Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Don't Know What Else To Do


hapy4dolphins

Recommended Posts

hapy4dolphins Contributor

HI,

My son, now 4, has been dealing with chronic constipation for over 2 years. So much that he has a bit of prolapsed rectum happening and he more often then not, bleed with a bowel movement. The rast test came back neg, and his celiac test came back neg again (he's been tested 3 times in the last two years). So, we have taken out dairy and most gluten, even though hubby isn't sure he needs that. The gastro doc said to decrease dairy, so that's where I got that idea from. What else can we do?

Nicole


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

It wouldn't surprise me if he's celiac and has negative tests. They notorious for false negatives in young kids. Why not try a 100% gluten-free diet? You probably won't see much difference with a mostly-gluten-free diet so maybe try fully committing to it.

Lactose is digested by lactase which is produced by the tips of the villi. If the villi are damaged, they won't produce lactase and you won't be able to digest dairy. That's why so many celiacs can't tolerate dairy at first. After healing, many can add it back into the diet with no problems.

Nic Collaborator

My son is a celiac and is dairy intolerant. I just want to point out that when constipation is the symptom, as with my son, it takes a little longer to see good results. Don't forget, you don't get backed up in a day. It was weeks before saw improvement. And now if he gets glutened or dairy, he gets a stomach ache but the constipation can show up over a week later. So don't get discourage too quickly if you try the diet 100%, give it about a month.

Nicole

mamaloca2 Apprentice

Did his docs put him on a stool softener of any kind? My daughters gastro specialist put her on Miralax (it's over the counter.) It has no flavor and helped tremendously. We had to use it every day for a few months so that her bowel could get back to normal. You really need to keep his stool very soft for a long time since it sounds like his have been traumatized.

I also want you to know that she tested neg. for Celiac disease but I tried gluten-free anyway. In a week she greatly improved, and within a month, she was completely normal again. Now whenever she gets gluten, she is constipated and very emotional for a few weeks.

Hope you find the problem soon.

Stacy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748

    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.