Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused

lizzy

Recommended Posts

lizzy Apprentice
lizzy
Posted

HI ALL

First of all i wanted to say i have just moved back to uk after living in u.s.a for 8 years and i went to my doctor and said i have been following a gluten free diet now for 3 years, so she tested me for it by blood test and came back negitive. i said that i would have expected it to cos to show positive results you need to be eating alot of gluten for a positve result. she dosent agree with me. so i thought i would put it to you all and see what responce i got back.

my nuroligist because of this test also believes that my symptons got better by coincedance and i should be totally better where as am still showing nurolical problems. and on friday i went to see my doc with some strange spots ( if you can call it a spot, dont know how else to explian it) to be told i have now got skin cancer.

any remakes werlcomed so i can go back to her with a responce from the right people who know what they talking about thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted

I know its hard to get a GP but you are probably better to try and find one already educated.

If your GP doesn't know the basics and doesn't know you need to be eating gluten for a positive blood test then convincing him/her might be an upward struggle.

They didn't listen the first time so going back and saying "these people on an internet message board said" is unlikely to change that ...( in my experience )

They have sent you for test without reading about the test... it doesn't seem they are likely to want to read up ??

It seems you have enough on your plate without trying to reeducate your GP ?

lizzy Apprentice
lizzy
Posted
  • Author

Thanks for your reply. my husband gets so cross with these gps who dont understand what there saying, i saw another who was just a stand in and he said the same about my negitive blood test and my husband said you didnt see my wife when she was so sick and the responce to going gluten free and how i got results of getting better in a week. the doctor just shugged his shoulders and said well if it courses gas and stomach upset i suppose you could leave it alone . my husband was about to pop, but i said leaveit, and lets go home. we know better .

gfp Enthusiast
gfp
Posted

If you make a seperate post requesting anyone who has a Dr. even half close to you then someone might be able to help out.

Once you see a UK Dr. who agrees and puts it on your records then the other Dr.'s are not likely to disagree.

You can request an emergency Dr. and say you are visiting to get an appointment ...

With a bit of luck you might find a Dr. willing to put celiac disease on your records without putting you through eating gluten for a test.

Unfortunately getting a half decent GP is somewhat pot-luck (as you will doubtless have realised).

kbtoyssni Contributor
kbtoyssni
Posted

If you are not eating gluten, your body is not going to be producing antibodies. After three years, any antibodies you once had will be gone. You doc doesn't have a clue what she's talking about.

gfpaperdoll Rookie
gfpaperdoll
Posted

Can you get your medical records transferred from IL?

I would also make sure you get a second opinion on the skin cancer...

If you do have skin cancer, I would go grain free & check into the vitamins that you should be taking in addition to the treatment that the doc recommends - although the vitamins needs to be co-ordinated with the doc - just do evertyhing you can to make sure you get a good doc.

lizzy Apprentice
lizzy
Posted
  • Author
Can you get your medical records transferred from IL?

I would also make sure you get a second opinion on the skin cancer...

If you do have skin cancer, I would go grain free & check into the vitamins that you should be taking in addition to the treatment that the doc recommends - although the vitamins needs to be co-ordinated with the doc - just do evertyhing you can to make sure you get a good doc.

HI thanks for your reply,

i take vitimins and have done since i stopped eating gluten and i make sure they all gluten free. as for the skin cancer it is what it is with out a doubt and i have only myself to blame for it as i have always loved being out in the sun and have sunbathed endlessly. we all listen to what sun damage can do to you but like anything else you dont think it will happen to you , until it does ,

my doctor says i will have to have a tan out of the bottle from now on no more direct sun for me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,005
    • Most Online (within 30 mins)
      7,748
    Ellen Watts
    Newest Member
    Ellen Watts
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
×
×
  • Create New...