been upset for days and our family is very upset regarding this, please say prayers for my dad I would appreciate it immensely.

Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

A BIG, BIG hug for you and good thoughts for you and your family.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Thanks so much, it means so much to me.

ptkds Community Regular
ptkds
Posted

Your family will be in my thoughts. I hope he recovers soon.

(((((((((HUGS)))))))))))))

blueeyedmanda Community Regular
blueeyedmanda
Posted

sending good thoughts your way (((((((((((((((((hugs))))))))))))))))

ravenwoodglass Mentor
ravenwoodglass
Posted

Prayers and hugs heading your way. I hope this resolves quickly.

jennyj Collaborator
jennyj
Posted

You are in my prayers. God bless.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Respira Apprentice
Respira
Posted

I have said a prayer and will continue to pray for your father, you and your family.

jerseyangel Proficient
jerseyangel
Posted

A hug for you and prayers for your dad and family :)

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Thank you very much for all the good thoughts and prayers sent :)

My dad did not have a heart catheter done today. He woke up this morning with a 101 fever and a very swollen hot leg. They did a doppler on him and they found he has developed a blood clot in his leg he had the replacement on. They put him, I believe, on heparin tonight. My mom couldnt recall the name of the medicine they put in his iv but Im sure that's what it was. He will be in there till at least tomorrow if not longer for the blood clot. The catheter has been put on the back burner for now. He can hardly stand being in there as tomorrow will be a week. He isnt handling it well at all and it took all my effort to calm him down today as he was ready to leave the hospital :( He isnt feeling well, problems all around, new roomates everyday (one was a mental patient strapped down because they had no room for him that night on the appropriate floor and he was kicking the bed all night long and screaming) and he has changed floors three times. He regrets this surgery so much now as it was an elective and we had no idea it would turn out like this.

Please keep the prayers coming to get through this.

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for the update, I was wondering how he was doing. I hope you all don't beat yourselves up about the decision to do the surgery, it sounds like he was suffering from the knee issue for a long time. We have no way of knowing that things like this are going to happen. I am continueing my prayers of course and hope he is able to come home soon.

jerseyangel Proficient
jerseyangel
Posted

I'm sorry he's having these continuing problems :( The poor thing--I hope he resonds quickly and is able to go home soon--he'll be able to get more rest and calm there. :)

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Thanks :)

They did a cat scan on him and found another blood clot. It is in his lung and lodged in an artery. They believe it broke off the one in his leg and traveled. Thankfully it didnt go to his heart or put him in respiratory arrest and he has no symptoms with it. They put him on lovenox to take along with his coumadin last night so he can do the shots at home too. They also did a sleep apnea test on him because the nurse heard him snoring and noticed he seemed to stop breathing at times so if the test comes out he does he will get a full sleep study when he gets out. He should get out of the hospital tomorrow since the lovenox will take care of the blood clots. He also has had to stop therapy due to the blood clots so its delaying his recovery from it but once they resolve he can start it up again. His dr put him on sick leave till late August.

This has been such a long ordeal, I cant wait till he gets home and is back on the mend.

Ursa Major Collaborator
Ursa Major
Posted

I will pray for your dad also. I hope everything turns out well, and he really gets to go home tomorrow.

Green12 Enthusiast
Green12
Posted

Your dad and your family are in my thoughts.

Cheri A Contributor
Cheri A
Posted

((hugs)) and prayers for your dad and family as well.

My step father had elective knee replacement surgery last year. He has had a long, hard recovery too.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Thank you :) Today he is really tired and cold but staying stable for now. He hasnt heard word yet on the sleep apnea test results. He has asperger's a bit I believe so this constant roommates and nurses and drs always around him is driving him nuts. I hope he gets to go home tomorrow too, when I talked to him a few hours ago he said he is not even thinking about it since they keep telling him different days he will go home and keep changing it.

Cheri- Im sorry your stepfather had a hard time too.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Today he was in better spirits :) He doesnt get to come home yet unfortunately. His coumadin level is not as high as they want it even though he has been on it for over a week. They want it a therapeutic rate and not too high or low. They also said he is still showing as iron deficient anemic even though he has been on iron pills this whole time and I believe even before his surgery.

He is in his own room :D I guess the complaining paid off!

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Oops double post!

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

He is home :D :D :D :D :D!!! He is doing good. He is on coumadin and lovenox for the clots and has to go back every day for blood tests for the next week to check on his coumadin levels but he was able to come home and rest and sleep in his own bed. He has therapy on Wednesday starting up again. What a whirlwind!

Thank you so much for the prayers and good thoughts I truly believe its what got him through!

ravenwoodglass Mentor
ravenwoodglass
Posted
He is home :D :D :D :D :D!!! He is doing good. He is on coumadin and lovenox for the clots and has to go back every day for blood tests for the next week to check on his coumadin levels but he was able to come home and rest and sleep in his own bed. He has therapy on Wednesday starting up again. What a whirlwind!

Thank you so much for the prayers and good thoughts I truly believe its what got him through!

:D:D:D Thank you so much for the good news. I am glad everything is looking up and he is home.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Thanks :)

Morrisun Newbie
Morrisun
Posted

I'm so sorry to hear about your dad. I was on Coumadin for a little over 2 years due to a pulmonary embolism. It can be a real pain the butt until you get your INR regulated, but hopefully he won't have too hard a time with that. A consistent diet is key, as well as taking the Coumadin at the same time every day. Poor guy, that really sucks. :(

Did they tell him how long he can expect to be on it??

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted
  • Author

Jennifer thanks :)

Im so sorry you had an embolism how scary! His level is still off a bit and they are just testing it every day still. They told him so far till the end of August and we will see from there. What diet do they recommend? My dad is still very iron deficient even with his iron pills and they told him lots of steaks to help it. It doesnt sound very healthy to me. What diet did they have you on? They just told him lots of steaks and no greens at all.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748
    Amari Love
    Newest Member
    Amari Love
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.