Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Night From Hell


celiac-mommy

Recommended Posts

celiac-mommy Collaborator

We had a snow day yesterday, so it was my dh's turn to stay home with the kids while I braved the roads to work. I worked a 12 at the hospital and at about 6, dh called and said my 3yo son felt really warm (but was wearing 2 tshirts and a sweatshirt) and had not made it to the bathroom 3x in the last hour--he NEVER pees his pants. I asked him to remove his shirts and take his temperature. Now to preface, dh is an amazing dad and loves his kids more than anything, however, he thinks I'm over the top neurotic with the kids AND he doesn't believe in medicating the kids for anything--and I only do WHEN it's necessary. On ds's 1st birthday, he spiked a temp of 105 3 hours into a dose of Motrin and had a seizure in my arms. He's very susceptable to these high fevers and needs to be medicated sooner rather than later, hopefully by age 5 this will get better.... Anyway, I get home, it's snowing so hard at this point. I walk into the house and the poor kid, still in 2 tshirts, is laying on the couch completely lethargic. DH is working on the computer. I ask what the temp was, he says, "I don't know, I didn't take it, he was fine an hour ago" I say he's burning up, DH says "so" (because he thinks I'm over-reacting at this point). Temp is 103, I give him Motrin and call the dr. We end up in the emergency room, luckily not too busy, and they determine he has a UTI and want to put him on antibiotics--the nearest pharmacy open at 1130pm is 20 minutes away and it's still snowing and now frozen (we had to wait another half hour for the pharmacist to find one that's gluten-free and he's allergic to penacillin). I decide to monitor him during the night and keep up with the meds, go to check on him, he's 2 hours from needing more Motrin, and he's burning up again-I got at least 104 before he started writhing around. Of course we had no Tylenol to piggyback wwith the Motrin, DH now sees how dire this is and he braved the roads to get me the Tylenol. I knew it would be about a 1/2 hour before he came back, so I used the kangaroo hold I used when they were babies and basically used skin to skin contact to calm him and TRY to keep the temp down (I spooned his back against my torso), it actually brought the temp down a 1/2 degree. Gave the Tylenol and then 3 hours later gave the Motrin, finally feeling I could sleep at 3-4am. He's doing mildly better this morning, but now I have to figure out how to get to the pharmacy because we got a couple more inches of snow last night. I'm so glad he's even a little better this morning, he scared me!! And, DH apologized and thanked me for realizing how sick he really was......I'm still a little frustrated though <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Oh Rachelle--what an awful night :( I hope the worst is over and your son recovers quickly. I was scared for you as I read this.

Jestgar Rising Star

Gads! Stupid men. None of 'em would survive without women to take care of them.

Mother of Jibril Enthusiast

How awful! :(

Have you ever tried a lukewarm bath? My son was running a temperature as high as 104 degrees this summer (even on Tylenol)... he ended up having meningitis. The baths really helped bring his fever down for a while. Just make sure the water is not too cold, otherwise his fever will spike again from the shivering.

celiac-mommy Collaborator

He was shivering already right before I did the skin to skin. He wasn't seizing yet, but I could tell that he wasn't far off. I managed to get the antibiotics this morning, so he's had one dose and I'm managing to keep his temp around 101. I did let him go out in the snow for a bit this morning and he had a blast, but now he's tired again. To add insult to injury, I came into the kitchen after I had settled him in (in the middle of the night) and my dh had spaced it out and following the directions on his chinese food dinner-not gluten-free-grabbed the 10 inch skillet, which happens to be cast iron and is NEVER supposed to touch gluten, big NO NO in the house (and he knows that) not only cooked his dinner in it, but left it to make a nice crust in the bottom of the pan. That's about the point where I lost it. Here it was, after midnight, and I'm trying to boil off the remnants and then scour all of the seasoning I've been working so hard to make. If he had been standing in front of me at that point, I probably would have hit him with it :huh: I'm not really sure how they'd ever survive without me (God willing, they'll never have to)......not that I'm perfect by any stretch, but at least I have all my ducks in a row, even if it's more on the side of OCD ;)

DingoGirl Enthusiast

Your poor baby! :o And poor you! What a scary time!

Men! <_< glad you're there and on top of this, what a terrible worry......

now - step away from the skillet...... :lol:

jerseyangel Proficient
now - step away from the skillet...... :lol:

:lol: Yes! I admire the restraint it took not to bean him with it!

I'm sure he's normally a very nice guy, though ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac-mommy Collaborator
:lol: Yes! I admire the restraint it took not to bean him with it!

I'm sure he's normally a very nice guy, though ;)

Yes, normally a nice guy. He's one of the smartest people I've ever met in my life, he just doesn't give things a lot of thought before doing or saying-how it will affect anyone other than himself, not that he's selfish at all, just doesn't think sometimes. I'm over-emotional and he's very under-emotional. We've been married for over 10 years, we must fit somehow... :blink: maybe by year 20 I'll figure it out :lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,006
    • Most Online (within 30 mins)
      7,748

    Peg55
    Newest Member
    Peg55
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.