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Pica?


zeta-lilly

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zeta-lilly Apprentice

Okay, I'll preface this by saying that I never actually ate anything. I knew it was crazy, but when I was pregnant (pre-diagnosis), all I wanted to do was eat weird things. I have always had food cravings, but usually normal ones (cookies, bread). The biggest craving I had was permanent markers. I would sit there and fantasize about eating the marker in my drawer. I would get a whiff of gasoline, cleaning products, cedar, fresh paint, and all I could think about was eating it. It went away right after I delivered, at which point I craved hamburgers like crazy. I assume I was just extremely malnourished because of the celiacs and pregnancy.

Has anyone else had pica prior to being diagnosed?


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jerseyangel Proficient

I did--when I was pregnant with my second child. I craved chemical smells like gasoline and paint.

MaryJones2 Enthusiast

I most often associate pica as a symptom of iron deficient anemia. Anemia was my initial symptom. When I was severely anemic I craved ice. It was so bad I had to have 3 crowns replaced because I cracked them. But now that you guys mention it I also used to love the smell of gasoline and markers too.

jerseyangel Proficient

I was anemic for years.....taking iron would keep it at "borderline" most of the time.

Mother of Jibril Enthusiast

My daughter has had problems with pica... sometimes she eats chalk like it's candy. She also loves ice cubes and paper. When I searched online it said that in kids with normal to high intelligence it's associated with iron deficiency and/or OCD. Both of these run in my dad's family. I had her tested and they said her iron levels were "normal," but I didn't get the exact figures and I didn't know as much about the CBC as I do now :rolleyes: The celiac/pica connection makes sense! Her pica has been better since we cut way back on her gluten intake.

Incidentally, I also craved hamburgers during my first pregnancy :P And raw tomatoes. Last time it was Mexican food (guacamole, beans, salsa) and root beer.

MaryJones2 Enthusiast

I think it would be a good idea to be checked out for anemia especially since you're pregnant. The CBC only checks hemoglobin and that isn't always a good indicator of anemia so you also need to have serum iron, ferritin, TIBC (total iron binding capacity).

Puddy Explorer

I chewed on ice for years. About 10 years ago, my dr. discovered I was anemic which he attributed to heavy periods. He told me to take iron pills and I slowly lost the cravings for ice. But about 3 years ago, it started again. I just thought it was a bad habit. This year I was diagnosed with celiac and severe anemia with no iron stores. Myy current dr. put me on heavy duty iron and I haven't had the cravings since. Now that you mention it, I've always loved the smell of markers, paint and especially gasoline.


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zeta-lilly Apprentice
I think it would be a good idea to be checked out for anemia especially since you're pregnant. The CBC only checks hemoglobin and that isn't always a good indicator of anemia so you also need to have serum iron, ferritin, TIBC (total iron binding capacity).

I'm not pregnant now, she's two :-) Since I've gone gluten free I feel much better.

Also, I think to a certain degree thinking that gasoline, markers, and paint smell good is normal. Most of my friends think so, but wanting to eat them is totally different :-) I'm so glad that's over.

Darn210 Enthusiast

When my daughter was initially diagnosed and I was in my denial stage, I was asking the doctor if it could be some sort of bacterial infection or parasite because my daughter would "lick" all kinds of things . . . doorknobs and glass (windows and doors) were her favourite (I think because they felt cold) but other things, too. He looked at me like this . . . :huh: . . . then said that's a form of Pica and that's also a symptom of Celiac . . . Doh!!! I was just giving him more evidence!!! Not good for my "She can't possibly have Celiac" campaign!! :P

Mother of Jibril Enthusiast
He looked at me like this . . . :huh: . . . then said that's a form of Pica and that's also a symptom of Celiac . . . Doh!!! I was just giving him more evidence!!!

:lol::lol:

I used to get in trouble for that all the time when I was little! I remember licking the edge of the counter in the check-out line at Kmart when I was about four or five years old. It just happened to be at mouth-level and I remember liking the metallic taste. What kind of kid does that? :lol: Sooo many things are making sense in my life.

jerseyangel Proficient

When I was a kid, one of my favorite things to do was go the the gas station with my dad. I'd open the window, stick my head out and smell the gasoline. I also loved it when they re-surfaced the roads--loved the tar smell. And magic markers....moth balls.....Vicks Vapo Rub :ph34r:

The only time I had the urge to eat these things was when I was pregnant, though.

