Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Here Eats Oats? Safe?


Eric-C

Recommended Posts

Eric-C Enthusiast

We started a no flour no sugar diet about a month and a half back.

Many of the recipes talk about rolled oats and how good they are for you. I've read that oats themselves are gluten free but cross contamination may be an issue.

So we made some cinammon apple bars with Agave for a sweetner. We had one when they were done and another after dinner for a snack.

I didn't feel bad but I had that "gurgly" feeling that I haven't had for months after stopping gluten intake.

My allergy is minor to moderate. I do not have anything with gluten in it but I can tolerate a decent amount after not having it for a while.

I had no other problems besides the feeling so who knows. We had Chicken Vindaloo for dinner with brown basmati which is extremly high fiber and Vindaloo is extremely spicey so it may have been that.

It sent me doing some reading and there seems to be conflicting stories. Oats do not contain gluten per se but they contain something very close which upsets some people.

So I'm sitting here in my office at work staring at these things and getting hungry :)

Anyone have good/bad luck with oats?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Oats may be gluten free, yet many celiacs can not tolerate them. And yes, they do have a cross contamination issue too. You have to buy oats that specifically state they are grown and processed separately from wheat. Oats made me sick long before I knew about gluten, so I can't have them anyways.

Was funny though, I could eat oatmeal for breakfast and felt ok, but I could not eat oatmeal cookies, or meatloaf with oats in it, stuff like that.

It's an individual decision as to if you try them or not. Just make sure you try a safe oat.

JennyC Enthusiast

We use Bob's Red Mill gluten free rolled oats with no problems. :)

ravenwoodglass Mentor

You might want to really 'challenge' them and have some of those bars a couple times a day or at least 2 to 3 servings of the gluten-free oats for a week. You may find that the gurgles are a precursor to a reaction. I get the gurgles within a couple hours and the real tummy misery starts 3 days later.

jkmunchkin Rising Star

I have safely eaten oats, however I only buy oats from companies that guarantee they are pure, uncontaminated oats. I have used the oats from Cream Hill Estates without any problems.

Eric-C Enthusiast

Well....I got my answer :)

Won't go into the details but lets just say I'm very used to the stages this progresses.

Now we used some oats we had bought a long time ago and they were generic, American Choice which I think was Farmer Jack's brand so who knows where they have been.

One thing I've noticed is when I ate gluten regularly I could control how I felt. Every 2-3 days and so long as I ate a decent amount of fiber I was for the most part good.

Now after being off of it I'm actually more sensative it seems.

My wife started to notice symptoms of not being able to handle gluten also...we've both been free of it for a while now and she snuck in a girl scout cookie, not a good result.

I'll try the Red Mill's...I had high hope for the oats since it would greatly diversify our breakfast.

If anyone hasn't had it Agave is fantastic. GI index of 19 and a GL load of 1.9. Tastes better than honey with none of the effects of sugar. Its tough to find but worth it.

celiac-mommy Collaborator
We use Bob's Red Mill gluten free rolled oats with no problems. :)

Us too, I've gone CRAZY with them, baked oatmeal (with eggs fruit and milk :P ), cookies, muffins, cakes--whatever I can put it in, I DO!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Some celiacs can handle them and some can't. It really is a risk and toss up. Some celiacs react to the protein in Oats called Avenin and that is even with pure oats. The problem is what about those celiacs who don't get symptoms when eating gluten? If they are the ones reacting to the oats how would they know they are not doing damage? I personally avoid them and I know I would react and man do I feel it.

taweavmo3 Enthusiast

Well after weeks of saying "I'll never risk it", I bought a bag of gluten free oats. I figured several Celiacs around here must be tolerating them okay, b/c they sell out as soon as they are stocked. I had a bowl and felt fine, but I'm not as sensitive as my daughter. I still can't bring myself to give them to her....she is so sensitive, and reactions last for SO long with her. So, I think I'm going to just stick with quinoa flakes until she's a bit older. But I'm just dying to try out a homemade granola bar recipe with them!

hez Enthusiast

One thing to remember when trying out gluten-free oats for the first time is to go very slowly. When I ordered my oats from the Wyoming company they sent along a sheet that described how much to try and to slowly increase over a period of time. Oats can cause the the big "D" due to the high fiber content. If you have a low fiber diet the oats may throw off your system. Just a word of caution.

Hez

gluten15 Apprentice
If anyone hasn't had it Agave is fantastic. GI index of 19 and a GL load of 1.9. Tastes better than honey with none of the effects of sugar. Its tough to find but worth it.

Open Original Shared Link

gluten15 Apprentice
If anyone hasn't had it Agave is fantastic. GI index of 19 and a GL load of 1.9. Tastes better than honey with none of the effects of sugar. Its tough to find but worth it.

Open Original Shared Link

lpellegr Collaborator

With high hopes I bought a box of Cream Hill gluten-free oats and made oatmeal scones. They were delicious, but I reacted like I had been glutened. Very disappointing. But I went ahead and ate the rest of the scones anyway, since I figured I was already screwed! So some of us can't eat them, even if they are gluten free. Must be Mother Nature having her little laugh at me after 30 years of eating three bowls of Cheerios every morning.

Guest digmom1014

I haven't had any trouble with McCann's Irish Oatmeal however, I am getting more sensitive to gluten by the minute so...

This is what they say:

Are McCann's Oat products gluten free?

All McCann's oat products are processed in a dedicated oatmeal mill that handles only oatmeal. In the supply chain between farm and mill, there is a possible cross contamination with other grains, such as wheat and barley but we reckon that the level of non-oat grains to be less than 0.05%. Cleaning equipment within the milling process would remove the vast majority of these grains along with other elements such as stones, straw etc.

But we cannot guarantee that McCann's oats are totally gluten free and we recommend that consumers use their own judgement as to whether they wish to use our oatmeal or not. Many celiacs can tolerate our oatmeal products without any adverse effect but they may not suit those who are particularly sensitive.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,213
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.