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How Many Of You Had To Avoid Dairy At First?


Hummingbird4

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Hummingbird4 Explorer

I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.


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MELINE Enthusiast

After almost a year of gluten free diet I still can't tolerate lactose....

ShayFL Enthusiast

But some are able to eat it again within 3 or 4 months. Depends on how quickly the tips of your villi heal.

MELINE Enthusiast

biopsy showed a healed villy....I guess I am lactose intolerant because I am lactose intolerant and not because of celiac. ...sorry :huh: for my previous post, I had to explain more.....here it is 3 after midnight and I am really tired.....

Darn210 Enthusiast

During my daughter's endoscopy, they also checked for lactose intolerance. It showed that she was lactose intolerant albeit not too bad. GI doc recommended lactaid for 2 months whenever she had a large amount of dairy in a sitting. That was all we needed to do.

oceangirl Collaborator

Hi, welcome to the board.

2 years after being gluten free I added in hard cheddar cheese with no problem and three years later I eat Greek yogurt every day, and can have all dairy with no problem. It may be shorter for you- everyone is different. I cook everything myself from whole foods (not the store, meaning "natural state" foods) and always bring my food with me wherever I go. You may have guessed that I am ultra-sensitive which I would never have believed before having lived it.

Patience- this takes time. Listen to your body and keep a detailed food log; that is the best advice I ever got.

good luck,

lisa

kbtoyssni Contributor
During my daughter's endoscopy, they also checked for lactose intolerance. It showed that she was lactose intolerant albeit not too bad. GI doc recommended lactaid for 2 months whenever she had a large amount of dairy in a sitting. That was all we needed to do.

How did they check for lactose intolerance during a scope? I didn't realize this was possible.

I never eliminated dairy and still eat it with no problems. I guess I was one of the lucky ones! My mum, on the other hand, has had to eliminate casein.


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dandelionmom Enthusiast

I was severely lactose intolerant (couldn't even eat it with lactaid) for years before going gluten-free. Two months of the diet and I tried dairy with no problems.

Darn210 Enthusiast
How did they check for lactose intolerance during a scope? I didn't realize this was possible.

It was actually a test on one of the biopsies where they check for the enzyme to process lactose. There were four or five other enzymes that they also checked. My daughter "officially" showed no damage but she had generalized dissacharidase deficiency . . . most of her sugar processing was low . . . that was read by the GI as "hidden" damage. That along with the positive blood test got her a positive diagnosis.

I had a great link about dissacharidase defiency . . . can't find it at the moment. I'll go look and post it if I can find it.

Edit:

OK . . . might have been helpful to spell it right . . . makes it much easier to find. Here it is . . .

Open Original Shared Link

SEAliac Rookie
I had a great link about dissacharidase defiency . . . can't find it at the moment. I'll go look and post it if I can find it.

Edit:

OK . . . might have been helpful to spell it right . . . makes it much easier to find. Here it is . . .

Open Original Shared Link

Thank you, thank you, thank you! This is a fantastic link. I'm starting month 6 gluten-free and have become increasingly frustrated about avoiding raw veggies and anything with lactose. I'm hoping I'll heal quickly, but the references in this thread to one-two-and-three years of lactose intolerance are hopefully making my expectations more realistic.

powerbraid Rookie
I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

yup - I had to eliminate dairy for about a year. Now, I am just starting to eat yogurt again, and cottage cheese, and all seems to be going well. There is hope! :)

CeliacAlli Apprentice
I'm two weeks into gluten-free living. I had been pretty much asymptomatic before starting gluten-free. The first week, I felt rather bloated and gassy most days, which I found rather troubling. So after 8 days, I cut out dairy to see what would happen. I do feel better now, but of course I'm hoping that dairy will be a temporary elimination, and I'll be able to eat it again soon.

It was a good 5 years for me and I can only tolerate small amounts now =/

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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