Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long For The Gluten Reaction To Show Up?


MELINE

Recommended Posts

MELINE Enthusiast

Question......If I get glutened today is it possible that the reaction comes in 2,3 or more days?????? I had 4 slices of bread this morning and I am still feeling ok (biopsy on Friday and doc said I should have some gluten for the biopsy to be positive, yes I know that it is not going to change anything but just in case...) I am gluten sensitive, it is for sure, I just do not get it why today nothing happened.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I never know when my reaction will come. I could run to the bathroom with severe D within twenty minutes, or it could suddenly hit me the next day or the day after.

So, just because you haven't reacted yet, you likely still will. On the other hand, some people stop having obvious reactions once they are healed. I guess you'll soon find out which category you fall in!

MELINE Enthusiast

thank you ursa...I guess I haven't healed yet cause 3 weeks earlier eczema started almost right away....But now nothing like this....any way

Last question: the only wierd thing I had today, 2 hours after eating bread, was a strong pain in the chest that felt like it was my heart. It was a pain I remember well from my gluten period. Is that a symptom????

Thanks again ursa...

jerseyangel Proficient
Last question: the only wierd thing I had today, 2 hours after eating bread, was a strong pain in the chest that felt like it was my heart. It was a pain I remember well from my gluten period. Is that a symptom????

I get symptoms after about 2 hours--that hasn't changed in almost 3 years. The actual symptoms that I get have changed, though. The pain in your chest is most likely reflux--I had that so bad at one point that I went through cardiac testing to make sure it wasn't my heart.

It's not unusual for some people's symptoms to hit a day or two later--or in as little as a few minutes. It's so individual.

MELINE Enthusiast
The pain in your chest is most likely reflux--I had that so bad at one point that I went through cardiac testing to make sure it wasn't my heart.

......so it is a symptom??? I guess you say it actually is....And yes today I thought I had a heart attack.....

jerseyangel Proficient
......so it is a symptom??? I guess you say it actually is....And yes today I thought I had a heart attack.....

Yes, reflux is most definately a symptom :)

fedora Enthusiast

HI,

I would like to add something about the chest pain. I had a horrible one last night, but mine is not reflux. Though I believe for many it is. I have skeletal issues. My bones go out of place all the time. I joke that I wish I was married to a chiropractor. I do believe this is glutten intolarant related. When I get my terrible chest pains, it is because my breast plate is out of place. It hurts in the middle of my chest, in my back, and pulls on my lower ribs. The only relief I get is to lay down straight on my back and push on the upper part of my breast plate. With reflux, laying down makes it worse. For me sitting up makes my pain worse.

Just wanted to add another option.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast
HI,

I would like to add something about the chest pain. I had a horrible one last night, but mine is not reflux. Though I believe for many it is. I have skeletal issues. My bones go out of place all the time. I joke that I wish I was married to a chiropractor. I do believe this is glutten intolarant related. When I get my terrible chest pains, it is because my breast plate is out of place. It hurts in the middle of my chest, in my back, and pulls on my lower ribs. The only relief I get is to lay down straight on my back and push on the upper part of my breast plate. With reflux, laying down makes it worse. For me sitting up makes my pain worse.

Just wanted to add another option.

Really? Is that thing happening????? Sounds painful.....I hope you don't get it very often....

Options are more than welcome!!! But I guess what you describing is not my case....Just guessing...

MELINE Enthusiast
Yes, reflux is most definately a symptom :)

sorry sorry sorry sorry if I've tired you.....Pls can you explain me the meaning of "most definately" ??? It means "sure 110%" or it means "very possible"?

sorry....not my natal language...

jerseyangel Proficient
sorry sorry sorry sorry if I've tired you.....Pls can you explain me the meaning of "most definately" ??? It means "sure 110%" or it means "very possible"?

sorry....not my natal language...

