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Ok So Now I Know What It Is, But How Do I Deal With The Symptoms Like Ringing Ears, And Blurred Visoin?


mr. moore

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DingoGirl Enthusiast

Rinne makes excellent points.

But Mr. Moore, are you Celiac? have you been diagnosed?

If so then that is Square One.


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mr. moore Explorer

Ok i need to know something: am i crazy? i think i am. what is going on?! my vision, i can't see things like i used to. when i was at work i get into the routine and like 20 times i gave the wrong change. im forgetting more and more little things. and the worst thing is my eyes. i told my dad it's like when you rub your eyes and it gets all colored, like your looking at spilt oil on the ground. that's what it's like for me all the time, except the colors are smaller, like the black and white fuzz on a tv thats not on a channel. it's there when i close my eyes its there when i open them. and sometimes when i look at something a shadow develops over certain parts of my vision, like my periphereal vision is in front of me. I CANT WAIT FOR THE 19th!! (when i get my fillings removed) how do i know this is even mercury? because no other condition has my symptoms.

and there's the constant ringing in my ears and the noise in my head.

please somebody help me im scared i have to make it to the 19th but the roads are bad, i can't concentrate (on LOTS of add meds) and yes i do wear my glasses and the same effect is there. i described it the best i can. please help me before i lash out at someone at work and get fired or sent to jail.

tom Contributor

Here's a simple question. What did you eat today?

rinne Apprentice

I don't know what more I can do to help. :(

What about the people in your life, can you talk to a friend? Is there anyone older in your world that you trust?

You could also try a crisis line, sometimes it helps to just hear another person's voice.

What kinds of meds are you on, is your doctor aware of all the medications because there is always the possibility of reactions when mixing meds?

Try to trust that things will get better. :)

Juliebove Rising Star

What you are describing with your eyes does indeed sound like an aural migraine. I have had them and they are annoying. You may or may not have a headache with them. What can help? Changes in diet. Eliminate things like red wine, cheese, and chocolate.

The ringing in the ears? Nervous energy? Could be your thyroid out of whack.

As for the candida, you might try a product called Candex. I got it at Fred Meyer in the health food section but it's also available online. It has helped me with yeast infections caused by antibiotics. I have read about the Three Lac. It's expensive, and complicated and I was just reading on another forum that it contains some strain of bacteria that actually causes an increase in yeast. Not sure if that is true or not.

mr. moore Explorer
I don't know what more I can do to help. :(

What about the people in your life, can you talk to a friend? Is there anyone older in your world that you trust?

You could also try a crisis line, sometimes it helps to just hear another person's voice.

What kinds of meds are you on, is your doctor aware of all the medications because there is always the possibility of reactions when mixing meds?

Try to trust that things will get better. :)

ok to the person who asked what i ate today, would what i ate honestly cause the almost psychedelic colors i experience? i mean, unless it's laced with something lol. i guess eventually common sense has to kick in and for me it took too long, i never had a problem with food, just carbs and i prolly do have a candida overgrowth, but not celiac. and please, change your photo, tom.

well im not on any meds right now, except for the occasional (useless) clonopin for when i work. but here's the thing, whats the point of being calm if you hardly are aware of what's going on in your surroundings, you constantly forget things (add meds don't help) and you always feel someone eyeing you? ive been in therapy for years for social anxiety and there's only so much you can force away with your mind. this is why i can't have a girlfriend and why i am considered a screwball (if you were around me, online im just ok).

my mom wants me to see an eye doctor to test me for some eye disease i forgot which one, but i don't want to keep feeling so disoriented. it's impossible to describe it anymore, but even when it's dark its weird i still see the weird multi colors. i read it's part of mercury poisoning. and i doubt it's something like schizophrenia, even though my moms uncle had it. i would of known. this is something a lot more uncomfortable and clausterphobic. god just ONE more week.

DingoGirl Enthusiast
ok to the person who asked what i ate today, would what i ate honestly cause the almost psychedelic colors i experience? i mean, unless it's laced with something lol. i guess eventually common sense has to kick in and for me it took too long, i never had a problem with food, just carbs and i prolly do have a candida overgrowth, but not celiac. and please, change your photo, tom.

Okay, then, why are you on a celiac forum if you're not celiac? Or thinking you might be celiac? What brought you here? Were you ever diagnosed Celiac? Were you told you have a problem with "carbs"?

And YES, what you eat CAN cause psychedelic colours and shizophrenic experiences.

Wheat can cause this. Not eating it one time, usually, but over a period of days, months, years. Please research "opioid polypetide" and see what you find. Wheat and gluten attach to the opiate receptors in the brains of those susceptible - that's as simply stated as I can make it.

Honestly, you don't appear to be listening to anything we're saying......

