Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Be "intolerant" To Dairy Even If You Don't Have Any Gi Symptoms?

CuriousOne

Recommended Posts

CuriousOne Apprentice
CuriousOne
Posted

I'm not sure if I have issues with dairy. I think I may, but not sure. If you had issues with dairy would it be obvious??

I started eating ice cream about a month ago, and noticed I digested it fine. So I started eating it more and more. Recenlty it got to the point I had to have it everyday...and usually I would have 1 quart a day at a time. Sometimes 1.75 quarts...

But it was so good. And it was my only source of carbs (the rest of the day I would just eat good meat/veggies...some fruit)

But recently I was wondering if maybe I should really cut it out for 2 weeks to see if it makes a different in my general mood?

I don't feel depressed...but I think I struggle with anxiety...wonder if it could somehow mess with that. I seem to remember times in my life when I was against all dairy (for whatever reason) and I was doing better...

But is it so insidious that it affects you even without you knowing it? I seriously felt huge withdrawals today from ice cream....HUGE. I find that odd.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aikiducky Apprentice
aikiducky
Posted

Withdrawals would be a big clue... ;) Yeah if you have an idea that dairy affects your mood, and especially that you seem to be a bit addicted to it, I think it would be a good idea to cut it out at least for a trial period.

Is there a special reason why you're not eating any carbs? I'd think it would be more sensible to eat a small amount of carbs in the form of a gluten free grain or for example sweet potatoes or something, instead of loading up on ice cream full with sugar and other unnecessary stuff?

Pauliina

feelingbetter Rookie
feelingbetter
Posted

I have been gluten-free for 2 months and 1 month of dairy. I tested positive through enterolab for both. I went through the worst withdrawal from dairy. I think I am still going through it. I have had frequent migraines, headaches, crippling fatigue, irritability and some ear canal pain.

However when I gave up dairy I finally now have nice daily bowel movements. :)

Nancym Enthusiast
Nancym
Posted

Some people I've talked to have reported depression or psychological things as side-effects of dairy. For me it is sinus and muscle cramping mostly, secondarily constipation.

So yeah, give it up for a couple of weeks and see what happens. Hopefully the withdrawal symptoms won't be too awful.

I'm sure I don't have to tell you though... that much ice cream is *not* a good thing. Too much sugar for one and you're probably not getting enough other food with nutrients you need. Generally if I get compulsive about a food I have to eliminate it from my diet.

Joni63 Collaborator
Joni63
Posted

I'm glad you brought this up CuriousOne, I've been wondering about it myself.

It sounds like milk is bothering you. I think everyone's symptoms are different.

I get bloated, but no other symptoms and feel extremely fatigued. My upper eyelids also get puffy when I have these symptoms and I just plain feel bad.

I have narrowed it down to milk or chocolate, and possibly caffeine. I'm not sure how to narrow it down from here. I guess I have to test milk alone, then coffee, and if none of those cause my problems assume it's chocolate. You don't know how I hate the thought of that!!! It's what I crave so it is probably the problem. OUCH!

kbtoyssni Contributor
kbtoyssni
Posted

It might also be that it takes you some time to feel the affects. If I get a tiny amount of gluten, I often don't feel anything. But a while back I was accidentally eating a CCed product and after a few weeks started to feel really yucky. Also, if it's a lactose problem, you may be able to handle a small amount but can't digest the larger amounts.

MaryJones2 Enthusiast
MaryJones2
Posted

A small trace of dairy makes me extremely slow (mentally and physically) for a few days. I have quite a few issues with dairy but would not really say any of them are digestive. The lack of mental clarity thing, or lack thereof, drives me crazy and is one of my biggest complaints.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AliB Enthusiast
AliB
Posted

If you have become that addicted to the ice-cream then you definitely have a problem, and I would say that it may well be to do with Candida.

The sugar and carbohydrate feeds it and it actually makes you crave the foods it feeds on. Basically it is a parasite. The more you feed it the bigger it grows.

I find that with carbs. I was reading the other day that eating carbs makes us crave more. If you don't eat them, after a few days you don't want them.

If you are eating fruit and vegetables, you will get plenty of carbs from those - good carbs that will give your body nutrition. You may be able to cope with a little carb, but as soon as you get the craving that's an indicator that you have had too much already.

You know these really obese people that cannot stop eating? They have the same problem. Their craving never switches off. On top of that because they are constantly eating 'empty' calories, their bodies are also craving nutrients they aren't getting so that keeps the need for food constantly going.

If you are concerned about getting enough calcium - apparently there is more calcium in green veg like broccoli and kale than in milk, so make sure you get plenty of fresh green veg and you should be well supplied. In some areas, there is a good supply in the water too.

ShayFL Enthusiast
ShayFL
Posted

Could be plain ol sugar addiction too. Sugar is EXTREMELY addictive for me. I have cut it out off and on throughout my 39 years. The longest stretch was 5 years with no sugar of any kind except what is found in fruit. And then just a little bite of hot fudge sundae....and then a few more bites next time. Then my own sundae. Then I am buying ice cream and fudge sauce for home. Then cookies. Then cake. Then scones. Then...then...then...and I wake up feeling like total crap and I crave it and get all nervous/anxiety all day. Then I realize that I "fell off the wagon". So I cut them again and it is 4 days of withdrawal hell.

Yup....could be dairy....or the most destructive drug known to man.....sugar.

MELINE Enthusiast
MELINE
Posted
I'm not sure if I have issues with dairy. I think I may, but not sure. If you had issues with dairy would it be obvious??