:D I don't mind at all. When I say "most definately" I mean that yes--reflux is a symptom of a gluten reaction. It's also a symptom of Celiac--many people have it before being diagnosed and it improves when on the gluten free diet.

The pain in your chest is probably from either acid from your stomach or gas that shoots upward. I tend to have gas with a gluten reaction that shoots upward--I get pain and pressure in the center of my chest and also pressure at the base of my throat.

Sorry I wasn't more clear before, if there's anything else you would like to ask, please do :)

MELINE Enthusiast
:D I don't mind at all. When I say "most definately" I mean that yes--reflux is a symptom of a gluten reaction. It's also a symptom of Celiac--many people have it before being diagnosed and it improves when on the gluten free diet.

The pain in your chest is probably from either acid from your stomach or gas that shoots upward. I tend to have gas with a gluten reaction that shoots upward--I get pain and pressure in the center of my chest and also pressure at the base of my throat.

Sorry I wasn't more clear before, if there's anything else you would like to ask, please do :)

!!!!! :D You are helping me a lot! Now I understand completely but thank you for making me feel free to ask if there was anything not clear!

The pain in the chest you are describing is exactly what I felt today. And that pressure at the base of the throat....Oh yes it is horrible....so that is a symptom...Good to know I pobably not gonna have my first heart attack......

MDRB Explorer

My doctor told me that I would need to have at least one gluten filled meal every day for a month before the biopsy otherwise I could get an false negative. Even though a lot of people get stomach symptoms within minutes of ingesting gluten, it takes weeks for the damage to the villi to become bad enough to be noticeable on a biopsy. Had you been gluten free for long before this?

gfp Enthusiast
!!!!! :D You are helping me a lot! Now I understand completely but thank you for making me feel free to ask if there was anything not clear!

The pain in the chest you are describing is exactly what I felt today. And that pressure at the base of the throat....Oh yes it is horrible....so that is a symptom...Good to know I pobably not gonna have my first heart attack......

Its also quite treatable (short term).

You possibly keep coughing too (or clearing your throat). Pre-diagnosis I had this so bad I was breathing in so much stomach acid it paralysed my lungs.

Omneparazole will stop the acid (short term) and make sure your bed is elevated at the head end (A few thick books under the matress etc.)

Acid reflux can feel like a heart attack ...the good news is its not. If you can get the omneparazole then it will relieve the stomach and this will give you some rest.

MELINE Enthusiast
My doctor told me that I would need to have at least one gluten filled meal every day for a month before the biopsy otherwise I could get an false negative. Even though a lot of people get stomach symptoms within minutes of ingesting gluten, it takes weeks for the damage to the villi to become bad enough to be noticeable on a biopsy. Had you been gluten free for long before this?

At first I didn't know that and then I've started a topic in the forum about my biopsy and everyone kept telling me that after 4 months of gluten-free diet there is no way I could ever have a positive biopsy with just 2 days of some gluten. I told my doc and he said he believes that even with 2 days he is going to see it......I trust the forum's experience but I had some gluten today and yesterday just in case and that's all and I am going to have the biopsy not to see if I am a celiac but to find out why I keep feeling nausea and having pain. He said that even with negative biopsy he is definately sure I am a celiac because of the eczema and the other extremely severe symptoms that immediately or within few days disappear when I go gluten-free.

So you are confirming once more what everybody told me and I thank you for doing that. :)

MELINE Enthusiast
Its also quite treatable (short term).

You possibly keep coughing too (or clearing your throat). Pre-diagnosis I had this so bad I was breathing in so much stomach acid it paralysed my lungs.

Omneparazole will stop the acid (short term) and make sure your bed is elevated at the head end (A few thick books under the matress etc.)

Acid reflux can feel like a heart attack ...the good news is its not. If you can get the omneparazole then it will relieve the stomach and this will give you some rest.

Thanks for the treating advise..I am ok now but I will find some omneparazole to have in my pharmacy box just in case.And yes yes yes I was coughing all day long yesterday..... :rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...