Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Is He...?

FoxersArtist

Recommended Posts

FoxersArtist Contributor
FoxersArtist
Posted

Because this almost 2 year old baby is a totally different child! We are just blown away by how beautiful Gabe has become in the last few weeks. Today he let me hold him while he was waking up from a nap. He rested his head on my shoulder and I melted because he was so busy pushing me away before that he had never just rested in my arms. It felt good to hold him and I know that he was enjoying it too. Later today Gabe helped mommy with some laundry and I was totally impressed with how much he understood. He never helps me with anything and usually just runs away when I try to get him interested in what I'm doing. He actually unloaded the whole washer for me and when all the clothes were in the dryer he shut the washer door saying "all done!" Then he helped me carry all of the bed sheets to the washer and loaded them in, all by himself! Ahhh! I'm just beaming! He even helped me gather together all of his little sisters toys and we put them in a little pile so she can have them when she wakes up from her nap. I just had to share the amazing progress I have had with him today and am still pinching myself, wondering how a little thing like wheat had taken all of this away from us before.

-Anna

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted

Fantastic Anna!!!! :) :)

It's great to read another success story. :)

DingoGirl Enthusiast
DingoGirl
Posted

Hi Anna,

this is such good news, and you're finding out what most of us know, gluten (an opioid polypeptide, along w/ casein) is very injurious to the brains of those who are susceptible.....it's amazing what its removal can do to personalities, and sad how something so seemingly benign as wheat can ruin lives. :(

I am quite sure that, in doing this, you have changed the course of Gabe's life. :)

Let us know how things progress!

:)

Rachel--24 Collaborator
Rachel--24
Posted

Reading your post totally made me smile. :)

I'm very happy for all of you....and he is such a cutie!!

lizard00 Enthusiast
lizard00
Posted

I am a little teary eyed! :rolleyes:

I have a 3 yr old boy and there is nothing better than the snuggles and having him trail me around the house "helping". I am so happy for you and as another poster said, you have truly changed the course of his life for the better. All by changing his diet.

taweavmo3 Enthusiast
taweavmo3
Posted

YAY!!!!!!! Your post gave me chills. Even though it's been a while, I still remember how remarkable it was seeing my little girl's personality finally come through after two years of pain. I wish you many more good days ahead!

DingoGirl Enthusiast
DingoGirl
Posted

We all rejoice when the lives of the little ones are changed with gluten removal. :) And, so many of us wish it could have happened sooner to us! (I was 44 at the time of diagnosis - my brain has improved significantly, but is screwed up beyond repair, in so many ways...... )

p.s. and OMG he is so cute!!!!!!!! :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Anna, I am so happy for you, I am sitting here crying! That is just amazing. What a terrible loss it would have been if you wouldn't have figured it out and put him on the gluten-free diet.

I wonder what would have happened if my mother would have had a clue with me. She told me (in a resentful voice) when she was still alive many years ago, that I refused to be held or touched from the time I was five. By then I definitely had the symptoms of celiac disease, and nobody figured it out.

As a result of me being in my own little world and refusing to be affectionate except with my baby brothers, she stopped liking me and started abusing me emotionally.

Gabe will have a much better life as a result of being gluten-free at such a young age. I am glad for him and your whole family. And what a sweety he is!

FoxersArtist Contributor
FoxersArtist
Posted
  • Author

I really sit and wonder how many children and parents go through this. I can be perfectly honest in saying that I was sooo hurt by Gabe seeming to reject me that I just didn't know what to do. I went through rollercoasters of emotion andspent lots of time building myself up, trying to get close to him again and again only to be crushed every time. I can certainly see where some parents might resort to abuse in that situation (not that it is ever justified or right). Being rejected by your child and having no idea why is the most heartbreaking thing for both parent and child. I'm so glad Gabe is too young to really know what's going on. He wont remember the disconnected relationship we have had.

Also, it's funny that you mention your bond with your brothers. Gabe bonded with my mother and my husbands dad but he pushed everyone else away. Why the bond with very select individuals? It's sooo confusing to me.

-Anna

Anna, I am so happy for you, I am sitting here crying! That is just amazing. What a terrible loss it would have been if you wouldn't have figured it out and put him on the gluten-free diet.

I wonder what would have happened if my mother would have had a clue with me. She told me (in a resentful voice) when she was still alive many years ago, that I refused to be held or touched from the time I was five. By then I definitely had the symptoms of celiac disease, and nobody figured it out.

As a result of me being in my own little world and refusing to be affectionate except with my baby brothers, she stopped liking me and started abusing me emotionally.

Gabe will have a much better life as a result of being gluten-free at such a young age. I am glad for him and your whole family. And what a sweety he is!

cyberprof Enthusiast
cyberprof
Posted

Anna, I'm teary-eyed too.

Gabe is lucky to have you and you, of course, are blessed to have him. May you all have joyful lives.

~Laura

Joni63 Collaborator
Joni63
Posted

Anna, I am so thrilled for you and Gabe. It's so amazing to me that gluten can cause so many problems we never would have thought of.

Your post hit home for me because my mom always said I pushed her away and squirmed and was never affectionate. I can't wait to tell her now that it must have been the gluten. She is 70 and I am 44. All these years she must have thought I was rejecting her...unbelievable!

I just had my 8 year old tested via bloodwork today and I'm reading this forum for the first time trying to figure out if some of his problems can be gluten related. Yours is the first I've read and it is just so touching.

Good luck to you and Gabe and may you have many, many more days like this one!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748
    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.