Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety And Panic, When Does It Subside?


Blondie

Recommended Posts

Blondie Apprentice

My first celiac-symptoms started about 1.5 years ago, the big D, loose stools, small but constant weight-loss, went down about 5 kg over 1 year, during this time I had minor anxiety attacks, minor depressions and minor mood changes once every month or so.

About 7-8 months ago, when things got really bad, I lost about 5 kg within few weeks, I experienced mood swings, depressions, panic, anxiety and aggression on a daily basis. Now, after ~5 months gluten-free, it's gotn a lot better. I've gained about ~12-14 kg's, lost the big D and all other gastrointestinal symptoms, yet the anxiety and panic is still there, more or less.

I take multivitamins, b-vitamins and sublingual b12, i'm also lactose-intollerant.

Now, I was hoping that anyone could tell me how long it took them to completely lose their anxiety/panic-attacks?

Are there anything that helps? (I'm not interested in meds)

Something you can eat? etc


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FlourShopGirl Explorer
My first celiac-symptoms started about 1.5 years ago, the big D, loose stools, small but constant weight-loss, went down about 5 kg over 1 year, during this time I had minor anxiety attacks, minor depressions and minor mood changes once every month or so.

About 7-8 months ago, when things got really bad, I lost about 5 kg within few weeks, I experienced mood swings, depressions, panic, anxiety and aggression on a daily basis. Now, after ~5 months gluten-free, it's gotn a lot better. I've gained about ~12-14 kg's, lost the big D and all other gastrointestinal symptoms, yet the anxiety and panic is still there, more or less.

I take multivitamins, b-vitamins and sublingual b12, i'm also lactose-intollerant.

Now, I was hoping that anyone could tell me how long it took them to completely lose their anxiety/panic-attacks?

Are there anything that helps? (I'm not interested in meds)

Something you can eat? etc

I also have severe anxiety and depression along with the agression at times. Mine started 2 years ago manily during my periods and ovulation- so I thought it was hormonal. I lived a very sound life before all that, not an ill-thought in my head and it's been a rollercoaster.

I don't know how long it takes but for me I assume it takes time. I've had IBS symptoms for 16 years. I've been on the diet for 2 weeks and I am sure gluten has snuck in from toothpaste, etc. I also think I can't handle milk and I am having a hard time giving it up. I even had Vegan cheese in my cart but resorted to regular seeing the price drop.

I am not interested in meds either. My brother died from taking an anti-depressent and a pain med and it scares me. I believe symptoms are signs something is off and those just band-aid problems. I do take Xanax here and there but it's to help me cope.

Just give it time. So for me, I'm 2 weeks in still with anxiety. I am sure it's different for everyone.

Blondie Apprentice

Anyone else?

jerseyangel Proficient

I had anxiety and panic attacks going back at least 20 years. Since the day I went gluten-free (about 2 1/2 years ago), I have not had a single panic attack.

The anxiety took longer--about 18 months--and it still comes back if I get glutened.

Worriedwife Apprentice

Be careful of the Xanax. Not all of the generics are gluten free.

sickchick Community Regular

Been gluten free 5 months too and I am still having MAJOR anxiety. I had anxiety that was directly related to gluten, of course, and depression, and certain aspects HAVE CHANGED since I went gluten free but it's still bad.

If they don't get better over the next few months I will see someone about it.

Good luck and be well :)

Blondie Apprentice

Glad to hear that the anxiety of some others have subsided, guess there's still hope for me.

I know how you feel sickchick, the anxiety is worse than all the other symptoms together and also harder to explain to others than the gastrointestinal symptoms. Does anyone know WHY celiac patients experience anxiety? I've heard that most of the symptoms come from malalbsorbation caused by damage to the villi, which over time leads to a lot of "mental" symptoms, but why does people have fallbacks when accidently glutened?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Morrisun Newbie

I had severe anxiety for years. Mine was centered around the fact that I was afraid of not being able to get to a bathroom in time. I was on different anxiety meds for many years. Once I was gluten-free and I stopped having diarrhea, the panic/anxiety slowly went away. It probably took for me about 3-4 months. I too haven't had another panic attack, but I still get anxiety sometimes.

I don't know about the medical reasons why Celiacs have anxiety issues when they've been glutened, but for me I think it's because when I get the glutened it reminds me of how I used to be and it brings back all the fears and anxiety that I had before I was diagnosed, and was gluten free. Don't know how true that is, or not! :)

Blondie Apprentice

Or perhaps it's our bodies trying to tell us SOMETHING IS VERY VERY WRONG HERE? :P

tom Contributor
I take multivitamins, b-vitamins and sublingual b12, i'm also lactose-intollerant.

Wondering what brand of sublingual B12 you take. I stopped taking mine long ago when I saw IT had lactose in it.

I haven't looked in quite a while but I was under the impression most have lactose.

Now, I was hoping that anyone could tell me how long it took them to completely lose their anxiety/panic-attacks?

Are there anything that helps? (I'm not interested in meds)

Something you can eat? etc

For me, the anxiety disappeared when I stopped eating other foods I'd become intolerant to.

