Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Referred Pain, Very Interesting Thought!


darlindeb25

Recommended Posts

darlindeb25 Collaborator

I have been going to physical therapy for over a month now, yesterday being my last one. My therapist seemed nice enough, but I now feel he has let me down. I feel like I was just a paycheck to him. I didn't go in expecting miracles, but I did think I wouldn't leave hurting more than I did before going. My PT is on my neck, into my shoulders, suppose to help with my headaches, which have not gotten better, not at all.

First I get a sonic massage, the girls always put 4 sonic patches on me, yesterday, he did only 2. Often times, the sonic massage would make my muscles spasm. After it, they do a very light massage, then Chris (the therapist) would come and do another massage...it all takes about 1 hour. I have to admit, the girls do a better massage than he does.

The girl I had yesterday is taking classes for massage therapy, and also is training there. She ended up doing everything yesterday, except for the patches. She was telling me how inflamed (like I can't tell :cry: )my left side is...I started this PT with no pain on the left side, she said my right side is in much better shape than the left. She called it the "gall bladder" muscle, I thought I misunderstood what she was saying.

When I got home, I googled "gall bladder muscle". It was a fascinating read. It's called, referred pain.

Open Original Shared Link

If your phone keeps ringing over and over from an annoying prank caller, the "symptom" you experience is your discomfort from the phone constantly ringing, disturbing your peace. The problem doesn't start with the phone, though. It started with the prank caller on the other end of the line.

What makes things interesting is that just about every organ we have seems to have a referred pain pattern.

You might have gotten up one morning, for example, with a "crick in your neck". Pain into one side of the neck -- typically, but not always, the right side -- that might radiate down around your shoulder blade.

Patients come in from time to time with this kind of pain. The usual explanation goes something like, "Well, I must have slept wrong or something." In many cases they're surprised to find out that the source of their pain has little to do with how they slept, and a lot to do with their gall bladder!

The gall bladder has a referred pain area that usually covers the right side of the neck and shoulder, down around the shoulder blade. As such we have to rule out gall bladder trouble as a source of their pain anytime a patient presents with this kind of pattern.

In short, if pain around the shoulder and neck turns out to be referred from the gall bladder, no amount of soft-tissue work will resolve the problem alone.

It mentions that often times, if we eat something that we may be allergic to, that allergy can show itself by being a "pain in the neck"! I found this very fascinating. Anyone else?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TrillumHunter Enthusiast

I've been reading about this as well since I just had my gallbladder out. I never had classic symptoms but agreed to have it out because I was so sick. Turns out I had cholesterolosis. It's a mostly silent disease of the gallbladder that sometimes can develop into cancer. Scary! But in my reading I found the referred pain reference and immediately recognized it. I could never stand to have my neck massaged. It used to kill me when people would come behind me and squeeze my neck. I'm happy to report that it is completely gone.

Darlindeb, you should get your gallbladder looked at soon. My was fully infected and festered. The dr told my friend, a nurse he works with, I was very close to being septic.

Take care of yourself!

darlindeb25 Collaborator

Thanks TrillumHunter, I will ask my doctor about this one. I had never heard of it before.

curlyfries Contributor

Hmmmmm...........that sounds exactly like my problem. Trouble is.......I had my gallbladder removed years ago.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,695
    • Most Online (within 30 mins)
      7,748

    NadiaH
    Newest Member
    NadiaH
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Grahamsnaturalworld
      Where can I find a gastro in adelaide who can diagnose refractory celiac disease have seen 3 so far and don't understand the most obvious question, why my celiac symptoms did not resolve on a gluten free diet the symptoms just got worse as it is attacking my nervous system. 
    • ShariW
      I recently traveled to Spain and Portugal. I was with a tour group, they knew I needed to be gluten-free and made sure the kitchens preparing the group meals were aware. But just in case, I took Gliadin-X with me and took it for every evening meal - and most other meals. The one time I got glutened was from lunch early in the trip - had to be from cross-contamination. I had not taken Gliadin-X before that meal, which made for a pretty miserable day. Learned my lesson... 😞 
    • Hummer01
      Hi trents, thanks for the response.  The 2nd opinion doctor said that if my CRP is still elevated at that time, he would advise me to look at Crohns/UC or another autoimmune issue. The colonoscopy I had this year seemed to rule those 2 out for now so he still believed celiac may explain it. No previous doctors have suggested any explanation for it even after calling to tell me it was a concerning result.  I guess it feels tough knowing I have positive blood testing, permissive genetics, and visible duodenum changes... and somehow it's NCGS instead of celiac. I'm still surprised the biopsies came back negative when the doctor was so sure they would be positive.
    • trents
      "He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac." But with if the elevated CRP levels are caused by some other inflammatory process going on in your body? "She also said that my positive EMA isn't valuable because it has "a high false positive rate." Totally wrong! This is a highly accurate test for celiac disease, that requires specialized expertise to perform and interpret, and it is more expensive than other blood tests. It is generally used as a last test to confirm celiac disease after a positive tTG-IgA test. The sensitivity of a test refers to its ability to correctly identify individuals with the condition. For the EMA-IgA blood test, the sensitivity is generally very high, ranging from 90% to 98%. This means that the test can accurately detect celiac disease in a significant percentage of people who have the condition. The specificity of a test refers to its ability to correctly identify individuals without the condition. For the EMA-IgA blood test, the specificity is also high, typically around 95% to 100%. This indicates that the test can effectively rule out celiac disease in individuals who do not have the condition. Taken from the following article: Looking at the whole picture, I am wondering if you are transitioning from NCGS to celiac disease. Some experts in the gluten disorder field believe NCGS can be a precursor to celiac disease.
    • Hummer01
      Hi all, just wanted to post an update.  I have been gluten free for about 1.5 months now and seeing improvement already in the bathroom.  Recently I had a visit with another GI doctor for a 2nd opinion. He said that while my blood tests and scope are not a "slam dunk" for celiac, he believes it's more likely than not that I have it. His advice was to stay with a celiac-level gluten free diet (no CC) for 6-12 months then retest to make sure TTG-IGA is still negative. He also said that my CRP should return to a normal level at this time if the culprit was inflammation in the small intestine due to celiac.  Today I had a follow up with the original GI that performed the scope. She is confident it is NCGS and says I can still have gluten sometimes. When I asked about the visible duodenum damage, she said it is just "irritation" from gluten because the biopsies were negative. She also said that my positive EMA isn't valuable because it has "a high false positive rate."  I guess I'm having trouble reconciling the totally different advice from these 2 GI's. I want to believe the new doctor more at this point because what he said just makes more sense to me, and he gave an actionable timeline for possible next steps. Feeling lost and disappointed at this point and wanted to write it down here in case anyone has input. Thank you.   
×
×
  • Create New...