Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie, Longtime Lurker


GFJo

Recommended Posts

GFJo Newbie

Hello fellow gluten-free folk!!

It's taken me 10 months but I've finally summoned the courage to join in. I've never posted anywhere online before and I feel ridiculously nervous. I'm not used to putting myself out there.

My gluten-free journey started last summer when I finally took my doctor's advice (seems I have one of the good docs). She'd suggested to me numerous times to try a gluten-free diet, but I was sure that wasn't the problem. Until I was so sick I didn't know what else to do. So I tried the diet, er new way of life, and to my utter amazement I got better, within days. And there's been no looking back.

I've been through the doubt, and anger, and depression, and I think I've finally reached acceptance. I'm still learning the finer details of hidden ingredients, and I seem to slip up more than I should. My symptoms seem to be pretty classic for Celiac (although no official diagnosis): bloating, gas, diarrhea, excessively tired, then angry, and my face will almost instantly break out. I think I may also have a wheat allergy because I get itchy if I touch wheat, and once I got a crumb on my lower eyelid (don't ask me how!) and my eye swelled up for almost 24 hours.

I live in a rural area and I have yet to meet anyone else gluten-free. Although I know they must be out there because the Kinnikinik (spelling?) pizza crusts are always selling out! There are no support groups in my area, and I'm getting a little tired of not having anyone to talk to.

I've been reading these boards for months and it has been a huge help, if not a lifesaver, for me. Thank you all for helping me through a tough time. I hope I can now return the favor to newcomers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Hi Johanna, I am glad you have decided to finally let us know you are around! I am sure we can all help each other.

Since you realize that there must be other gluten intolerant people around, why don't you put an add in your local paper, asking if there is an interest in forming a support group? Do you have a health food store nearby? You could ask them if they could put up an ad for you, asking other people with gluten intolerance to call you.

Or you could even put a notice up in the store you buy your pizza crust in. Since others are buying those as well, they might get in touch with you that way.

Also, maybe your doctor (a rare specimen indeed, I am glad you have an excellent doctor) knows other people with gluten intolerance. And while she can't give you other people's names, she can ask those people to call you. Or maybe you could put a notice up in the waiting room, with your doctor's permission.

jerseyangel Proficient

Hi Jo :D

Welcome to the board! I'm glad you decided to join us.

happygirl Collaborator

Welcome to the board! So happy you decided to join. Do you feel like you "know" many of the members already?

Please chime in----as you can see, there are always so many who are in need of help. Not everyone knows every answer, but everybody chipping in where they can makes a huge difference to that *one* person that needs help....

larry mac Enthusiast

Add my welcome to the list GFJo. May I call you GFJo? You are the best kind of newbe. One that has been lurking for almost a year, is already up on the plateau of the learning curve and so won't ask a lot of unresearched questions.

BTW, don't believe anything you've heard about me. I really am a nice guy. :D

best regards, lm

lizard00 Enthusiast

Welcome Jo!!!

Glad you decided to come out of the shadows and say hi! I look forward to hearing your experiences as another member of the gluten-free club! B):D

ravenwoodglass Mentor

Welcome. I am glad you decided to join us. There is a wealth of info here and lots of very supportive folks who know what you have been going through. Glad you found us.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elye Community Regular

Hi, Jo! A big welcome. Indeed, the more the merrier. If you stick around long enough, you really will begin to feel like you're in a big family, sluggin' it out together.... :)

curlyfries Contributor

Hi Jo! I did the same thing, lurking in the shadows, but only for a couple months. And this was also my first time posting online, anywhere. (I had to get my daughter's help :P ) During that two months I googled the heck out of this forum :wacko: I can't believe I have only been a member for just a little over 2 months! I also can't believe that in that time I have posted 70 times :o . ( I'm really not that talkative :ph34r: ) I have also discovered emoticons! Can you tell :lol: ?

Anyway, you'll feel like family in no time!!!

Lisa

curlyfries Contributor

Oh wow!! I was wrong--- it hasn't even been 2 months :rolleyes: !!!

Lisa

GFJo Newbie

Thanks everyone for the warm welcome!

Ursa Major--I have been thinking a lot about starting a support group. Thank you for your ideas on how to reach out to others.

larry mac--I'll try not to ask any stupid questions! ;)

I'm really glad that I joined in!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,065
    • Most Online (within 30 mins)
      7,748

    Hoops
    Newest Member
    Hoops
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.