So go ahead, get your fillings removed, see what happens. I would bet millions that things will be the same. Go on a wheat-free (at the very least, gluten-free is best) diet and then watch for changes.

Tom, do NOT change your avatar. ;)


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Jestgar Rising Star
i never had a problem with food, just carbs and i prolly do have a candida overgrowth, but not celiac.

This IS a celiac site, and most people here feel that diet has a huge effect on their lives. You might find advice more suited to your situation if you could find a mercury forum.

psawyer Proficient

Dylan,

I am posting for the first time in this topic, but I have been reading both of the topics you started regularly and carefully.

You have amalgam dental fillings. I do as well.

I was very sick. It seems that you are too.

I went on a completely gluten-free diet more than eight years ago. This was after I was diagnosed with celiac disease by an endoscopy and biopsy showing significant damage to my villi. My health has completely returned. I still have my amalgam fillings.

Dylan, please, please, consider that there might be another reason for your problems.

Rachel says that her problems began when her amalgam fillings were drilled out. She was fine before that. Do you want to see if you can make things worse by going down that path?

I am not saying that your amalgam fillings are a good thing, but I don't think that they are the biggest source of your troubles. Try the gluten-free diet, please.

mr. moore Explorer

i thought i told you guys i went wheat free for 2 weeks and gluten free for one and felt nothing, except maybe a little worse. the reason i ended up on this site was BECAUSE of the whole wheat and gluten can cause bipolar symptoms and i firmly believed that. but i'll tell you the secret as to why im so determined: if i find out none of this works, im going to kill myself. every day is a struggle to remember what just happened and to makes sense of the fog and the strange vision. im a tough guy but it's not physical it's not a tummy ache or a case of the squirts or a headache, it's something terrible that's breaking down my will to live.

thats why im here.

rinne Apprentice
i thought i told you guys i went wheat free for 2 weeks and gluten free for one and felt nothing, except maybe a little worse. the reason i ended up on this site was BECAUSE of the whole wheat and gluten can cause bipolar symptoms and i firmly believed that. but i'll tell you the secret as to why im so determined: if i find out none of this works, im going to kill myself. every day is a struggle to remember what just happened and to makes sense of the fog and the strange vision. im a tough guy but it's not physical it's not a tummy ache or a case of the squirts or a headache, it's something terrible that's breaking down my will to live.

thats why im here.

I believe you.

I suspect many of us believe you, many of us have also felt so bad that we wanted to die. We found out that gluten is a poison for us.

I missed where you said that you had gone wheat free for 2 weeks and gluten free for 1 week but honestly that is probably not enough time to see a difference and I question how strict you were able to be and that would totally affect your results also.

You need to find a good health care person where you live, someone who can look at your whole system.

Life is hard work, it may look like some people have easy lives but the reality is that living is hard work and harder yet when our bodies are sick and loaded with toxins. Also, and at 19 you are becoming an adult, that is a challenge. :)

As I have said, I seriously hope that having the mercury out of your mouth makes the difference for you but I am afraid that it may set you back without your doing all the proper things to do for mercury removal.

Sometimes there aren't easy answers and improvements take years not weeks, in my experience life is worth making the effort, as has been said, suicide is a permanent solution to a temporary problem.

You can change, you can enjoy life, you can make the effort to be well, and in fact by being here you are making that effort, please keep trying. :)

DingoGirl Enthusiast
i thought i told you guys i went wheat free for 2 weeks and gluten free for one and felt nothing, except maybe a little worse. the reason i ended up on this site was BECAUSE of the whole wheat and gluten can cause bipolar symptoms and i firmly believed that. but i'll tell you the secret as to why im so determined: if i find out none of this works, im going to kill myself. every day is a struggle to remember what just happened and to makes sense of the fog and the strange vision. im a tough guy but it's not physical it's not a tummy ache or a case of the squirts or a headache, it's something terrible that's breaking down my will to live.

thats why im here.

:( I can very well relate to this. Very well.

Both Rinne and Peter have given excellent advice.

This does take TIME, unfortunately, but it's worth the effort and is life-changing, and you are so young. The gluten-free diet does not work overnight...your problems didn't develop overnight either and won't be fixed instantly.

I would also suggest you need the care of a good doctor. Alas, most don't ascribe to the benefits of the gluten-free diet for mental health, that is something you must do and research on your own, which is where WE can help.

When you went wheat-free and gluten-free, what were you eating? And what are you eating now? Many people do report, BTW, going through a "withdrawal" phase when first removing gluten....I can't remember scientifics on this at the moment but, this could have been what happened to you....

back to bed.

ravenwoodglass Mentor

Two weeks on the diet is not enough to see a difference when you have celiac impacting your brain. It takes time for the antibodies to resolve. Also gluten for those of us with neuro symptoms often has an addictive component. That means some of us will go through a withdrawl when we stop. It usually takes about 2 weeks absolutely gluten free to get through the withdrawl. You really need to give the diet more time. You are not alone or crazy IMHO you are going through a lot that many of us do.

