Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hypoglycemia With Celiac


jennyofmany

Recommended Posts

jennyofmany Newbie

I finally figured out that I may have Celiac. I went on the gluten free diet and had heavy withdrawal symptoms for the first few weeks. I've also been reading books about wheat gluten intolerance and was surprised to find out that nobody digests wheat completely. So I know that I am correct in going gluten free. But what I can't seem to get a handle on is my hypoglycemia. I've been having it really bad now and yet before it was getting better with the gluten free diet. Now it's getting bad again. Has anyone had to deal with hypoglycemia with their Celiac. I was glutened last Thursday and this is when the hypoglycemia started getting really bad so it is showing a connection with Celiac. Does anyone else have hypoglycemia with their Celiac and did your hypoglycemia improve, get worse or go away after going gluten free. I've been gluten free for about month now. Still not sure if it is working. My bowels are better, but the hypoglycemia is up and down. Not sure where to go from here. Any advice or personal stories about hypoglycemia with Celiac would be greatly appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I was hypoglycemic before gluten-free (and before I needed to be gluten-free, as far as I can tell). I have not noticed a difference in how my hypoglycemia goes with the gluten-free diet (or CF for that matter), but as long as I keep my meals well balanced (30/30/40 is ideal for me), I generally experience no symptoms and can go for many hours (5+) without any blood sugar drops at all. Once I get off the habit of eating that way regularly, my blood sugar doesn't stay quite that stable, of course, but maintaining balanced meals/snacks does it for me.

Sweetfudge Community Regular

I went through this not too long ago, and learned that I really have to plan my food like clockwork, and always have snacks with me. I try and eat some protein (preferably meat of some kind) and a carb every 2-3 hours. I buy a lot of stuff at costco that I can just throw into ziplocs and take with me to work or whereever I go. Hang in there, you'll figure out your routine :)

jbronwynne Newbie

I dealt with episodes of hypoglycemia for a long time before I went gluten-free. Like the other posters said, I had to have planned snacks every few hours. If not, I would get panicky, shaky and very irritable. I do believe it is related to celiac because it seemed to go away when I cut gluten out and came back with a vengeance (like everything else) with my gluten challenge. I guess it makes sense when you aren't absorbing things normally, your metabolism and basic bodily functions just can't work normally.

It took a few weeks for my body to regulate itself, and I still have to eat my snacks, but it is nothing like it used to be. It does help to have a balanced snack with some protein, fat and carbs.

jennyj Collaborator

I, too, have hypoglycemia. It used to be really bad. I did the 5 hour glucose test and was shown to be. The doctor however was skeptical, even when between the 3 and 4 hour I passed out in the waiting room. It has gotten alot better but I do have to eat every 2-3 hours.

Wonka Apprentice
I was hypoglycemic before gluten-free (and before I needed to be gluten-free, as far as I can tell). I have not noticed a difference in how my hypoglycemia goes with the gluten-free diet (or CF for that matter), but as long as I keep my meals well balanced (30/30/40 is ideal for me), I generally experience no symptoms and can go for many hours (5+) without any blood sugar drops at all. Once I get off the habit of eating that way regularly, my blood sugar doesn't stay quite that stable, of course, but maintaining balanced meals/snacks does it for me.

I'm the same as you. I experience no hypoglycemia syptoms as long as I balance my food and don't allow myself to get really hungry (I eat frequent small snacks between meals (protein/fat and carb source - usually fruit or veg).

HAK1031 Enthusiast

I haven't been officially DX'd with hypoglycemia, but I get pretty bad blood sugar drops if I don't eat frequently. I start to get really shaky and feel like I'm going to throw up and pass out. I don't know that I'm full blown hypoglycemic, but I do know that I need to listen to my body. I bring my lunch every day, and there are times when I've eaten it all before second period (9:30) because I eat breakfast at 5:30. But I know to let myself do that and just buy an apple in the cafeteria at lunch (at that point I won't be as hungry, it'll tide me over until I get home at 2). I have found that ignoring conventional meal times and eating when hungry helps- if left to my own devices I eat dinner at 5 and I'm good for the night.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 years later...
Melissaann829 Apprentice

I finally figured out that I may have Celiac. I went on the gluten free diet and had heavy withdrawal symptoms for the first few weeks. I've also been reading books about wheat gluten intolerance and was surprised to find out that nobody digests wheat completely. So I know that I am correct in going gluten free. But what I can't seem to get a handle on is my hypoglycemia. I've been having it really bad now and yet before it was getting better with the gluten free diet. Now it's getting bad again. Has anyone had to deal with hypoglycemia with their Celiac. I was glutened last Thursday and this is when the hypoglycemia started getting really bad so it is showing a connection with Celiac. Does anyone else have hypoglycemia with their Celiac and did your hypoglycemia improve, get worse or go away after going gluten free. I've been gluten free for about month now. Still not sure if it is working. My bowels are better, but the hypoglycemia is up and down. Not sure where to go from here. Any advice or personal stories about hypoglycemia with Celiac would be greatly appreciated!

Melissaann829 Apprentice

I was diagnosed with Celiac on 9 September 2010. I've had Hypoglycemia (as a result of Pancreatitis) about 6 years ago. I'm strictly following the Hypoglycemia/Celiac Diet yet my body is still going crazy. I can't seem to control my blood sugar at all and I dont know why?? My body is up and down, hormonal, and on a psychological rollercoaster these days for some reason. What am I doing wrong? Any diet ideas? Personal stories? Insomnia has kicked in because my sugar levels are not balanced. Melissa

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,837
    • Most Online (within 30 mins)
      7,748

    Juliane
    Newest Member
    Juliane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.