I started eating ice cream about a month ago, and noticed I digested it fine. So I started eating it more and more. Recenlty it got to the point I had to have it everyday...and usually I would have 1 quart a day at a time. Sometimes 1.75 quarts...

But it was so good. And it was my only source of carbs (the rest of the day I would just eat good meat/veggies...some fruit)

But recently I was wondering if maybe I should really cut it out for 2 weeks to see if it makes a different in my general mood?

I don't feel depressed...but I think I struggle with anxiety...wonder if it could somehow mess with that. I seem to remember times in my life when I was against all dairy (for whatever reason) and I was doing better...

But is it so insidious that it affects you even without you knowing it? I seriously felt huge withdrawals today from ice cream....HUGE. I find that odd.

Hello!!

well you know that if you consume sugar your mood changes. For the first hour you feell really up and full of energy and then your sugar levels fall down extremely and then you start feeling depressed and loss of energy.

That is the whole thing about sugar and mood changes.....

If you had any dairy issues I guess you would feel severe abdominal pain right after consuming it, bloating and things like that. .....but of course I am not a doctor....just from my own lactose intolerance experience......

kisses

meline

CuriousOne Apprentice
CuriousOne
Posted
  • Author

Thx everyone :)

I've decided to cut it out. Today is my first day. I'll report back if I notice anything neat... i was craving it a bit today...but I KNOW tomorrow will bring the biggest cravings, and i'll probably be somewhere on the internet looking for logical rationalizations on why its okay. Right now I'm cutting it out mainly because of the estrogens and stuff. But I think I may have other issues with it. We'll see...

CuriousOne Apprentice
CuriousOne
Posted
  • Author

I think dairy makes me very zoned out from the world. I guess...like it makes me not care or be aware so much of other's feelings.

Maybe if I have a leaky gut I absorb way more of the opiate-type chemicals than most people? I don't know. I do know though, that when my sister takes Oxycotin (sp) (for pain) I notice she becomes less aware of other people's feelings...

And I wonder if that is how I get... hmmm

We shall see... I'm kinda hoping a fog will sorta lift.

Ursa Major Collaborator
Ursa Major
Posted

Dairy can cause all kinds of symptoms, just like gluten. My youngest daughter and two of my granddaughters get awful eczema from it. One of my husband's cousins gets extreme depression if she eats dairy! I get gastro symptoms, that is so much easier to figure out, as that is what most people expect, and it is fairly obvious.

CuriousOne Apprentice
CuriousOne
Posted
  • Author

Well strange... you know I never did have GI symptoms with gluten (or so I can remember)...

But it wasn't until I really tried cutting it out, that I started having GI symptoms..

Today is my first day pretty much away from dairy, and I have to say... it seems like everything seems more real to me. Like, I was watching a movie and it was so rich...the emotions/feelings... watching Across the Universe. I felt like I could relate to everything... fear, sadness, happiness, anticipation...

I also noticed more energy today...like physical.

So now I'm wondering if its just true that for some reason I have become addicted to the casomorphines or something...

I'll keep reporting more. In some ways, I feel like a fog is sorta clearing...but I'm not sure if thats the yerba mate or not...although I haven't had much of the yerba, and I had it before when eating dairy so... Anyways this new experience of life is interesting...

  • 6 months later...
mr. moore Explorer
mr. moore
Posted

i don't mean to bring up old topics, but couldn't the topic creator use lactaid tablets?

ShayFL Enthusiast
ShayFL
Posted

Mr. Moore Lactose is only one problem with dairy. People who are lactose intolerant lack an enzyme to break down the sugar lactose. And there WILL be GI issues with lactose intolerance. This poster did not have GI issues with dairy, so was more likely responding to Casein which is a milk protein that MANY people cannot tolerate. Much like gluten Casein is opiate-like and can fit into our opioid receptors in our brains (thus causing addiction), not to mention other damage in the body (autoimmunity). I go back and forth on this between finding it irritating or intriguing. If you are so inclined, do some research on Casein. The only cure is to avoid dairy.

ang1e0251 Contributor
ang1e0251
Posted

Just to explain, those who are lactose intolerant also respond differently to lactose. It is the same with those of us that can't tolerate gluten, each individual responds differently. My daughter can use Lactaid with small amounts of dairy. For me, it doesn't help. I still react. Of course, if you're reacting to casein, Shay is correct, only going dairy free for life will do it.

  • 5 months later...
vickysmores Newbie
vickysmores
Posted
I have been gluten-free for 2 months and 1 month of dairy. I tested positive through enterolab for both. I went through the worst withdrawal from dairy. I think I am still going through it. I have had frequent migraines, headaches, crippling fatigue, irritability and some ear canal pain.

However when I gave up dairy I finally now have nice daily bowel movements. :)

those symptoms you just described are what i feel when i DO eat dairy. i also get really bad sinus congestion. i have ZERO digestive problems with dairy, just this stuff, sinuses and itchy skin. dairy sucks and if you think about, it

nasalady Contributor
nasalady
Posted
tofutti ice cream btw it delicious and safe

Unfortunately not safe for those who have to avoid soy! :(

RebeccaMarie Newbie
RebeccaMarie
Posted

Hi, CuriousOne,

About your increased craving for ice cream, please first check to see if there is HIGH FRUCTOSE CORN SYRUP in it. I noticed that I was hungrier AFTER eatng MOTT'S brand applesauce than BEFORE I ate it. HIGH FRUCTOSE CORN SYRUP (HFCS) tricks the brain convincing you that you want more. I suspect that that is the reason soda-pop makers are now loaing their products with HFCS. Now I eat an all-natural, no-additive applesauce a I feel so much better! Good luck to you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.