I committed suicide at age 11 when the disease hit full force. They had to shock me to bring me back and then my Mom got to sit by my bed in intensive care for 3 days with the doctors telling her I might never wake up and if I did I would most likely be in a vegetative state. They didn't know how long I was 'gone' before they brought me back. When asked later why I did it I could never give a reason. Celiac can cause a depression so overwhelming that it is really hard to deal with. I continued to suffer from bouts of it for over 30 more years. Trying all kinds of meds and none of them worked. When my physical aspects of this disease hit full force I was luckly because I had my kids to live for. Without them I wouldn't be here. It wasn't until after I went gluten free and had gotten through the withdrawl period that I knew what it was like to feel 'normal'. My life didn't become rosy at that point, I still deal with a lot due to all the damage I have from being misdiagnosed for so many years. But the horrible depression, the OCD type behaviors, the scrambled thought patterns all resolved. I do pray you will get back on the diet and give it a real strict try for at least a couple of months.

Jestgar Rising Star

Dylan, I have so been where you are. We've all heard that saying "you are what you eat" and it's very very true. If your filling your body with a subtle poison, it's gonna make you feel like crap.

You're waiting for your amalgam appointment anyway, why not consider this a de-tox diet to prepare yourself?

Just eat meat and vegetables - stuff that will help your body regroup. You can consider that it's only for a month and a 1/2, and if you feel better at the end of that time, you can decide if you want to continue eating that way, or add back a few things.

Getting your fillings out is a big step, you may as well prepare well for it.

rinne Apprentice

Dylan, Mr.Moore, :) we care.

Please listen to what so many of us are saying, we are not you but we know what it is like to feel isolated and ill and we know there is a way through it to a life that is good to live. You can find your way too. :)

lbd Rookie

Dylan,

These are side effects for klonipin:

Rare: Abnormal thinking, including disorientation, delusions (holding false beliefs that cannot be changed by facts), or loss of sense of reality; agitation; behavior changes, including aggressive behavior, bizarre behavior, decreased inhibition, or outbursts of anger; convulsions (seizures); hallucinations (seeing, hearing, or feeling things that are not there); hypotension (low blood pressure); muscle weakness; skin rash or itching; sore throat, fever, and chills; trouble in sleeping; ulcers or sores in mouth or throat (continuing); uncontrolled movements of body, including the eyes; unusual bleeding or bruising; unusual excitement, nervousness, or irritability; unusual tiredness or weakness (severe); yellow eyes or skin

These certainly sound like many of the effects that you are experiencing. The less rare side effects are blurred vision and other visual disorders. Have you spoken to the doctor that prescribed this drug for you? It is a bipolar disorder drug - are you taking it regularly? If not, the withdrawal side effects are even more pronounced.

Please take the advice of people here and get competent medical help. You may be reacting strongly to this medication.

LBD

DingoGirl Enthusiast
Dylan,

These are side effects for klonipin:

Hi,

just wanted to clarify that those CAN be side effects of Klonepin. I take it occasionally and have had nothing remotely like any of those effects. My dosage is small - either .5 to 1 miligram, but it gets me through the day if I have been glutened, or am having horrible thoughts, or can't sleep. A bottle (30 pills) lasts me about three to four months.

lbd Rookie

You're right - I think I did put that these were rare side effects, but in Dylan's case these might be significant since he is experiencing several of these. People have experienced these effects often enough that they are listed as possible.

Thanks for the correction,

Laurie

Mtndog Collaborator
i thought i told you guys i went wheat free for 2 weeks and gluten free for one and felt nothing, except maybe a little worse. the reason i ended up on this site was BECAUSE of the whole wheat and gluten can cause bipolar symptoms and i firmly believed that. but i'll tell you the secret as to why im so determined: if i find out none of this works, im going to kill myself. every day is a struggle to remember what just happened and to makes sense of the fog and the strange vision. im a tough guy but it's not physical it's not a tummy ache or a case of the squirts or a headache, it's something terrible that's breaking down my will to live.

thats why im here.

Dylan- We are all concerned about you. PLEASE tell your doctor you are feeling suicidal. Klonopin and anti-depressants can cause more depression- especially as you adjust the doses. I take both and they have been life-savers, but like anything else, it takes time for them to kick in and get the dosage right.

Same with the diet. Nothing is going to happen overnight.

