Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Random Bouts Of Dizziness/loss Of Balance

UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted

I have still be struggling with the gluten free diet but have been gluten free for the last 3 days. But today I feel TERRRRRRRRIBLE I had a gluten free pizza but after walking home I dizzy when i turn my head quickly as I did to check for cars on my walk home I got a vertigo like feeling. And when i place my feet I feel vulnerable like they wont go where I want them too because I feel dizzy.

In the last year or so I have had two other experiences like this, both are when I have been overtired or up in excess of 28hrs or so.

I have been diagnosed for a 1 year. 22 years old currently and male. I carry some weight to so maybe it could be related to that <_< Anyone else experienced this.

I bought b12 vitamins just because I thought i may help. It comes from nowhere!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted
And when i place my feet I feel vulnerable like they wont go where I want them to . ..

This part sounds like ataxia.

Was the gluten-free pizza at a restaurant? CC might be hard to avoid.

P.S. I see Melbourne right NOW - Rafa vs Roger.

RiceGuy Collaborator
RiceGuy
Posted

The vitamin B12 is a very good idea. Just make sure it's methylcobalamin, sublingual, and take at least 3mg per day. It may also be advisable to ask a doctor for a shot or two, in order to get your levels up more quickly. The blood test is simple enough, and although it isn't always accurate, in the case of extreme deficiency, I'd hope it would show up.

Other deficiencies should not be overlooked, such as B-complex, vitamin D3, and minerals including potassium and other electrolytes.

As was mentioned, CC could have occurred, but you know your body better than anyone else, and what symptoms to expect. However, it is not uncommon for new symptoms to show up after going gluten-free, when CC occurs.

rinne Apprentice
rinne
Posted

My symptoms included walking like I was drunk, when I hadn't had a drink in months, and other neuro symptoms from a B12 deficiency. It is very common for Celiacs to be deficient in this and other vitamins, Vitamin D too.

It is well worth the effort to have your doctor do the blood work to check your vitamin and mineral levels.

Of course, if you had the gluten free pizza out somewhere there is always the chance of cross contamination. :(

I hope you feel better soon. :)

UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted
  • Author

What is CC guys?

I hadn't taken my vitamins for 3 days and now I have taken them again

I take daily most of the time when I am not lazy: d, multi, b12, fish oil

Yes Rafa V Roger was just one... I and most other Australians really like Roger Federer it was so sad to see him overcome with grief from his loss, bu Nadal is a terrific champ.

I took my vitamins and the dizziness has actually gone away. Do vitamin levals drop when your in a state of sleep depravation?

Minimal sleep last night and I am noticing I get these sort of symptoms when I have not slept adequate levals but sometimes when out, or when there is much to do its simply impossible to sleep for too much

Gfresh404 Enthusiast
Gfresh404
Posted

I was going through the exact same thing and I think I know exactly what you're talking about. It used to happen to me all the time, to the point where I could not do anything. Try removing all dairy from your diet for at least one week. See if you notice a difference.

It might just be a coincidence that you felt like crap after eating pizza (cheese).

It could just be lactose intolerance but in my case, I believe it's a milk allergy, most likely casein - a protein in milk. Let me know if this helps. Good luck

  • 3 weeks later...
Pegleg84 Collaborator
Pegleg84
Posted

Did you (or anyone else) have dizzy/vertigo spells before they were diagnosed with celiac? In the past couple years I have had a few incidents of mild constant vertigo and a couple serious dizzy spells, though they seem to be caused by sudden elevations of humidity, heat and air pressure. I spent nearly a month feeling dizzy while I was in Japan during the summer (extremely humid), and have had a couple heat-related dizzy spells. I've put it down to dehydration. But could people with undiagnosed celiac be prone to these conditions??? I could be completely off base, but what do you think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted
Did you (or anyone else) have dizzy/vertigo spells before they were diagnosed with celiac? In the past couple years I have had a few incidents of mild constant vertigo and a couple serious dizzy spells, though they seem to be caused by sudden elevations of humidity, heat and air pressure. I spent nearly a month feeling dizzy while I was in Japan during the summer (extremely humid), and have had a couple heat-related dizzy spells. I've put it down to dehydration. But could people with undiagnosed celiac be prone to these conditions??? I could be completely off base, but what do you think?

