Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mad Mother?

lynne1978

By lynne1978
in Doctors

Recommended Posts

lynne1978 Rookie
lynne1978
Posted

Here's a good one...

I am being tested at the moment, my son was taken off wheat as a baby due to vomiting, he now is back on wheat and is showing classic symptoms, black eyes and yellow skin after bread/cakes, stomach aches, vomiting, no attention, cant sit still, etc etc.

I took him to the Dr today, who told me he is on the 10th percentile for weight and height, so he is normal, inattention and intability to sit still is nothing to do with coeliacs, nor is bad breath, or irritability, and he doesnt look like a coeliac so he isnt......and even if I am dx as a coeliac it wouldnt affect him anyway as there wold only be a 1:10 chance he might have it. He even told me I had looked too much and should read anything about it as I would get it wrong and confuse myself and that I am just being paranoid!!!!!

What do people make of that?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dandelionmom Enthusiast
dandelionmom
Posted

Sounds like you need a new doctor to me. It is my understanding that all first degree relatives of a person with celiac disease need to be tested. It is also not acceptable to speak to a patient or an underaged patient's mother like that, in my opinion.

Breila Explorer
Breila
Posted

Yup, I was told I was paranoid when I told my DS's ped that I thought he had classic celiac symptoms when he was 4 because he was on the growth charts. :rolleyes: Trust your mother's instincts, it took us 3 years to get the diagnosis because I doubted myself, don't do that.

Ursa Major Collaborator
Ursa Major
Posted

Lynne, your doctor is an arrogant, know-it-all idiot. Your son sure sounds like he has celiac disease to me!

Insist that he be tested, and if your doctor won't do it, switch doctors. But regardless of the test results, your son needs to be on a gluten-free diet, probably no dairy, either (or soy). He sounds like he is already sicker than you realize.

Darn210 Enthusiast
Darn210
Posted
Here's a good one...

I am being tested at the moment, my son was taken off wheat as a baby due to vomiting, he now is back on wheat and is showing classic symptoms, black eyes and yellow skin after bread/cakes, stomach aches, vomiting, no attention, cant sit still, etc etc.

I took him to the Dr today, who told me he is on the 10th percentile for weight and height, so he is normal, inattention and intability to sit still is nothing to do with coeliacs, nor is bad breath, or irritability, and he doesnt look like a coeliac so he isnt......and even if I am dx as a coeliac it wouldnt affect him anyway as there wold only be a 1:10 chance he might have it. He even told me I had looked too much and should read anything about it as I would get it wrong and confuse myself and that I am just being paranoid!!!!!

What do people make of that?

My daughter was higher than that on the growth charts. I was also told by the allergist (after her positive diagnosis by the GI) that we should challenge her because she didn't look like a celiac (Oh Brother!!!). I vote for a new doctor!! I assume the doctor who is testing you is not the same doctor . . . if so, I would ask your doctor for a test for your son.

lynne1978 Rookie
lynne1978
Posted
  • Author
I assume the doctor who is testing you is not the same doctor . . . if so, I would ask your doctor for a test for your son.

No its not the same doctor who referred me, although I have had to fight to get any tests for myself anyway - the docs seem to be too busy and think ''well, IBS can be extremely painful'' is going to solve everything!!! I have another appt for him for thursday and hope to get a blood test done then. It makes you just want to bang your head against a brick wall! why arent they taught this at med school? i dont understand how they can know so little about such a serious problem.

Ursa Major Collaborator
Ursa Major
Posted
It makes you just want to bang your head against a brick wall! why arent they taught this at med school? i dont understand how they can know so little about such a serious problem.

One good explanation is, that the med schools are in the pockets of the big pharmaceutical companies. And the pharmaceutical companies want you to use IBS medications, rather than changing your diet, which won't make them any money. So, they make sure doctors are only taught how to treat symptoms, rather than finding the cause of the 'IBS'.

Big pharma couldn't care less about healing people and helping, they only care about money. Even if their 'medicine' will kill people.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


home-based-mom Contributor
home-based-mom
Posted

That doctor is grossly under-informed and too arrogant to realize it. Give him links to and/or print out info from respected scientific websites. Let him know that you are trusting your maternal instincts when it comes to the best interests of your child, and you would appreciate it if he treated you with the dignity and respect you are due as an adult, rather than as an ignorant idiot.

Start exploring here:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Juliebove Rising Star
Juliebove
Posted

It could also be a gluten allergy. My daughter has that. The school thought she had ADHD, but after removing the gluten and other allergies from her diet it was like I got a different girl!

mommida Enthusiast
mommida
Posted

The others have all ready posted about the obvious errors that doctor has made regarding Celiac/ intolerance and or wheat or gluten allergy.

The gall of a doctor who looks at a patient (for what a whole 15 minutes?) to disregard what the parent, constant caregiver, has to say about symptoms is absurd! You may not have a medical degree, BUT YOU KNOW YOUR CHILD BETTER THAN THE DOCTOR.

Get a new doctor that is better informed ~ because a doctor this ignorant IS POTENTIALLY DANGEROUS. After your child's diagnoses, if you feel you need to send a copy of the diagnoses record to show what a diagnosed Celiac, gluten intolerant, or wheat/gluten allergic child looks like. (To prove there is no "look" to a person suffering from these disorders.) That's your decision.

You Go Girl!

Dyan Rookie
Dyan
Posted

Having a doctor misDX is one thing, okay all doctors make mistakes, but to be so flat out rude to you is not acceptable. EVERYONE should keep themselves informed of everything, especially of your health.

AliB Enthusiast
AliB
Posted

University of Chicago Celiac Center states that 35% of Americans carry the Celiac gene. That's 1 in 3. Well, that's at least you and your son catered for............

If you are not happy demand a gene panel test - and a new doctor............

lynne1978 Rookie
lynne1978
Posted
  • Author
University of Chicago Celiac Center states that 35% of Americans carry the Celiac gene. That's 1 in 3. Well, that's at least you and your son catered for............

If you are not happy demand a gene panel test - and a new doctor............

LOL thanks! My doctor also actually told me there was no test that could determine a gene for coeliacs... when I told him I had read about it he then said oh well if there was it'll be too expensive to test anyway...!!

Ursa Major Collaborator
Ursa Major
Posted
LOL thanks! My doctor also actually told me there was no test that could determine a gene for coeliacs... when I told him I had read about it he then said oh well if there was it'll be too expensive to test anyway...!!

Your doctor obviously doesn't know what he is talking about. If he won't order the gene test, you can get it done through other labs, including Enterolab. I believe that just the gene test is around $130.00.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,539
    • Most Online (within 30 mins)
      7,748
    antoniotorres
    Newest Member
    antoniotorres
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.