Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ideas On Where She Got Glutened?

Worriedtodeath

Recommended Posts

Worriedtodeath Enthusiast
Worriedtodeath
Posted

HI!

OUr dd is now 2 and is in the midst of a bad bad gluten reaction. Horrible runny poop. We've done great with just a few instances in the beginning since our dx (or lack of one ) in Jan. But this is definitely like she was way back before dx leading me to believe we are getting regular gluten somewhere in the last month but I can't figure out where. HEr bigger than big belly has even rounded back out after it just started to finally flatten.

I've gone over and over our foods and diet for the last 3 weeks and can't figure out anything. She had Hawolleen candy but it was lollipops ( assumed they were all safe so one of those might have been a problem) and candy we knew were safe. Shampoos and conditioners are all by Sauve the ones for kids. Toothpaste is ORal B for toddlers. Vitamins are safe and verified.

Kitchen is gluten free except for hubby's sandwhich he makes for lunch. I clean that area he uses and throw the towel in the laundry so I don't spread the crumbs. Then I still reclean with a new cloth to be safe. Sandwich fixing are all squeezable bottles and I clean the tops and squirt out some first to make sure no cc from his bread. That's the only gluten I know of in the house and she has no access to it. we have our own gluten-free peanut butter bottle.

She only goes out of my sight to one class on Wednesdays and they are very up and up on allergies and are very sure to keep her from all gluten. Only 3 kids on a busy day in the class so I'm not too worried about the kids being able to swap foods or cc her.

I can not think of anything that we have switched to in the last month. Everything we have is what we have been doing unless ingredidents were switched in a product and I don't know about it. OH I did switch from Bryan's hot dogs to Bar s but bar s was verified to be gluten free. Maybe that wasn't true??

The only other thing we did in the last month was take care of the neighbor's kitten who only ate canned cat food (pop top) 9 lives I believe. She had a good time with the kitten but I never saw the kitten licking her or anything like that. She did mess with the litter box a few times and I had to wash her well from that. Could gluten be in cat litter? It was very dusty and I know I sucked in tons of it when cleaning the cat box. THe kitten did seem to have a stomache bug but no one else in the house has tummy issues so I am not leaning toward virus.

Can anyone think of anything I'm forgetting?? I know once you get everythign under control you begin to forget about things. Could I be missing something? OR can bar s hot dogs be a problem?

Thanks

Stacie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Worriedtodeath Enthusiast
Worriedtodeath
Posted
  • Author

Forgot to add we are also dairy free and only use Almond milk by blue diamond. I'm pretty sure they have no gluten. We do an occasional cheese pizza since soy makes her sicker than the milk does but that is rare and any issues from that is a one time deal. Not ongoing like this has been.

Stacie

jzmom Rookie
jzmom
Posted
Forgot to add we are also dairy free and only use Almond milk by blue diamond. I'm pretty sure they have no gluten. We do an occasional cheese pizza since soy makes her sicker than the milk does but that is rare and any issues from that is a one time deal. Not ongoing like this has been.

Stacie

Has your DD been checked for Almond allergy since she is consuming so much of it or Cat, eviromental factors? I am not aware of the hot dog brand Bar. I bought a brand at Whole Food, they are called Wilshire Farm, they also make Organic Turkey Strips that replace bacon in our house.

ShayFL Enthusiast
ShayFL
Posted

There are other brands with wheat as well:

Open Original Shared Link

Worriedtodeath Enthusiast
Worriedtodeath
Posted
  • Author
Has your DD been checked for Almond allergy since she is consuming so much of it or Cat, eviromental factors? I am not aware of the hot dog brand Bar. I bought a brand at Whole Food, they are called Wilshire Farm, they also make Organic Turkey Strips that replace bacon in our house.

She was checked for tree nuts and peanuts. All clear. Is almond a different test?

Treen Bean Apprentice
Treen Bean
Posted

Were any of the lollipops she eat Dum-Dums? I believe they contain dairy.

jzmom Rookie
jzmom
Posted
She was checked for tree nuts and peanuts. All clear. Is almond a different test?

I don't know if it is a seperate test. My son had an individual test just for cashew, almond, and walnut. Almonds were worst of all in our case. Befor the test I thought I was doing something wonderful and healthy by giving him Almond Milk instead of cows milk. Poor kid had stomach ache every morning in school, many times sent home from vomitting. Back then he was eating wheat cereal with the almond milk which is another one of his allergies.

(sorry spell check not working)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MaryJones2 Enthusiast
MaryJones2
Posted

Here is what I would check out further.

1. cat food.

2. Bar S Q: Do Bar-S products contain gluten? A: Bar-S products are gluten free with the exception of Bar-S Corn Dogs and Chuck Wagon brand franks. The source of modified food starch in Bar-S products is from corn.

3. Halloween candy. Do you know all of the brands and types?

dilettantesteph Collaborator
dilettantesteph
Posted

Does the class know about stickers, play-doh, finger paint as gluten sources?

jzmom Rookie
jzmom
Posted
Does the class know about stickers, play-doh, finger paint as gluten sources?

Dilettantesteph,

Wow thats a good point. My chid is allergic to wheat. Test for Celiac were negative. Can Play doh and paint give a reaction?

dilettantesteph Collaborator
dilettantesteph
Posted
Dilettantesteph,

Wow thats a good point. My chid is allergic to wheat. Test for Celiac were negative. Can Play doh and paint give a reaction?

Just fingerpaint.

Worriedtodeath Enthusiast
Worriedtodeath
Posted
  • Author

The class knows about the glue and paint and playdough. However, we have been using those stickable foamies. Peel the sticker off and stick it. Hadn't even thought about that. I'll have to see what the "sticky" is made from.