I am concerned that you think removing your mercury amalgams will solve all your problems. Most of us have found that our answers are complex- more than one food intolerance etc.

mr. moore Explorer

is there any way i would of recognized this, or a doctor, would of seen it when i was a kid?

can anyone give me a site for people who dealt with mercury poisoning, or sensititivity? when i went on all these diets, no rewind years ago when they first put me on antidepressants. i was a little depressed, yeah. but MOSTLY because i had the worst anxiety come over me over the course of, like one year. the 7th grade to 8th grade period. i can't stress how disturbing it is. i have never been shy previously ever. again, NEVER. it can't be blamed on my thinking style because it is so PRECISE how i felt. i would literally get up to sharpen a pencil and just observe people as they watched me and if they turned to say something to a friend, or basically anything it was against me and i was the idiot and nothing i could do was right because i was so out of it. maybe when i got my tonsils out that was the last straw and mercury took over my brain and i basically got "mad hatter syndrome" or whatever. it just makes so much more sense to me than a piece of bread doing all this. i never had problems, actually, before my tonsils came out. my diet was crap but we were poor and that's probably was i was hyper active. but this intensely, insane feeling of hyperawareness of people watching me, of feeling confused ect, NEVER happened before the tonsils. ever.

DingoGirl Enthusiast

Well, not to keep harping on Celiac :lol: (we ARE on a celiac forum), did you now that many (if not most) cases of active celiac are triggered by (among other things, like pregnancy, for example) surgery?

I had my appendix out at age 40 and it all went to hell from there......

mr. moore Explorer
Well, not to keep harping on Celiac :lol: (we ARE on a celiac forum), did you now that many (if not most) cases of active celiac are triggered by (among other things, like pregnancy, for example) surgery?

I had my appendix out at age 40 and it all went to hell from there......

ok ill schedule a test but i didn't feel any different gluten free...i hope i don't have celiac. it'll be too hard to avoid it for a life time. ok. here's what i'll do:

i'll try what this one person said, as a form of pre surgery detox (see that's a better way of putting it! lol) i'll eat mostly meats and cheeses and veggies and the like. potatoes, bananas, ect. i won't need to worry too much about : msg, gluten, aspartame, and other things.

but in exchange i want to talk to someone who has been poisoned, long term, by mercury fillings and has overcame it.

GFinDC Veteran

I don't know if this will help Mr. Moore, but this link is to a thread that is some what about mercury. not much on in it though.

Open Original Shared Link

I agree that you would be wise to talk with your doctor about these symptoms. They may be something the doc will recognize and be able to help. I find it helps to write down my symptoms before visiting the doctor so I don't forget to mention something.

1 week gluten free is not enough to tell if you are getting better. It could take a few months depending on your body and how it reacts. Everyone's body is different. I often have ringing ears also, and it varies depending on what I eat.

Your light color flashes symptoms could be synesthesia, a condition where the brain interprets sensations somewhat differently than expected. As in sound being interpreted as light/color. Open Original Shared Link

The way I see it, it is fairly easy and cheap to try the gluten free diet for a month or two. It is not a hard diet to follow once you do it for a while and get used to eating differently. If you are going to do the gluten-free diet, you will need to let your doctor know so they can make sure the meds you take are gluten-free also. Wheat starch is sometimes used in pills as a binder for the ingredients.

tom Contributor

I think "mercury fillings" is too inaccurate.

They're "amalgam fillings", of which mercury is a component. Whether this usage should be stopped or not, the fact is there are . ....what, maybe a billion, w/ a B, ppl who've had amalgam fillings who DON'T think the dentistry made them crazy.

It's worrisome to see you put all your eggs in this one basket.

mr. moore Explorer
I think "mercury fillings" is too inaccurate.

They're "amalgam fillings", of which mercury is a component. Whether this usage should be stopped or not, the fact is there are . ....what, maybe a billion, w/ a B, ppl who've had amalgam fillings who DON'T think the dentistry made them crazy.

It's worrisome to see you put all your eggs in this one basket.

it's also a sign of stupidity. mercury poisoning decreases IQ. not surprised. but lately that's how i've been putting all my eggs in one basket. before i came to this website i thought i had every mental illness in the book and would literally spend hours reading cures, then alternate cures, then finally accept i don't have it. then it would be "back to the drawing board".

tom, please don't take this the wrong way, as if it were all women here supporting me i wouldn't know that this could be wrong. i have been told over and over again that im fine, that doing this/that will not help, and 9 times out of 10, they were right. so maybe i should just listen to the minority and give up this chase. i'll just keep driving to work, push carts, have no motivation, slowly forget more and more until i barely kow who i am anymore. if i wasn't sent back to the hospital, i'd probably get in a fatal car crash because certain lights are too bright, or my sunglasses fell off at night and the brake light of the car in front of me was so intensely red that i couldn't see and crashed and died. all i know is, if i keep feeling this way for any longer im gonna be toast.

what you said about a billion people with fillings are true. im still getting them replaced...! but i'll say no one my age has as many fillings as me, or any that are silver. i'm going to bed now. please don't ruin my faith.

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