Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow, 3 Days Gluten-free!


henny

Recommended Posts

henny Explorer

The idea that I might be Celiac is still very surreal to me.

I've been suffering symptoms without realizing it for about 8 years now...constant constipation with severe pain and diarrhea 2-3 times a month. Doctor kept telling me it was IBS and to live with it.

A couple months ago it switched to painful diarrhea every single day and I rapidly lost about 20 lbs.

During this time started to notice that I WAS able to eat yogurt and drink milk, and I could eat raw fruits and veggies without setting off my gut.

I made a few phone calls last week and found out that EVERYONE on my mother's side of the family (we're talking grandparents, my mom's 5 siblings, and almost all their children) have been diagnosed with Celiac.

Three days ago I went completely Gluten Free, and have not had even a rumble in my guts since then. No gas, no pain, no diarrhea. It's like a miracle.

Today I had the first 'normal' bowel movement I can ever remember having. No toilet plunger required, no pain, and it wasn't explosive or runny. I nearly cried, if you can imagine that.

Anyway, I'm doing a lot of reading now and things are clicking into place - my poor tooth enamel, migraines, joint pain, etc. I bought some pre-made gluten free bread, which was disgusting, so now I am looking into cooking much of my bread products from here on out.

I doubt I will seek out an official diagnosis, since the diet seems to be working and my family history is pretty damning.

If you have advice for a newbie I'd appreciate it a great deal. This is all very shocking and surreal, but I'm so happy right now to be feeling better I'm looking forward to my new lifestyle - even if it's a pain in the neck.

This is the third day of the rest of my life.

-jen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
This is the third day of the rest of my life.

-jen

Hi Jen, Welcome. For some of us the digestive troubles leaving can seem nothing short of miraculous. I can certainly identify with that. You have found a good place for both info and for support. It can be tough at first because there is so much to watch out for, do check all your toiletries and things like shampoos and lotions. If you live with other gluten eaters make sure you take strict precautions about crosscontamination. Get your own condiments and things like peanut butter and jelly. A gluten coated knife dipped in will make you ill. Also get a new toaster and colander. If your pans are scratched replace them. I am sure some others will be on with some advice also and feel free to post any questions you have or vent if you need to. I am glad you are feeling so much better and hope things continue to improve.

One final note, if a doctor derived diagnosis is important to you you must be eating gluten for testing. With the family history you have you may not feel that is needed but it is important that you know that.

crunchy-mama Apprentice

that is so wonderful, I bet you do feel like a new person!

henny Explorer

Thanks guys!

I really do feel like a new person from the neck down!

I hope it lasts and isn't some kind of placebo effect.

Thanks for the advice about cross contamination....I hadn't thought about my toaster and pans at all!

I doubt I will pursue testing....results are enough for me!

My husband has Crohn's (has for 22 years now) so we make quite a pair....LOL!

I think we single-handedly keep the Charmin TP Company in business HAHAHAHA! Sorry, I have a gross sense of humor sometimes but I think with these digestive problems you NEED one!

This is the first week in a very long time that I have not been sicker than him. Amazing.

lizard00 Enthusiast
My husband has Crohn's (has for 22 years now) so we make quite a pair....LOL!

I think we single-handedly keep the Charmin TP Company in business HAHAHAHA! Sorry, I have a gross sense of humor sometimes but I think with these digestive problems you NEED one!

This is the first week in a very long time that I have not been sicker than him. Amazing.

You have to have a sense of humor to get through some of these days!

If your house becomes gluten free, I'll bet you'll see improvement with his issues, too!

buffettbride Enthusiast

I'm so glad you're finding some relief!

My biggest tip is to avoid the gluten-free breads for a while to let your palate adjust. None of it tastes good compared to the wheat counterparts at first. The one exception is Kinnickinnick pizza crusts. If you can find some of those and make some cheese bread or some pizza, you'll be in heaven! I am a gluten eater (my daughter has Celiac) and those crusts are sent straight from the Gods, I'm tellin' ya.

My BFF has Crohn's and she says she gets some relief from beling gluten-lite, so this is a chance to help your hubby, too!

Here's other things I've done in my home to make it a happier Celiac place:

1. Clean like mad to rid the house and kitchen of crumbs.

2. Decide if you are going to keep your house gluten-free. It's quite easy, but not for everyone.

3. Purchase a rice cooker. We use ours religiously!

4. Find your favorite place to buy gluten-free foods. and expect some sticker shock.

5. Learn to love fresh fruits and veggies. You will be eating a lot of them.

6. Prepare to try a lot of disgusting gluten-free foods. It's getting better, but we've all tried some doozies.

7. Cry at the grocery store. You'll spend about 4 hours

your first trip buying gluten-free reading all the labels and realizing all the

"I can't eat that either..." items. It happens to the best of us.

8. Research your local restaurants and find out which ones offer a gluten-free menu."

Try them and find a few safe places to eat out.

9. Don't be discouraged when you accidentally gluten yourself.

10. Learn to love to cook, if you don't already.

11. Come here often. I'd never know what I know about anything gluten-free without this place.

swalker Newbie

Recipezaar.com has lots of good gluten free recipes. Your library will have lots of gluten free cookbooks. I recommend taking out all of them and trying some recipes before you buy any cookbooks.

Bette Hagman was the first gluten free cookbook author and her books were a godsend. We have a lot more gluten free flours to work with now than she had access to. My current favourite cookbook is Gluten Free Baking Classics by Annalise Roberts. She uses brown rice flour and all of her recipes are great.

If you're only baking for yourself you may want to start with mixes as opposed to buying individual flours. If you have a Whole Foods by you they will have Pamela's (www.pamelasproducts.com/ - ) which is very popular and Better Batter ( www.betterbatter.org/ -) is also a good one.

If you like Pamela's Amazon has the best price on it I believe and they have the subscription deal on it. Better Batter is the same price from them or Amazon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



henny Explorer

thanks everyone :)

OMG....I just read that going gluten-free could improve my psoriasis? THAT would be SOOOOOoooooo Awesome! I hope that turns out to be true. As my digestive issues got worse over the past few years so did my psoriasis....here's to hoping it goes the other way also!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,678
    • Most Online (within 30 mins)
      7,748

    Kristina S
    Newest Member
    Kristina S
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.