Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Letting Others Cook For Your Child


dandelionmom

Recommended Posts

dandelionmom Enthusiast

I'm having a hard time trusting other people to prepare food for my daughter, even when they're making a conscious effort to make something gluten-free. Even if I trust their label reading, I don't know how gluten-free their kitchen is, so I worry about CC.

Does anyone else worry about this? Is it something I just need to get over? How do you handle it?

I'm much more willing to take a leap of faith for myself but I just can't seem to trust anyone when it comes to my daughter! How paranoid do I sound.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gdobson Explorer

I'm sorry, but I just can't do it. Nobody really understands this the way we do. There are so many little things that regular people just don't think of. Well-intentioned they might be, I could not trust someone to fix food for my son, unless I bought all the ingredients and they fixed it in my house. I don't think I'll get over that one. :)

Cheri A Contributor

I don't let others cook for our dd either. I make whatever she needs to take with her. Other people have good intentions but are just not used to having to prepare meals or cook the way that we do. It isn't worth the risk of her getting sick.

buffettbride Enthusiast

There are a few people who I trust to prepare her meals. Both sets of my in-laws do a great job and have purchased a set of cooking utensils, etc just for when they cook for her and we made them a "high alert" list about hand washing, CC, reading labels as a quick checklist to refer to when cooking for her. My folks keep their house stocked with gluten-free goodies for when my daughter visits. They were all pretty ahead of the curve in understanding the diligence of dealing with Celiac Disease, so it was easy to let them give it a go and we haven't had any problems as a result.

Other than that, unless it is me or my husband, she doesn't eat anything from anyone else unless it is pre-packaged and she knows it to be safe. We send snacks with her everywhere she goes, or $ for her to purchase items if needed (she's 10 so this is like field trips, sporting events, scout outings, etc). She's on the ball of what she can and can't have and doesn't risk it. We usually feed her before she leaves, just so she's not super hungry.

However, if I had not had such a positive response from my family, I absolutely would NOT trust them to cook for her and make other arrangements. It really is a judgement call on how well you think someone has grasped the necessity to be completely perfect when cooking gluten-free.

My one other exception was Girl Scout camp. We provided all the meals, pre-made and only required heating. We covered the risks of touching other food before hers could be problematic, and they accomodated us by good hand washing, safeguarding the microwave, and preparing her food before everyone elses. It was a little scary and daunting, but she made it through camp with nary a glutening.

celiac-mommy Collaborator

The only other person who is 'allowed' to cook for our DD (and now son) is my mom. She's done as much research as I have, lives almost entirely gluten-free since my DD's diagnosis and knows what is OK and what's not. She's the ONLY one I trust. My inlaws tried to talk us into taking our trip to Europe for 2 weeks and leave the kids with them. I had a panic attack at the thought, thank goodness my DH agrees with me completly. I guess I would be more OK with it if they were at our house cooking our food, but otherwise, I can't in good faith trust anyone. That's another reason we hardly eat out, and when we do it's a gluten-free restaurant. I never though of it that way, I can let a stranger prepare her food but not most family members!!

CeliacMom2008 Enthusiast
That's another reason we hardly eat out, and when we do it's a gluten-free restaurant.

Eating out is something we've only done 2 times since our son was diagnosed and it was very stressful for me. When you say a gluten free restaurant, what do you mean? A real live Celiac restaurant or just a Celiac friendly restaurant?

celiac-mommy Collaborator
Eating out is something we've only done 2 times since our son was diagnosed and it was very stressful for me. When you say a gluten free restaurant, what do you mean? A real live Celiac restaurant or just a Celiac friendly restaurant?

We actually have a few restaurants in this area that are almost completely gluten-free. Hawthorn and Corbett Fish House (best catfish EVER), Andina's and Assiago's. We also have 2 pizza places nearby that have gluten-free pizza and are made separately from the regular pizza. Cold Stone Creamery is a great place to go too-they're SO great with us, we just call ahead and have them dig us ice cream from a new container and add gummi bears from a fresh bag-to the kids, there's nothing better!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



texasmama Rookie

The only person I trust to cook for my kids is my dad, who is a long term gluten-free celiac himself. His whole house is gluten-free. It is nice knowing he knows what is safe for them and won't make any mistakes. I get panicky about restaurants, too. We are new at this - about 6 weeks into it - so some of this may be just me getting comfortable with what is safe...but I don't think I will ever trust my in laws or many other people. I think I will always be packing things for my kids to take. I just feel better about it.

Darn210 Enthusiast

Probably the only people I would trust are two extremely good friends. They have been the most interested in the details of Celiac and we have had thorough discussions on how little it takes to mess things up. Even with that said, I would probably still provide all the food that they would then just heat up (with detailed instructions on how to properly heat something up :lol:)

Maggie Moo's is also a great place for an ice cream treat . . . they will scoop from a fresh container (with a clean scoop) and toppings come from closed containers from the back and not the "open" buffet of toppings up front. And the one that we go to has a tendancy to give my kids extra ice cream and toppings. :D

Izak's Mom Apprentice
Eating out is something we've only done 2 times since our son was diagnosed and it was very stressful for me. When you say a gluten free restaurant, what do you mean? A real live Celiac restaurant or just a Celiac friendly restaurant?

Open Original Shared Linknames a few places that have gluten-free menus....I know Legal Seafoods in the Boston area has a gluten free menu - and even goes so far that if you request the menu, they actually won't let you order off the regular menu (my friend was there with her gluten-sensitive sister, who asked for the gluten-free menu, but then decided she wanted to try the risotto off the regular menu and they wouldn't let her order it!)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    2. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    3. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    4. - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

    5. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,811
    • Most Online (within 30 mins)
      7,748

    Taraceliacmama
    Newest Member
    Taraceliacmama
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.