Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Observed Symptoms After Eating Gluten


samcarter

Recommended Posts

samcarter Contributor

So, I cut gluten out for a whole week. Felt pretty darn good--I asked my husband, "So do most people go to the bathroom without it being painful?" He said, 'Why have you never TOLD me about this?" Uh...I just thought it was normal to cramp and poop at the same time.

Anyway, today I started doubting and wondering, Am I just being dramatic and difficult? And when I get to the new doctor that my husband wants me to find, will I test positive or be looked at as an idiot?

Last night I ate two bites of leftover pie. I woke up with a slight headache, thought it might be "needing caffeine" type of headache, but it didn't go away, just lingered. My legs felt weak and achy going up the stairs last night, too.

This morning I had a piece of letfover pizza :ph34r: and at first didn't feel anything. Within two hours, though, I sure was feeling something. I am adding to my list the digestive symptoms I had after eating a piece of cake a few days ago.

Here are my observable signs:

a) Headache (within


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

And Sam....I hate to tell you this....but if you are gluten-free when you get tested, the tests will likely come back negative.....so you have to eat lots of gluten before the test for a good 3 months.......

I have a feeling because of your family history, you will want an official Dx.....and if that is the case...keep eating pizza and pie.....

If you dont give a rats behind about what anyone else thinks, stay off the gluten, declare yourself gluten sensitive, and enjoy your life!

jerseyangel Proficient
Here are my observable signs:

a) Headache (within

samcarter Contributor

Thanks for the responses. My husband wants me to eat gluten free, because he sees how much better I feel (he even commented that I seem "more like myself" lately!). I know I should be eating gluten to get any possible positives.

On the one hand, if i do have celiac, I really want that positive diagnosis so I can use that when people say, "Eh, you're just making life difficult for other people."

On the other hand, i feel like total cr@p when I am eating gluten and it's harder to take care of my kids when i feel this way, or to be a good wife.

I got "tested" by my GP, but he only did the EMA testing, no IGA. And as I read in Dr. Green's book, if your villi are not completely destroyed yet, you may test negative on EMA anyway. I think i am in the early stages of celiac.

Jerseygirl, the hot flashes are the WORST. With me it's in my upper chest and flows to my head, and I feel dizzy. HATE.

Maybe I can get away with just eating some gluten in the mornings and then "detoxing" through the day so by the evening I don't feel like a junk heap.

Gerri Explorer

Hi

"a) Headache (within

ShayFL Enthusiast

I am always amazed how much people worry about what other people will thing/say. YOU are the only person you have. Love yourself and do what is best for YOU.

Tell them, "It has become medically necessary for me to no longer eat gluten. I stopped eating it and I feel better."

End of discussion.

I dont make anything difficult for ANYONE.

I am a MUCH better cook now and my family gets excited when I prepare new gluten-free meals. My daughter exclaimed "I hope you are ALWAYS gluten free!" gluten-free tastes good.

And when I go to a dinner party, I take a big dish of food I can eat and share. I just say. I can no longer eat gluten as it makes me have neurological symptoms such as migraines, vertigo and neuropathy. No one who really loves/likes me wants me to have those symptoms. And even new people/strangers understand.

If you live with/associate with or are bound by family ties to anyone who says that you are just trying to be difficult......you have some serious questions to ask yourself? Disassociate with those you can and request therapy with those you cant.

Life is too short.......

Kitt1027 Rookie

Hey all...

Sam - Just want you to know that I have the same problem with my mother that you have with your family. Actually, it


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



samcarter Contributor

Kitt---I think our mothers were separated at birth. As a kid I was so lethargic that I just wanted to sit and read all the time. I can't tell you how many times I heard, "It must be NICE to be able to just sit and read whenever you want!" She didn't understand that I didn't have the energy. I was very depressed as a child--i have memories of just sobbing in my room a lot, and hearing my brother ask my mother, "What's wrong?" "Oh, she's crying AGAIN. I don't know what she's got to cry about!" :rolleyes:

Good luck with the wedding planning...you might want to peek at www.glutenfreegirl.com and her entry about her gluten-free wedding and reception (I think it's under the summer 2007 entries in the archives). They had a potluck wedding reception and everybody brought gluten free food and the bride baked the wedding cake and the groom decorated it! I thought that was awesome.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,188
    • Most Online (within 30 mins)
      7,748

    Leeila
    Newest Member
    Leeila
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Jane878
      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
×
×
  • Create New...