As for playdough, mine absolutely cannot under any reason even be in the same room with it (or so it seems) If you have a wheat allergy, will you not react to playdough??? If it is used in the room and everything is not scrubbed to death, she gets sick. It took a long time to figure that one out. Once we eradicated playdough, she stopped getting sick. ONe dr still claims she has a wheat allergy and not Celiac so I was wondering if as an allergy she wouldn't respond to the playdough thus her response is not allergy? Clear as mud right?

Thanks

shayesmom Rookie
shayesmom
Posted
As for playdough, mine absolutely cannot under any reason even be in the same room with it (or so it seems) If you have a wheat allergy, will you not react to playdough??? If it is used in the room and everything is not scrubbed to death, she gets sick. It took a long time to figure that one out. Once we eradicated playdough, she stopped getting sick. ONe dr still claims she has a wheat allergy and not Celiac so I was wondering if as an allergy she wouldn't respond to the playdough thus her response is not allergy? Clear as mud right?

Thanks

Playdoh is made with wheat flour, so both allergic and Celiac children shouldn't play with it. And if it's of any consolation....my daughter also cannot be in a room where other kids are playing with Playdoh. For some reason, the teacher had to be convinced of that (she was warned at the beginning of the school year). Wasn't she surprised when I made a call into the school asking what my dd had been exposed to to make her so ill...on the very same day the teacher allowed the other kids to play with Playdoh? She was stunned to say the least.

On the one day your daughter is with the other kids, you may want to talk to the teacher about having everyone wash their hands first thing (before playing with anything in the room). Also, double check what kind of soap is in the room for them to use. The soap at my dd's pre-school was NOT safe for her and it also was a problem that the other kids were using it and spreading it around. I ended up supplying a safe soap for the class as well as a separate soap dispenser for my dd.

Do the kids get snacks or drinks in the room? If so, be sure that whoever gives your dd food also washes their hands (with a safe soap) immediately before serving her. Do they work on art projects? What products are used? Is there a sensory center (sometimes these have pasta noodles in them for kids to play with)? Is there chalk in the room? Are they using food to make certain crafts/projects? .....Also, I should add that I had brought two tubs of the Crayola modeling clay in for my dd's class to use...which is supposed to be gluten-free. Well, ours was definitely cross-contaminated. I ended up making my own gluten-free playdoh for the class to use AND you need to remind the teacher that all the cutting tools and shapemakers need to be thoroughly cleaned before being used with the gluten-free playdoh.

Also, you may want to check into the cleaning schedule where your dd is at. It is important that the room be cleaned prior to her going. Leftover crumbs on tables and carpets as well as gluten residue can wreak havoc with a child that is very sensitive. My dd is super-sensitive. You may even have to look at what the kids are drying their hands with after they wash them. Cloth or paper?

Worriedtodeath Enthusiast
Worriedtodeath
Posted
  • Author

Okay the soap stuff totally mystifies me. What are the bad ingredients? I look at the bottle and nothing screams wheat. I didn't think about using the soap at places. SHe still likes to lick her hands.

So some of those chemical names are code words for wheat?

Here at home we are suave for kids shampoo (I thought Sauve was safe), equate brand hand soap, and switched yesterday to Kiss my Face olive and aloe soap for her really bad dry skin and cucumber body lotion by pure life. Those were the only ones I could find that had ingredients I could pronounce and that claimed to be all natural. I'm trying them out on myself first before I put any on her. Her dry skin is horrendous right now.

So what's the crash course on soaps and lotions?? I've been just using what I knew others had used and really have no idea how to make sense of the labels on those products. We just rinse really really well.

Stacie

kbtoyssni Contributor
kbtoyssni
Posted
Okay the soap stuff totally mystifies me. What are the bad ingredients? I look at the bottle and nothing screams wheat. I didn't think about using the soap at places. SHe still likes to lick her hands.

So some of those chemical names are code words for wheat?

Here at home we are suave for kids shampoo (I thought Sauve was safe), equate brand hand soap, and switched yesterday to Kiss my Face olive and aloe soap for her really bad dry skin and cucumber body lotion by pure life. Those were the only ones I could find that had ingredients I could pronounce and that claimed to be all natural. I'm trying them out on myself first before I put any on her. Her dry skin is horrendous right now.

So what's the crash course on soaps and lotions?? I've been just using what I knew others had used and really have no idea how to make sense of the labels on those products. We just rinse really really well.

Stacie

*Most* soaps are gluten-free unless you're talking specialty soaps like Bath and Body Works, but many soaps do contain soy. I believe shayesmom's daughter is also soy intolerant. Any suave product I've checked is safe. And I think equate, too.

ZsaZsa Newbie
ZsaZsa
Posted

Stacie,

You mentioned that your family drinks Almond milk by Blue Diamond....., But it has "soy lecithin" and 'natural flavors' in it's ingredients. You mentioned that 'soy' makes her sick. Soy gives me hives, anaphylatic reactions and diarrhea!!! Just this week I tried the very Almond milk you mentioned (thinking that the soy lecithin wouldn't bother me...) ....But boy..... did it ever bother me! For me, soy is soy in ANY form! I would bet that it's the soy lecithin ingredient! I hope this helps!!!!!

Worriedtodeath Enthusiast
Worriedtodeath
Posted
  • Author

never even saw that!!!!! That may explain some things. Soy cheese and heavy soy products upset her stomach but i never paid attention to the almond milk ingredients for soy.

Thanks for pointing that out.

Stacie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,016
    • Most Online (within 30 mins)
      7,748
    HONEYSUCKLE
    Newest Member
    HONEYSUCKLE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.