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Endoscopy Result Q's

SGWhiskers

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SGWhiskers Collaborator
SGWhiskers
Posted

I had my endoscopy in August. There is no question that I have Celiac and have been following a gluten free diet for 5 weeks with slight improvement. I have a couple of questions for veterans of the endoscopy process.

The results of the biopsy are a bit vague for my liking. "Duodenum, biopsies: Fully developed Sprue-like changes." Does anyone know what this means?

Also, the endoscopy noted "nodularity" among other things. What is the significance of nodularity in relation to celiac?

Hope all of you are recovering well and thanks for the input.

SGWhiskers

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happygirl Collaborator
happygirl
Posted

SG, you mention nodularity "among other things"...what other types of things were listed?

Here is some information on biopsies/Celiac:

Open Original Shared Link

SGWhiskers Collaborator
SGWhiskers
Posted
  • Author
SG, you mention nodularity "among other things"...what other types of things were listed?

Here is some information on biopsies/Celiac:

Open Original Shared Link

Happy Girl,

Thanks for the response. The endoscopy report included the following statements regarding my upper intestines. "Diffuse severe mucosal abnormality characterized by scalloping, congestion, flattening and nodularity was found in the 2nd part of the duodenum." "Mucosal abnormality in the duodenum suspicious for celiac sprue." The biopsy report was the vague one that said "Fully-developed sprue like changes." I got some cool photos from the endoscopy where you can really see the flattening of the folds. I also had stomach "erethema" that was from NSAIDS. It took a month gluten free, but I'm off the NSAIDS now without feeling like I'm gonna cry from pain. There were 8 intestinal sampels, so the pathologist should have had at least one good one to describe.

By the way, that website is great. It is new to me and I've been searching the web every chance I get. I'm going back there now to explore further.

Thanks for any information you have.

SGWHISKERS

happygirl Collaborator
happygirl
Posted

Sounds like you have a bona fide Celiac diagnosis - Guess the pathologist recognized it pretty quickly!

This board is a wonderful resource. Read, read, read, and ask, ask, ask.

Welcome to the board - happy you are here.

SGWhiskers Collaborator
SGWhiskers
Posted
  • Author

Yeah, we pretty much knew going in that I had celiac, the endoscopy was just to confirm it. I wish the pathologist report had been more descriptive or gave a Marsh level. Does anyone know if "fully developed sprue like changes" corrolates to a marsh level, or at least some level of severity?

Also, what significance does the nodularity have? I know it is a sign of celiac, but does it indicate severity? malignancy?

Thanks for your help folks.

SGWhiskers

happygirl Collaborator
happygirl
Posted

I would say that is a question (re: Marsh) that your doctor and/or pathologist need to answer for you .... and an answer that they owe you. Only the pathologist would know - others could guess, but its up to the pathologist's view an interpretation as to what that means.

mftnchn Explorer
mftnchn
Posted

I think the fully developed sprue like changes are "Diffuse severe mucosal abnormality characterized by scalloping, congestion, flattening and nodularity." There are some great sites showing endoscopies and celiac changes. Sorry don't have a link at the ready.

This means you had lots of visible damage, and didn't need the microscopic exam to clarify the diagnosis.

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SGWhiskers Collaborator
SGWhiskers
Posted
  • Author

Thank you for the advice folks.

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