Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Annika Update

Guhlia

By Guhlia
in Coping with Celiac Disease

Recommended Posts

Guhlia Rising Star
Guhlia
Posted

For those who remember us... Annika is now almost 17 months. She just started gaining weight again and we managed to pack almost a full pound on her in 6 weeks. YAY! She's back on the growth charts. We just got a bunch of bloodwork back and it showed very VERY low IGF (insulin-like growth hormone) and acidosis (acidic blood pH). The doctor thinks this could be due to food intolerances and we're going in for an endoscopy Tuesday to rule out other things. Hopefully this will be the end of our journey. I feel like we've waited so long for answers. We're very slowly adding new foods back into her diet so we're hopeful the weight gains will continue. Thanks to all who have sent us well wishes and prayers over the past year or so. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

I'm so glad to hear she's doing well :)

Lisa Mentor
Lisa
Posted

Angie,

I'm so glad that things look promising and hope you have answers soon. I'd love to see an updated picture. I was there when she was born. ;) and wanted to name her "Goose Guhlia" :P

Hugs to you both!

mommida Enthusiast
mommida
Posted

I am so glad to hear things are getting better!

jerseyangel Proficient
jerseyangel
Posted
I was there when she was born. ;) and wanted to name her "Goose Guhlia" :P

Hugs to you both!

:D I remember that! I also remember I sensed that you were pregnant right before you told us.....just sayin.... :lol:

Glad she's doing well, Ang--keep us posted on the biopsy.

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for the update. So good to hear that she is doing better.

Guhlia Rising Star
Guhlia
Posted
  • Author

Annika has a cold, so the endoscopy is rescheduled for 3 weeks from now. We also got back the 2nd round of bloodwork and it shows no signs of renal failure which is really positive. They're attributing the acidosis to dehydration at the time of the first test. Now we just need to determine what's causing the weight loss and the low IGF. Both of which could apparently be due to malabsorption or malnutrition.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748
    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.