Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Who Are Soy Free


MyMississippi

Recommended Posts

MyMississippi Enthusiast

I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rmmadden Contributor

I don't really suffer from neuro symptoms but, I did eliminate soy from my diet as I tested-out severly sensitive to soy. I don't eat chocolate but I do chew wrigley's spearmint and/or peppermint gum when I'm not feeling the greatest and It ususally helps me. In general I try to avoid all soy but I have been known to eat things that have soy lecthin in it. I feel as if I can eliminate soy for the most part and limit the soy emulsifier items to few and far between then I generally (knock-on-wood) feel okay. I certainly feel a lot better than before I cut soy out of my diet that's for sure!

Best of Luck,

Cleveland Bob B)

jnclelland Contributor

Chocolate is very tricky, but I know I've seen a few (VERY few) brands that use some other kind of lecithin (sunflower maybe?) as an emulsifier. There's also Enjoy Life chocolate chips, which are quite good and don't contain any lecithin at all. Since I have problems with sugar, I tend to get my chocolate fix from chocolate-raspberry Clif nectar bars; they're not exactly the same as a chocolate bar, but they're yummy!

Jeanne

AndrewNYC Explorer

There are very very few chocolate soy free items around. If you live near a major city go to a health food store there and you might find something that works. Otherwise look on the web. Just forget about gum. It has so many strange additives you should not be chomping on it anyways if you have neuro trouble.

I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----

  • 1 month later...
fierce-mink-2000 Newbie

Hi! I'm new here. My son is the one who is gluten free. He's also soy-free. I'm wondering what neuro-symptoms are. Is it the kind of thing you can tell is going on in someone else? He's 4.5 and taking him off of soy and milk recently seems to have improved his behavior (as well as his more obvious symptoms, like eczema). He was quite the difficult child before, and while we've had ups and downs, I'm pretty sure we've never had an up this good since he was born. Could this be like what you're talking about?

I just recently discovered Bazooka gum is soy free. It's not sugar-free, though, which is annoying, but it's the only one I've found.

ravenwoodglass Mentor
Hi! I'm new here. My son is the one who is gluten free. He's also soy-free. I'm wondering what neuro-symptoms are. Is it the kind of thing you can tell is going on in someone else? He's 4.5 and taking him off of soy and milk recently seems to have improved his behavior (as well as his more obvious symptoms, like eczema). He was quite the difficult child before, and while we've had ups and downs, I'm pretty sure we've never had an up this good since he was born. Could this be like what you're talking about?

I just recently discovered Bazooka gum is soy free. It's not sugar-free, though, which is annoying, but it's the only one I've found.

Yes the improvements you are seeing would be included with neurological symptoms. Some of us will have issues with mood such as temper, anxiety depression, some with learning (we call it brain fog :) ) some will have issues with balance, ataxia, some can have paraesthesias develop which is tingling and pain in the extremities, loss of reflexes. Any of these and more could be considered neuro effects.

hawaiimama Apprentice

I don't eat soy, and haven't for ages but I don't avoid lecithin. I seem to be able to deal with it in small doses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



powerbraid Rookie

Alter Eco brand chocolate is THE BEST EVER! It also has no soy lecithin in it and says gluten-free right on the package!!!! :)

glutenfreewithease Rookie
I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----

I am soy free and I have neuro symptoms. I went soy and gluten free at the same time in '06 and my health improved dramatically. I still have misc symptoms like muscle movement and spasms in the face, tingling in the hands, feet and legs and vision problems. However, the improvement is so much better than where I was at. These symptoms are minor now - of course it is all relative as we all know.

I don't chew gum or eat chocalate. :( I do know and have not tried the Enjoy Life Foods chocolate pieces are okay. My two girls have just been diagnosed and are going gluten free so I am finding foods that I didn't use before!

I wish you the best and hope your neuro symptoms improve. What are your neuro symptoms?

AndrewNYC Explorer

Enjoy Life Boom Choco Boom chocolate bars. I have not seen much else in the way of soy free chocolate, other than a brand of organic hot cocoa, and I have been searching for years.

RiceGuy Collaborator

Many who can't eat whole soy have found soy lecithin to be well tolerated. It is generally fairly pure, but obviously you'll need to determine how you do with it for yourself.

A number of nutrient deficiencies have been linked to neurological problems, so you many want to try some of the more likely ones. For instance, a methylcobalamin (vitamin B12) supplement, along with magnesium can be incredibly helpful, so I always recommend those. Zinc can also help quite a lot.

Here's just one of a myriad links I got from a Google search: Open Original Shared Link

sickchick Community Regular

I don't chew gum. I am totally soy-free even soy lecithin I have a couple bags of Enjoy Life Choco Chips in freezer in case of chocolate emergency :):lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    3. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,368
    • Most Online (within 30 mins)
      7,748

    GStrutton
    Newest Member
    GStrutton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.