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souzahanson

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souzahanson Apprentice
souzahanson
Posted

Wow, I can't believe that many of the "topic" products out there aren't gluten free. I've been having major joint and body pain issues requiring current prednisone use. My MD feels that it is related to my celiac disease. I've just returned from the health store and have found out many of my personal care products may be the culprit. I also went through my fridge after reviewing this site for contamination ingredients and I no longer have any condiments. I've changed all my personal care products today to Tom's of Maine and Kiss My Face among other things. I knew celiac dz was going to be a life change after my 2001 diagnosis, but I didn't realize how much of a change it would be.

I'll be going for an antigliadian(?) test tomorrow. I will also be having a GI consult on 7/10 and plan to go for allergy and food sensitivity testing soon. I've also added GNC's MEGA MEN JOINT supplement to my diet. My alcohol drinks of choice are Redbridge and New Grist beer, it used to be captains and coke.

It's almost impossible to be 100% gluten-free free, but I'm going for it. I've been feeling so horrible lately with complete lack of energy or ambition. I hope there's nothing else wrong with me. Any help would be appreciated at this point.

If this post isn't in the right place maybe the moderator will move it to the proper place. I'm new to the site and it will take some time getting familiar with where everything should be posted.

Chris

2001 celiac dz via colonoscopy

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ravenwoodglass Mentor
ravenwoodglass
Posted

There are a couple of companies that label well for gluten ingredients in toiletries. Suave is a good one and also Dove. Giovanni makes some great hair care products but I haven't checked on their skin line. Hopefully someone who uses Shave Creams will post about those. One of the most risky things in these products is vitamin E which is usually derived from either wheat or soy. If the tocepheral has a D- in front of it that variety is safe. Usually I see that in vitamins though so I just avoid anything with added vitamin E.

It can take a while to get the 'hang' of things but you will. You also may want to consider getting a for sure gluten free sublingual B12. That will help out your nervous system and will also aid in energy and possibly mood. Even if your levels measure okay on blood tests that does not mean your body is able to form it and utilize it. Blood levels can take a long time to drop significantly enough for it to show up and it is not toxic in high doses so it won't do you any harm.

Welcome to the board and I hope you are feeling a lot better soon.

Lockheed Apprentice
Lockheed
Posted
There are a couple of companies that label well for gluten ingredients in toiletries. Suave is a good one and also Dove. Giovanni makes some great hair care products but I haven't checked on their skin line. Hopefully someone who uses Shave Creams will post about those. One of the most risky things in these products is vitamin E which is usually derived from either wheat or soy. If the tocepheral has a D- in front of it that variety is safe. Usually I see that in vitamins though so I just avoid anything with added vitamin E.

It can take a while to get the 'hang' of things but you will. You also may want to consider getting a for sure gluten free sublingual B12. That will help out your nervous system and will also aid in energy and possibly mood. Even if your levels measure okay on blood tests that does not mean your body is able to form it and utilize it. Blood levels can take a long time to drop significantly enough for it to show up and it is not toxic in high doses so it won't do you any harm.

Welcome to the board and I hope you are feeling a lot better soon.

Ack! I had no idea about the Vit E and I used to do clinical research trials on nutritional supplementation (yup, I'm one of those dorks) Back to reading for me then!

jerseyangel Proficient
jerseyangel
Posted
Ack! I had no idea about the Vit E and I used to do clinical research trials on nutritional supplementation (yup, I'm one of those dorks) Back to reading for me then!

Oh yes! Vitamin E/tocopherols have gotten me several times! :angry: I call companies quite often, and the vast majority of them can't tell me the source of the Vitamin E--even the ones who state that the product is question is gluten-free. It's frustrating, and since I'm so sensitive (with very few exceptions) I simply avoid anything with Vitamin E/tocopherols.

Chris,

It sounds to me as if you either are getting small amounts of gluten getting in somehow, or possibly you have uncovered additional food intolerances after going gluten-free.

Do you still eat dairy, soy and corn? If so, it may be worth a try cutting them out (one at a time) for a week or so and see if that makes a difference.

Lockheed Apprentice
Lockheed
Posted

Well and I'm hesitant to bring this point up, but is there a possibility that you might be somewhat depressed? It's perfectly normal to be depressed after losing a food group (or two or three) and making a complete lifestyle change.

Now I have a new project this weekend.. to check on all the vit e stuff. I really have a much larger issue with soy than gluten (and really I have a bigger sensitivity to wheat than I do to gluten.. don't ask.. it's a long story).

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    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

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    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
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