Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused

lizzy

Recommended Posts

lizzy Apprentice
lizzy
Posted

HI ALL

First of all i wanted to say i have just moved back to uk after living in u.s.a for 8 years and i went to my doctor and said i have been following a gluten free diet now for 3 years, so she tested me for it by blood test and came back negitive. i said that i would have expected it to cos to show positive results you need to be eating alot of gluten for a positve result. she dosent agree with me. so i thought i would put it to you all and see what responce i got back.

my nuroligist because of this test also believes that my symptons got better by coincedance and i should be totally better where as am still showing nurolical problems. and on friday i went to see my doc with some strange spots ( if you can call it a spot, dont know how else to explian it) to be told i have now got skin cancer.

any remakes werlcomed so i can go back to her with a responce from the right people who know what they talking about thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted

I know its hard to get a GP but you are probably better to try and find one already educated.

If your GP doesn't know the basics and doesn't know you need to be eating gluten for a positive blood test then convincing him/her might be an upward struggle.

They didn't listen the first time so going back and saying "these people on an internet message board said" is unlikely to change that ...( in my experience )

They have sent you for test without reading about the test... it doesn't seem they are likely to want to read up ??

It seems you have enough on your plate without trying to reeducate your GP ?

lizzy Apprentice
lizzy
Posted
  • Author

Thanks for your reply. my husband gets so cross with these gps who dont understand what there saying, i saw another who was just a stand in and he said the same about my negitive blood test and my husband said you didnt see my wife when she was so sick and the responce to going gluten free and how i got results of getting better in a week. the doctor just shugged his shoulders and said well if it courses gas and stomach upset i suppose you could leave it alone . my husband was about to pop, but i said leaveit, and lets go home. we know better .

gfp Enthusiast
gfp
Posted

If you make a seperate post requesting anyone who has a Dr. even half close to you then someone might be able to help out.

Once you see a UK Dr. who agrees and puts it on your records then the other Dr.'s are not likely to disagree.

You can request an emergency Dr. and say you are visiting to get an appointment ...

With a bit of luck you might find a Dr. willing to put celiac disease on your records without putting you through eating gluten for a test.

Unfortunately getting a half decent GP is somewhat pot-luck (as you will doubtless have realised).

kbtoyssni Contributor
kbtoyssni
Posted

If you are not eating gluten, your body is not going to be producing antibodies. After three years, any antibodies you once had will be gone. You doc doesn't have a clue what she's talking about.

gfpaperdoll Rookie
gfpaperdoll
Posted

Can you get your medical records transferred from IL?

I would also make sure you get a second opinion on the skin cancer...

If you do have skin cancer, I would go grain free & check into the vitamins that you should be taking in addition to the treatment that the doc recommends - although the vitamins needs to be co-ordinated with the doc - just do evertyhing you can to make sure you get a good doc.

lizzy Apprentice
lizzy
Posted
  • Author
Can you get your medical records transferred from IL?

I would also make sure you get a second opinion on the skin cancer...

If you do have skin cancer, I would go grain free & check into the vitamins that you should be taking in addition to the treatment that the doc recommends - although the vitamins needs to be co-ordinated with the doc - just do evertyhing you can to make sure you get a good doc.

HI thanks for your reply,

i take vitimins and have done since i stopped eating gluten and i make sure they all gluten free. as for the skin cancer it is what it is with out a doubt and i have only myself to blame for it as i have always loved being out in the sun and have sunbathed endlessly. we all listen to what sun damage can do to you but like anything else you dont think it will happen to you , until it does ,

my doctor says i will have to have a tan out of the bottle from now on no more direct sun for me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,889
    • Most Online (within 30 mins)
      7,748
    glutenhater11
    Newest Member
    glutenhater11
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ceekay
      Gluten free beer ?

      By Ceekay · Posted

      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      Advice while waiting for testing

      By Scott Adams · Posted

      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      This topic has come up before on this forum and has been researched. No GMO wheat, barley and rye are commercially available in the USA. Any modifications are from hybridization, not laboratory genetic modification. Better toleration of wheat, barley and rye products in other countries is thought to be due to use of heirloom varieties of these cereal grains as opposed to the hybrids used in the USA which contain much larger amounts of gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.