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Dna Tests And/or Food Intolerance Tests

jjc

By jjc
in Coping with Celiac Disease

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jjc Contributor
jjc
Posted

I've been reading about DNA tests for celiac, using saliva or stool, and also about food intolerance or allergy tests. Since only one of my daughter's tests came back elevated, the doctor is hesitant to diagnose unless she gets the biopsy (which we aren't going to undertake right now - I can't gluten my daughter again and watch her be sick for 2 months. She says NO WAY!)

We're considering the DNA or food intolerance tests. I've read about some companies like Kimball and Entero, but how would you get a food intolerance test? And, have any of you found these tests to be positive when the bloodwork is mostly negative? Thanks - you guys are great on here!

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Rachel--24 Collaborator
Rachel--24
Posted
I've read about some companies like Kimball and Entero, but how would you get a food intolerance test? And, have any of you found these tests to be positive when the bloodwork is mostly negative?

Food intolerance testing cannot diagnose Celiac Disease. If you are looking for a Celiac diagnosis you would have to go with the bloodwork/biopsy.

Which antibodies were elevated in her testing? Some are more specific for Celiac than others. If this Dr. wont diagnose her without the biopsy maybe someone else will. Whether she gets a formal diagnosis or not it sounds like she will remain gluten free and it sounds like she is doing well on the diet.

Do you really need the formal diagnosis? None of the food intolerance tests will give you that. Enterolab cannot diagnose Celiac....they can only let you know whether or not your daughter is sensitive to gluten....and it does seem like you already know that she is.

The gene test would be helpful as far as determining whether or not she carries either of the main Celiac genes.

dbmamaz Explorer
dbmamaz
Posted

I used the A.L.C.A.T test (which you cant spell here without the dots because the text gets changed . . . i guess someone was spamming about the test on the boards). Anyways, the A.L.C.A.T test not only shows gluten sensitivity, it also tests for casien, yeast, and up to 200 foods, plus colors and additives, molds, etc. However, you usually have to pay for it yourself, and your doctor is unlikely to believe it. I did both the A.L.C.A.T test and allergy testing - and keeping on only safe foods, I've never felt better. So if you think its ONLY gluten, stay off gluten - she may be pre-celiac, or she may be gluten intolerant, but if she's doing great off gluten, just dont feed her gluten. On the other hand, if there are still problems, you may want to do testing to see what else might be bothering her.

linda7276 Newbie
linda7276
Posted
I've been reading about DNA tests for celiac, using saliva or stool, and also about food intolerance or allergy tests. Since only one of my daughter's tests came back elevated, the doctor is hesitant to diagnose unless she gets the biopsy (which we aren't going to undertake right now - I can't gluten my daughter again and watch her be sick for 2 months. She says NO WAY!)

We're considering the DNA or food intolerance tests. I've read about some companies like Kimball and Entero, but how would you get a food intolerance test? And, have any of you found these tests to be positive when the bloodwork is mostly negative? Thanks - you guys are great on here!

Hi...I'm new to this forum, I've been hanging out for awhile and reading and learning. I just got my tests back from Entero Lab and tested positive for Gluten Sensitivity. They also do some food sensitivity test. Milk, Soy, Yeast, and Egg. I am also sensitive to Soy. My question is that the same as an allergy?

I strongly suspected Gluten since October of last year after reading on Dr Mercola's site an article about grains: Open Original Shared Link I have a sister who died in her early 40's from complications related to MS. I now strongly believe that she was gluten sensitive and that it is rampant in my family. I have 2 genes, which means I got one from each of my parents and that all of my siblings have at least one, and possibly 2. I have several other (come from a large family) siblings who are having symptoms too, and most are giving up gluten based on my tests. I have encouraged them to be tested as well. I am going to see an allergist and find out about other foods that I might be reacting too, as well.

This really drives home the concept that WE ARE WHAT WE EAT! Anyway I would recommend Entero Lab and wish you luck. I'm sorry about your daughter but the suffering doesn't have to be and I don't blame you for not wanting to give it to her again. I had a bad experience recently. I had gotten off the gluten since last October after reading that article, and went to Mexico in early May of this year...I had some beer, some pasta, and some bread, and had the most profound reaction, gained 4 pounds of obvious fluid, the worst fatigue of my life, felt numbness up to past my knees (never had that before) would literally wake up exhausted, and it took 5 weeks to recover....now for that last almost 2 weeks I have energy again. The idea of ever eating gluten again scares me to death. I ate it because I hadn't been tested and wondered if that was really my problem, anyway, now there is not doubt about it.

Thanks to all of you who comment here with helpful information, it's been so helpful to me these last months and weeks...:)

Linda

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