I still think they are temporary intolerances caused by leaky-gut, but I suppose I have no proof .. ..yet.

Blondie Apprentice

NOW B-12 Nervous System Health, from the box, quote unquote "Contains no salt, yeast, wheat, gluten, milk, egg, shellfish or preservatives. No milk, no lactose eh? :)

Besides, you think lactose could have anything to do with my anxiety? I mean, the lactose intolerance is simply from the lack of lactase, could it affect my "mental health"?

flourgirl Apprentice

My feeling is that anxiety and panic have a lot to do with the fact that our bodies are under seige. What you absorb or don't absorb are going to have an effect on your hormones, nerve functions, brain function, endocrine system, etc. The wonder would be if you DIDN'T feel some of those unsettling things. I am looking forward to feeling normal.....one of these days (sigh) :unsure:

tom Contributor
Besides, you think lactose could have anything to do with my anxiety? I mean, the lactose intolerance is simply from the lack of lactase, could it affect my "mental health"?

Oh I didn't mean that to look like I was blaming lactose. That part was FMI (for MY information ;) )

Thanks for the info. I'll prob buy some TODAY!!

Wonka Apprentice
My feeling is that anxiety and panic have a lot to do with the fact that our bodies are under seige. What you absorb or don't absorb are going to have an effect on your hormones, nerve functions, brain function, endocrine system, etc. The wonder would be if you DIDN'T feel some of those unsettling things. I am looking forward to feeling normal.....one of these days (sigh) :unsure:

Funny, until now, I never connected my anxiety to the celiac but it makes sense. I never used to be an anxious person but now I find I have to push past it when I know it isn't based on anything (as in the activity I'm attempting to do). It would be nice to see those feelings completely go away. I'm generally a calm person (on the outside) but boy would people be surprised to know what goes on inside me. lol

cmom Contributor

I, too, suffered from severe anxiety related to not getting to the bathroom in time. For example, back before I knew just eating the topping off a pizza is a no-no, I would panic b/c there was only one restroom in the pizza place, as opposed to a place that had more than one stall. Hence, if it was taken, I could get in bad shape. I can now be more calm and wait patiently, if necessary. And, no, I no longer eat pizza toppings!! :huh:

Blondie Apprentice

So gluten is definitively a trigger for anxiety, now the question is, is there any way to ease the anxiety? or even make it go away? or you just gotta be patient with the diet and watch out for cc?

Cinnamon Apprentice

It is said that much of our serotonin is manufactured in the gut, and if the villi are damaged, maybe that is why anxiety can be such a problem. Maybe if you ate a lot of the foods that are converted into serotonin, like turkey, I wonder if that would help. Or google "increase serotonin" and see if there are any natural supplements that might be helpful.

jerseyangel Proficient
It is said that much of our serotonin is manufactured in the gut, and if the villi are damaged, maybe that is why anxiety can be such a problem. Maybe if you ate a lot of the foods that are converted into serotonin, like turkey, I wonder if that would help. Or google "increase serotonin" and see if there are any natural supplements that might be helpful.

Yes--over 90% of our serotonin is in our gut.

My GI told me that the gut is like a second brain because the tissue of the intestine is identical to the tissue in the brain.

Wonka Apprentice
Yes--over 90% of our serotonin is in our gut.

My GI told me that the gut is like a second brain because the tissue of the intestine is identical to the tissue in the brain.

Interesting. My anxiety has gone down although it hasn't completely gone away yet. I've spent most of my life fighting anxiety. I didn't do alot of sports growing up because of anxiety (and I come from a very sporty family - dad was a weightlifting coach with his own club, brother was in the 88 Olympics for weightlifting and my sister is extremely fit and sporty). As an adult I have made myself try new things and just pushed through the anxiety because I was tired of feeling like a wuss.

Cinnamon Apprentice

Hey, I wonder if the serotonin thing is why some have trouble sleeping, since serotonin is converted into melatonin, which makes us sleepy. I wonder. My son has trouble sleeping when he's been glutened.

jerseyangel Proficient
Hey, I wonder if the serotonin thing is why some have trouble sleeping, since serotonin is converted into melatonin, which makes us sleepy. I wonder. My son has trouble sleeping when he's been glutened.

It makes sense--one of the first things I notice if I've gotten some CC is that I don't sleep well--I lay there and worry or over-think things. The anxiety creeps in....

sickchick Community Regular

Acidophilus heals the gut. Your intestines have more neurotransmittors than your brain!! B)

Blondie Apprentice

wow, interesting, really, thanks guys!

done some quick research and seems that low amounts of serotonin can lead to a lot of typical "mental symptoms" that we often see in celiac disease.

Anyone have more information?

lattelady Newbie

I know how you feel, I would never have connected this with my anxiety. How interesting, being new to this site, when I read what others have to say they feel the same things I do! I think all the time, is it just me? Wonder what it would really be like 'feeling normal' .....and what goes on in the inside lol man if anyone ever knew! LOL ;)

Blondie Apprentice

Anyone have more information?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.