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In Pain..have A Question?


1GreysFan

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1GreysFan Rookie

Happy Easter everyone!

Ok so today makes 17 days of me being glutin as well as dairy free. I slept in this morning and so didn't eat breakfast. I then had errands to run.

For dinner I met my mom and sister at a mexican restaurant when I had a chicken fajita salad. I was just chicken, tomatoes, lettuce and carrots. I also had some corn chips and salsa. Now I'm having severe stomach pains and some gas. Does this sound like I could have eaten something bad? What can I do to make this go away?

Thanks so much for your input.

Melissa


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moldlady Rookie

Just a guess but it could be something in the salsa????

ML

celiacmegan Newbie

Also it could be that the restaurant fried the corn chips in the same fryer that they fried something with gluten. That happened to me once at a Mexican restaurant and I was sure I was going to die. Next time you'd better ask where they make the chips.

cmom Contributor

Yes, I found out the hard way that they fry their corn chips in the same fryer as battered items. Also those who serve fried corn, fried anything...same fryer. That could be it!!!! :(

kbtoyssni Contributor

Plus there's always the risk of CC in a restaurant.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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