Puddy Explorer

Oh, Vicks VapoRub! I love the smell of that. I used to put some on a tissue and carry it around so I could sniff it during the day. I thought it was because it reminded me of my mother when she would rub it on my chest when I was little. Who knew!!! LOL

larry mac Enthusiast

When I was a kid, I used to burn matches and after they cooled let them dissolve in my mouth. I remember it tasting good. lm

zeta-lilly Apprentice
When I was a kid, I used to burn matches and after they cooled let them dissolve in my mouth. I remember it tasting good. lm

Wow! I can't even imagine that tasting good. And I hate the taste of metal. It sounds like you guys had it worse than I ever did! It's funny though, they just redid the elevator at the gym and it smells like paint, so good! Someone asked me why I came to the gym to run a few miles then lift weights, but I took the elevator instead of the stairs. I made up some excuse. I didn't tell them the real reason. ;)

julirama723 Contributor

This is a wild thread!

When I was a kid, I'd always sneak play-doh and eat it. I liked that it was salty and slightly rubbery and had that wierd chemical smell. I also loved to put keys in my mouth, they had this sort of metallic heat. (Just typing that...I can taste them now!) I would also always want to put coins in my mouth for this same reason, but my parents would freak out. (I freak out about that now, thinking of how many germs I ingested, ewwww.)

I also love the smell of gasoline and the smell of burnt matches/blown out candles.

I had no idea this was considered pica! My doctor just asked me about this at my last appointment, and I said, "Of course I don't have pica, I've never eaten dirt!" Ooops.

Mother of Jibril Enthusiast

Oh yeah... keys and coins!! :P And metal railings on the playground at school. Ugh. No wonder I had a lot of colds... I was putting all kinds of nasty things in my mouth.

My daughter has been really healthy, but I catch her doing the same behaviors... We couldn't leave her alone with the playdoh for a long time because she would eat it like a dinner roll.

This thread makes me laugh so hard!! :lol: It just really hits the nail on the head.

AliB Enthusiast
When I was a kid, one of my favorite things to do was go the the gas station with my dad. I'd open the window, stick my head out and smell the gasoline. I also loved it when they re-surfaced the roads--loved the tar smell. And magic markers....moth balls.....Vicks Vapo Rub :ph34r:

Me too! Me Too! I used to wind the window down and take deep breaths of the fuel smells! But I did wonder whether it is a kid thing, too. Young people are very drawn to strong fume-y stuff like glue-sniffing which is generally confined to teenagers.

Perhaps it is something to do with a deficiency of some kind! There's something for the 'powers that be' to investigate - who knows, perhaps they could prevent kids glue-sniffing by getting them on a decent diet with plenty of fresh raw fruit and veg containing plenty of vitamins and minerals and enzymes, and give them supplements if necessary.

Get plenty of the fresh raw food and you feel so great that you don't need to be doing that stuff. Wish I'd eaten more fruit and veg as a kid - come to that I wish I'd eaten more fresh fruit and veg my whole life - maybe I wouldn't be in this mess now.

I am eating more of it now though, and it is working. Anything much that is cooked or 'heavy' and I am back in the quagmire with a struggling digestion and extreme fatigue.

  • 2 months later...
curiousgeorge Rookie

OH geeze, I'm just seeing this thread now.

WOW.

I ate everything as a kid but was REALLY good at keeping it a secret. I quite literally ate story books. I'd rip bits of paper out of them and chew on it like gum. I ate the paint of my tricycle by scraping at it with my teeth (loads ofl ead in that I'm sure). I also used to eat/drink mucilage glue at school. I can still taste that if I really concentrate. I am convinced I was un dx celiac even as a kid. I've never liked bread and I remember it was a special treat to have english muffin pizzas but I'd always feel HORRID after eating them. Funny, I was the pickiest eater on the planet yet I'd eat paint?

MollyBeth Contributor

My iron and ferratin levels are still kindof low. I'm still eating ice all the time...and once when I was in high school I ate powdered laundry detergent. My mom caught me and was like whatis worng with you. I told her I didn't know and the urge was so great I couldn't stop myself. That's the way it is with ice too. After that she didn't buy the powdered detergent anymore... I also love the smell of magic markers an gasoline...

chatycady Explorer

I had pica until they found I had pernicious anemia. (ice) B-12 shots solved that. But I still crave salt. I just ate a whole jar of dill pickles tonight. I figure I must need it. I have low blood pressure.

I still like the smell of burned matches. And I ate play doh too as a child I still like the smell of a fresh can!

  • 1 year later...
anabananakins Explorer

I'm wondering now if my insane cravings for uncooked pasta are pica. I'm new to all this and not yet diagnosed (had the blood tests this morning) but I've craved dried pasta since I was a kid. If it's cooked I think meh, whatever,it loses all power over me but if it's still dry ...ohhhhh. It seems ridiculous that I can take or leave chocolate and all my friends tease me for it :-P

I figured for my gluten challenge I might as well have a final fling. My family will be thrilled if I give it up though; I'm always getting into trouble for getting into the spaghetti when I visit my mum's place - the crunching drives my sister nuts :-)

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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