I used to get almost constant sinus infections and ear pressure before going gluten-free. I always blamed that on hayfever before but I think gluten was the real cause of both my infections and balance probs. I've had some more recent episodes of starting to pass out that have cleared up. I blame those on my thyroid cyst that I think was compressing my carotid artery. Just a theory. I also had bad balance problems when I was taking HCTZ hypertension meds recently but they cleared up when I stopped that stuff and cut out most salt from my diet.. My blood pressure stayed much lower after cutting out the salt too. Of courser then again I had lots of problems due to something in wine that caused my feet and ankles to swell and other bad things to happen like not being able to sleep. Dairy does the sleep thing to me also.

mushroom Proficient
mushroom
Posted
Did you (or anyone else) have dizzy/vertigo spells before they were diagnosed with celiac? In the past couple years I have had a few incidents of mild constant vertigo and a couple serious dizzy spells, though they seem to be caused by sudden elevations of humidity, heat and air pressure. I spent nearly a month feeling dizzy while I was in Japan during the summer (extremely humid), and have had a couple heat-related dizzy spells. I've put it down to dehydration. But could people with undiagnosed celiac be prone to these conditions??? I could be completely off base, but what do you think?

I had a terrible spell of vertigo for 6 months, which resolved spontaneously. Don't think gluten related. The one symptom that was definitely related was dizziness and fainting from gas and bloating pressure. Haven't had this happen since gluten free. (I have always felt faint when I get too hot; don't relate this to gluten though.) I guess I am just a dizzy kind of person--must be because I am blonde :lol:

  • 10 months later...
bellis Rookie
bellis
Posted
I have still be struggling with the gluten free diet but have been gluten free for the last 3 days. But today I feel TERRRRRRRRIBLE I had a gluten free pizza but after walking home I dizzy when i turn my head quickly as I did to check for cars on my walk home I got a vertigo like feeling. And when i place my feet I feel vulnerable like they wont go where I want them too because I feel dizzy.

In the last year or so I have had two other experiences like this, both are when I have been overtired or up in excess of 28hrs or so.

I have been diagnosed for a 1 year. 22 years old currently and male. I carry some weight to so maybe it could be related to that <_< Anyone else experienced this.

I bought b12 vitamins just because I thought i may help. It comes from nowhere!

do you still get dizzy? I am gluten-free for about 3 months but get bad gas with dizziness associated. My dizziness and gas go together. . wierd!

haleym Contributor
haleym
Posted
I have still be struggling with the gluten free diet but have been gluten free for the last 3 days. But today I feel TERRRRRRRRIBLE I had a gluten free pizza but after walking home I dizzy when i turn my head quickly as I did to check for cars on my walk home I got a vertigo like feeling. And when i place my feet I feel vulnerable like they wont go where I want them too because I feel dizzy.

In the last year or so I have had two other experiences like this, both are when I have been overtired or up in excess of 28hrs or so.

I have been diagnosed for a 1 year. 22 years old currently and male. I carry some weight to so maybe it could be related to that <_< Anyone else experienced this.

I bought b12 vitamins just because I thought i may help. It comes from nowhere!

My sister and I get that also, and my sister says that it can be related to hypoglycemia, so you may want to watch that. I am a massage therapist, and I got a horrid dizzy spell in the middle of working with one of my patients... it's a good thing I was sitting on my stool because I really could have fallen on my patient, the room was spinning so much!

Good luck, keep us posted!

Guest dyscelia
Guest dyscelia
Posted

I was actually diagnosed with POTS (postural orthostatic tachycardia syndrome) before I ever discovered the celiac. I didnt have the classic pots symptoms, but I was dizzy-vertigo style- very frequently. I'm a nursing student so I did my own research and found a connection between POTS and celiac and asked my doctor to test me for celiac. Turns out the celiac CAUSED the pots!!!!

Do you consistantly follow a gluten free diet? Unfortunately the only way I feel better is by really strict adherance. I had a coffee from starbucks the other day thinking it was harmless, but ended up getting dizzy a little while later. I then called starbucks and found out that the particular coffee I had ordered had gluten in it!!! <_<

I hope you can find some relief from your gluten free diet!! Keep with it, it worked for me!! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748
    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.