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Survival Guide For Newbies

celiac3270

By celiac3270
in Coping with Celiac Disease

Recommended Posts

celiac3270 Collaborator
celiac3270
Posted

Open Original Shared Link

This is a two week gluten-free survival guide....I thought this would be extremely helpful for newbies. I found it while poking around on the Delphi board. I don't post there, but occasionally poke around for interesting tidbits. It's an adobe file, so you need adobe reader, which if you don't already have, can be downloaded here: Open Original Shared Link. To access this, I think you might also need to be a member of Delphi Forums. Go to Open Original Shared Link to register, and the celiac board there is at Open Original Shared Link.

It's pretty neat, so I wanted to share this :D

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Canadian Karen Community Regular
Canadian Karen
Posted

That's a really useful tool, celiac3270. It will help newbies alot....

Did you ever try the chat section at Delphi? I'm not really into chat rooms, so I haven't tried it, just wondered if it works.....

Again, I am so happy for you that you have found the source of your problems and now see a light at the end of the tunnel.... Life to about to change for the better for you....

celiac3270 Collaborator
celiac3270
Posted
  • Author

Yes--that's what I thought.

I haven't tried the chat. Actually, I did once, but it didn't work. Then I realized that there are specific times. A moderated chat on Monday sometimes in the evening and another unmoderated chat on Wednesday, about the same time. I have yet to try it during a correct time, but would like to. I think a message board is best, since the information is....archived for everyone to read, but a chat in addition to a message board sounds neat.

Thank you :) . I'm going to get packing--unfortunately this is my last day to post before I leave :(

BamBam Community Regular
BamBam
Posted

celiac3270 - thanks for the survival guide - very useful! Looking at that, there is all kinds of stuff available to us - my girlfriend looked at it and says "Hey, he even lists the brand name, so I know what to do when I make something for you!!"

Thanks again

sher311 Newbie
sher311
Posted

Hello,

So glad I found this site. I'm BRAND new. (2 months) My test results showed that that I was suspicious for celiac. I have no symptoms except unexplained bone fractures, osteopenia with bone loss, I also have a vitamin D def.-malabsorption. Thats it. I've started the gluten-free diet and can't tell a difference- I guess because I didn't feel bad to begin with. After reading some of your symptoms and problems with the weight and felling so bad, I beginning to think that I don't have it. I feel so confused.

I also have barrett's esphougus and Chron's disease, I've never had heartburn in my life, how did I get that? Are their any other symptoms? Thanks for any info!

Sherry

KaitiUSA Enthusiast
KaitiUSA
Posted

There are many symptoms that can come with celiac but you may also have none at all. There does not have to be symptoms for you to have celiac. If you are a celiac, symptoms or not, your intestines are being damaged. It took me about 3 months to finally see a significant difference.I had no symptoms growing up until I had mono which triggered it. Otherwise I never would have known. Malabsorption can be a big things with celiacs because your body damages the villi which take nutrients of food into your blood stream. So then no matter how much food you eat you don't get the nourishment you need. Make sure that no gluten is sneaking in. Check shampoos, lotions, cosmetics etc. I had a accident with some lip balm which ended up having vitamin e derived from wheat and was giving me a reaction. If you have any questions I would be happy to help :D

flagbabyds Collaborator
flagbabyds
Posted

I love this 2 wk guide it is very useful! I use it all the time and I found it like 4 months ago

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KLTerry Apprentice
KLTerry
Posted

Thanks SO much for the survival guide. I'm having such a difficult time sticking to the gluten-free diet. Our funds are so very limited that sometimes, when we run out of gluten-free items, I have no choice but to eat some mac&cheese or romain noodles. This is definitely a rich man's disease.

judy05 Apprentice
judy05
Posted

I have to disagree about this being a rich man's disease

if you can keep it simple and not buy a lot of the gluten free

stuff you can manage. the only thing I find expensive

are the gluten-free spaghetti and cereal but the rest is mostly

meat, vegetables, and fruit. Once in a while a treat.

I use mostly rice cakes instead of bread and lots of

salads. We just made a Salmon salad today, enough

for a few days and tonight we are having grilled steak

and veggies. Please try not to eat gluten you are just

damaging yourself.

ianm Apprentice
ianm
Posted

I am so glad I found this site. I found out about celiac and gluten intolerance about a year ago. I spent 36 years struggling with this problem. I went to more doctors than I can count and none of them ever suggested a food allergy. They sure wanted to write me lots of prescriptions though. I finally began to realize what I had when I read the Atkins Diet book. There was a chapter on food intolerances and it described exactly how I felt. After a lot of research and watching what I eat I finally feel alive for the first time in my life. I had gained a lot of weight and was on the verge of becoming a diabetic. Since eliminating gluten I have lost the weight and in perfect health. This disease nearly caused me to lose everything I had but it is good to see I am not alone.

Ian

lovegrov Collaborator
lovegrov
Posted

My food bill is actually lower than when I wasn't gluten-free.

I know that gluten-free noodles aren't cheap but home-made spaghetti sauce is VERY cheap. Watch for sales on meat. Fresh, canned or frozen veggies are cheap. Fresh fruit. Buy a bag of uncooked beans for about $1.29 and cook. If you want to get fancy add a can of tomatoes, a little ham, and some spices. Add a salad to it and you have several meals for $1 each or less. One pound of hamburger, two cans of beans (or cook your own), a can of tomatoes and some spices and you have chili. Might cost $1 per serving depending on your serving size. All the Vienna sausage I've ever checked has been gluten-free and I think it's less than $1 per can. Canned tuna is cheap. Add mayo, celery, an egg, and salt and pepper and you have cheap and delicious tuna salad. Eggs where I live are maybe $1.29-$1.49 for 18 of them. Scramble three egs and throw in a smattering of cheese, ham, onions, whatever you like and you can make an omelette for a LOT less than $1.

If you need sweet treats, lots and lots of candies are gluten-free.

Just some ideas. Staying away from gluten is a lot cheaper than what it will cost if you destroy your health.

richard

Guest barbara3675
Guest barbara3675
Posted

What a thoughtful thing to do, celiac3270......this thread will help so many new people. I know you are so very young yet, but you should think about becoming a doctor some day specializing in this very subject you are so learned in already. This country needs another good doctor in this subject.

Barbara

ianm Apprentice
ianm
Posted

My food bill is drastically lower too now that I am gluten-free. By eating protien, mostly green vegetables and certain fruits I can eat a small amount and not feel hungry for several hours. With the high carb, gluten grain diet I would stuff myself and still feel hungry.

Ian

sher311 Newbie
sher311
Posted

I found that rice krispies, korn pops & ragu speghetti sauce are gluten-free. the noodles are the only thing-so far- that I'm paying extra for.

KaitiUSA Enthusiast
KaitiUSA
Posted

Which rice krispies? They all contain barley in their malt flavoring and so do the rice krispy bars.

Here is a link to the kellogg's dietary special needs list it states at the bottom that they contain barley in them... barley is off limits for us.

Open Original Shared Link

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